Courageous Parents
@blythcpn
Blyth Lord is the founder and ED of Courageous Parents Network and a passionate advocate of pediatric palliative care.
ID: 2432668868
http://www.courageousparentsnetwork.org 07-04-2014 22:33:58
680 Tweet
647 Followers
194 Following
Jake Tapper π¦
@jaketapper
Dad; husband; CNN anchor; author of The Outpost, The Hellfire Club, The Devil May Dance, and soon ORIGINAL SIN (May) then RACE AGAINST TERROR (Oct)
Ashley Hill
@ashleyidesign
Inbound marketing consulting / @HubSpot CMS dev | ashleyidesign.com
Demi Moore
@justdemi
NNPDF
@nnpdf
National Niemann-Pick Disease Foundation
AAHPM
@aahpm
The professional organization for physicians, nurses, social workers and other healthcare providers specializing in hospice and palliative medicine #hpm #hapc
David Kessler
@iamdavidkessler
Author, Finding Meaning: The Sixth Stage of Grief. Coauthor-Elisabeth KΓΌbler-Ross, On Grief & Grieving & Life Lessons & You Can Heal Your Heart with Louise Hay
Holly Yang, MD
@hollyby
Palliative medicine physician in San Diego. Passionate about #hapc, #meded, & increased access to health care.
sarah wildman
@sarahawildman
editing @NYT Op-ed. was @NBCDigital & host First Person podcast @foreignpolicy. //Paper Love: Searching for the Girl My Grandfather Left Behind @riverheadbooks
Delia Lloyd
@realdelia
#Communications expert empowering people to write, speak, and lead/Passionate about #secondacts, #showtunes and #voting. Find me on Substack.
Together for Short Lives
@tog4shortlives
National charity for children's palliative care. Making a lifetime of difference to seriously ill children and their families.
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Maggie Haberman
@maggienyt
NYT/CNN/Author CONFIDENCE MAN: The Making of Donald Trump and the Breaking of America
Amanda (Sina) Griffith
@bumblepr
Media relations consultant. #healthIT, #mentalhealth & #UC patient, wife, mom of 3 kids and 1 dog. givebutter.com/1point3before2β¦
Justin Baker
@justinnbaker
Blessed husband and father of four kiddos Chief, Division of Quality of Life and Pediatric Palliative Care at Stanford Medicine; [email protected]
ICPCN
@icpcn
The ICPCN is the only global membership network working for the right of children with life-limiting and life-threatening conditions to receive palliative care.
Allie Lindahl, MS, RN
@allie_lindahl
Nerdling Nurse - Passionate about kids, patient safety & leaving this world better than when I got here
Nate Bayer, MD
@natebayermd
Studies peer and emotional support for caregivers of children with medical complexity and disabilities #URochesterResearch @URMed_GCH @UR_Med #Pediatrics
Lisa Pelzek-Braun
@lpelzek
Managing editor - Journal of Palliative Medicine @PalliativeMed_J and Palliative Medicine Reports @PallmedR. My views are my own, RTs are not endorsements.
Mike Graglia π»
@jmgraglia
CEO @cureSYNGAP1 𧬠Pod SynGAP.Fund/10 π§ Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Rachel Thee-in-pray-oon, MD, MSCS
@rthienprayoon
Peds Hospice & Palliative Med | She/her | Mama | Peloton | #Compassion | Pro-vaccine | Anti-hate | #QI/#Safety | Please & thank you
Becky Sansbury
@aftrtheshock
Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Ethan Sanford
@ethanlsanford
Pediatric Anesthesiology and Critical Care Medicine @ChildrensTheOne, #PedsAnes #PedsICU @harvardmed and @BostonChildrens alum
Peggy Maguire
@maguirepeggy
Sacha Langton-Gilks
@sachalg
DD (1995-2012) #childcancer symptoms awareness #braintumour #EoLC #bereavement. Singing teacher, speaker, author: #FollowtheChild jkp bit.ly/3f4CBtX
Maggie Rogers
@magthenomad
#ChildhoodCancer Survivor | Patient Advocate | Pediatric and #AYACancer Support @AmericanCancer | Views=mine
Ann-Marie Brown PhD-ACPNP π§
@brownam130
#PedsICU NP, PhD, Professor @EmoryNursing, mom, geema π΄ββοΈ. She/Her. #growingnewcolleagues #PICUNutrition #PICUAPP #ACPNPChat #HCWvsHunger
Emma Jones
@emmajones1emm
Peds palliative care and hospice doc interested in innovative ways to improve patient care.
