🎥🎞️🇫🇷 A lot can happen in 1 year... June 9, 2022 | Production for Bérengère’s story commenced in Lyon & Marseille June 6, 2023 | We’ll find out if ‘NMO, Bonjour’ will win at World Health Organization (WHO) Health for All Film Festival #HAFF Watch our short film here: youtu.be/S61aOuBWf4s

It is no secret that trying to work while living w/ a rare disease is hard. We spoke with Anessa Powell about navigating our professional lives. This is an excellent episode for patients, employers, & HR professionals. #nmo #mog The Sumaira Foundation Genentech podcasts.apple.com/us/podcast/epi…

Herzliche Einladung zur Plauderstunde für alle, die von NMOSD und MOGAD betroffen sind. Unser Termin Mittwoch 14.06.2023 um 19.30 Uhr bei Zoom Hier ist der Link zur Anmeldung : tinyurl.com/Plauderstunde Viele liebe Grüße Euer Matthias #raredisease #mogad #nmosd #nmo #NMOSD

Here's a 24-hour timelapse of the smoke rolling in from Canadian wildfires, spreading a haze across our skycam view of Troy. How do things look where you are? Chime in and show us. cbs6albany.com/chimein

My aunt passed from pancreatic cancer. She was never sick before her diagnosis. Imagine if we knew before it was too late...

TSF TRIBE 🩷🧡💛 Thank you Horizon for bringing us together 🫶🏽 #NMOSD #neuromyelitisoptica

Thank you Sumaira Flower 🍉 for making this plea! I stand by your side as a double seronegative #NMOSD patient and hope that more targeted research is in the pipeline by #NeuroTwitter

#NeuroTwitter FOA | Looking for funding support for #NMOSD / #MOGAD research? TSF’s 2023 grant portal is now open & accepting submissions!🌐🧑🏾‍🔬 Visit sumairafoundation.org/tsf-funded-res… to submit your proposals For grant-related inquiries, email [email protected] #SpreadTheWord

🇫🇷 Rencontrez l'équipe de TSF France

🇫🇷 TSF France remercie les merveilleux experts qui ont passé la journée avec nous à engager des discussions significatives sur les #NMOSD et #MOGAD lors de notre 1ère Journée des Patients à Paris. Merci Stankoff Bruno @PrDeiva collongues nicolas Julie Pique E.Maillart et L.Cabrejo

In 2024, we're turning 10! Welcome to TSF History 101🌺 Aug 2014: Sumaira was DXed with #NMO Sep 2014: Boston Magazine published an article announcing Sumaira’s advocacy plans Oct 2014: TSF was born As the saying goes, TIME IS BRAIN. Read the article: bostonmagazine.com/health/2014/09…

We're thrilled to name Dr. Zhila Maghbooli (Iran) as the 1st awardee of TSF's Diagnostics Fellowship. Dr. Maghbooli spent 4 weeks with Dr. Paddy Waters at University of Oxford learning how to set up and run a live cell-based assay for #MOGAD Read more: sumairafoundation.org/zhila-maghbool…

Sumaira was a featured guest on “The Indian Edit” hosted by Nitasha Manchanda 🎙️Hear how this young dancer & Bollywood aspirant (crowned the 1st Miss Bangladesh-US) turned into a fearless NPO leader & champion for patients suffering from #raredisease theindianedit.com/home/2023/12/1…

We kick off S4 w/ The Sumaira Foundation Ambassador Candice Galvan. She shares the story of her daughter's #NMOSD diagnosis & the importance of patients and caregivers having a place to come together for support & share experiences. #neurotwitter Genentech podcasts.apple.com/us/podcast/epi…

So #grateful to all #pharma that have brought us these therapeutic #LifeSavers. #10YearsofTSF

Living with a #raredisease is not easy and, some days, Sumaira Flower 🍉 might want to walk away from all she's built. But reflecting on what #patientadvocacy has done for the rare but mighty #NMOSD and #MOGAD community, we know we MUST KEEP GOING! #MondayMotivation #RareDiseaseDay

It's #NMOawarenessmonth, so how would you rate your awareness of #NMOSD? #RareDiseaseDay #RareDisease

This is amazing! Congrats Marie! Keep shining!

Lety was a passionate surgical tech when her symptoms began. She was initially misDX'ed w/ #MS & correctly diagnosed w/ #NMOSD by Dr. Fernando Cuascat at Baylor. With a successful treatment plan, Lety is now winning 1st place at 5ks! Read her story: sumairafoundation.org/letys-story-it…

We did it! 🎤🧠🩷 Thank you American Academy of Neurology for enabling The Sumaira Foundation to host this program. Thank you Alexion, Amgen & UCB for the support. Thank you Stacey Clardy MD PhD & ANASTASIA ZEKERIDOU for being great co-chairs of #AANSC. Last but not least, thank you to our fearless patient panelists