Kelsey Wirth
@kelseywirth1
Khaliah Johnson, MD
@drkhaliah
Pediatrician| Palliativist| Advocate| Dreamer| Single-mom Superwoman| Change-maker * She/her*
Jori Bogetz
@jbogetz
Maggie Rogers
@maggierogers
Donβt Forget Me
Vicki Jackson
@drvickijackson
Mom, wife, dog-lover, Chief, Div of Palliative Care/Geriatrics Professor of Medicine @mghpalcaregeri Co-Director HMS Center for Palliative Care tweets my own
AAHPM Early Career SIG
@earlycareersig
Development of @aahpm Early Career Professionals in #PalliativeCare #hpm #hapc Educating | Connecting | Advocating
Dead & Company
@deadandcompany
#DeadForever - Live at Sphere | Tickets are on sale now πΉπβ‘οΈ
Courageous Parents Network
@courageouscpn
Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 π¦
shitscaredmum
@shitscaredmum
Mum of 2, lost Laura to brain cancer Campaigning & fundraising #bemorelaura @OurBrainBank Wrote a πlnk.to/TheStarsWillStβ¦ Also on Bluesky
Chrissy Salley, PhD
@chrissysalley
Mom, Pediatric Psychologist in NYC. She/Her. Caring about children with special healthcare needs and their caregivers. @CourageousCPN. Views are my own.
Amy Trowbridge, MD
@amytrowbridge15
Palliative Care, interprofessional education, Seattle, Mom. Co-Director, UW Palliative Care Training Center PCTC.uw.edu
Molly Taylor
@mollytaylormd
Pediatric oncologist, always excited to talk palliative care, psychoneuroimmunology, or Missouri. Tweets are my own, not Med advice.
Scott Maurer, MD
@scottmaurermd
Chief of Pediatric Palliative Med @Childrenspgh. Also peds oncology MD. Likes: being a dad+hubs, teaching communication/empathy, #PedPC research. He/Him.
Claire Crawford, PhD, LMSW, APHSW-C
@palliativclaire
Pediatric palliative social worker in Texas. Passionate about #medicaleducation and cats. All thoughts my own. She/hers #pedpc #socialwork #hapc
Remembering Ruby
@kindlyloudly
Ruby died of T-cell blood cancer aged 18, in 2020. In her memory, we raise research funds for @cclg_uk & share her motto far & wide: #LiveKindlyLiveLoudly
SPP Palliative Care and End of Life SIG
@spp_palleol
Official Twitter Account for Society of Pediatric Psychology's Palliative Care and End of Life Special Interest Group #pedpc #HAPC #HPM #pedpsych
L-CMD Research Foundation
@foundationlcmd
Nonprofit raising $ to urgently research treatments/cure fatal childhood disease LMNA-related congenital muscular dystrophy lcmdresearch.org
Palliative Care McGill
@caremcgill
Palliative Care McGill has been at the forefront of advances in this field, integrating palliative care into the health care system. @McGillU @McGillFamMed
Noam Stern
@paldrnoam
Palliative care pediatrician. Opinions are my own. Will speak up for children who needlessly suffer
Anne Kelemen
@anne_kelemen
Palliative care social worker. Interested in end of life care, social justice, and equality.
Catherine White
@cswhite100
Blog Editor, European Assoc for Palliative Care. Co-chair NIHR Impact Advisory Board. Chair NICE Guideline 204.
Jo Kaur
@sikhfeminist
A mom fighting to save my son Riaan's life, civil rights lawyer, writer, and advocate for children with rare diseases.
Robin Bennett Kanarek
@rbennkrobin
Nurse, mother, palliative care advocate
Shematologist, MD
@acweyand
Peds heme onc, mother, dreamer, pacifist, justice seeker. Clueless Mother Theresa. Retweeted by Wonder Woman #CakeForBreakfast HCWvsHunger.org
Daniel Mahoney
@danielmahoneymd
Pediatrician, promoter of empathy, humanism in medicine, nonviolent conflict resolution, sustainable agriculture. Tweets are my own, not my employerβs.
Preet Bharara
@preetbharara
Patriotic American & proud immigrant. @Springsteen fan. Banned by Putin, fired by Trump. Former US Atty, SDNY. Host of "Stay Tuned" @cafedotcom
Jo Sparrow ππ
@jojosp26
Taryn Schuelke, MS, CT, CCLS
@txgriefgirl
Healthcare Operations Consultant | Certified in Thanatology and Child Life | Author of A Kids Book About Death | Trained in Dignity Therapy
Abby Rosenberg, MD, MS, MA
@abbyrosenbergmd
Chief, Pediatric Palliative Care @DanaFarber, @BostonChildrens; @harvardmed; clinician, researcher, change-maker. Tweets my own. She/Her/Dr. π
National Coalition for Hospice and Palliative Care
@coalitionhpc
The National Coalition HPC is a group of 14 leading organizations dedicated to improving serious illness care for all across the lifespan.