What to do if social contracts are broken? Bogi Eliasen confirms it is. So how can we get a new? Is it a question of trust or do we have to review the things happened and how to grow solidarity again not to leave patients behind in care. #EHFG2024

👏👏👏 to Anca Toma from European Patients' Forum for bringing in the thinking of participation of the society in social contracts to support patients more and better. #EHFG2024

Why tackling chronic diseases in Europe. Interesting panel at #ehfg2024: needs to be a priority and needs a investment in Health to make sure to be sustainable in the future and do good prevention. #healthcare

To be honest I appreciate the theme: chronic diseases are in the discussion. It’s a discussion about patients. Great. But: where is the patient representative in this panel? GasteinForum #ehfg2024 #nothingaboutuswithoutus

„Patients are heard.“ one of the answers about my intervention at #ehfg2024 , as a member of different councils etc. I can agree. But to hear means not always to respect etc. So patient involvement/ participation must be an active partnership.

Just rec'd a reminder for Covid-19 & flu jabs. On Ocrevus. Timing? @GavinGiovannoni "For ppl on anti-CD20's (ocrelizumab, rituximab, ofatumumab) trying to coordinate COVID-19 & flu vaxs with ur next infusion/dose makes little sense, so go ahead &have the vax asap."

MS is thought to be rare or non-existent in Africa (tho it's not) so there is little training/awareness of it among health care professionals. So thrilled #AFRICTRIMS is now part of ECTRIMS family. Badu-Prempeh MD MPH,Dilraj Sokhi,Yared Z. Zewde, Deanna Saylor,Freda Assuah, Anne Helme,

Cognitive impairment and its impact on employment: A qualitative interview-based study involving healthcare professionals and people living with multiple sclerosis - Multiple Sclerosis and Related Disorders msard-journal.com/article/S2211-…

Letztens im Rathaus: Ich buche einen Termin, warte 15 Min bis der zuständige Sachbearbeiter kommt, der auf meine Erinnerung, dass wir einen Termin hätten nur mit einem Schulterzucken und "ich bin nicht digital, mit interessiert das nicht" reagiert. bitkom.org/Presse/Pressei…

💻 Rachel Dunscombe, CEO of @openEHRjoins us to discuss the future of EHR and digital health at our webinar! Join us on 16 Oct 2024. xpandh-project.iscte-iul.pt/xpandh-webinar…

🔥Hot off the press - our latest Newsletter is packed with all the highlights of ECTRIMS 2024! Discover Congress session replays, special podcasts, Patient Community Day recordings in 6 languages, must-see videos, abstracts, and more. Read it here ➡️ bit.ly/3Yd5OKV #MS

We live in an infodemic. We have to fight disinformation just as hard as we fight pandemics! ⁦Alain Labrique⁩

Joanna Wardzinski from Amazon Web Services about the work aws does in the area of healthcare and #digitalisation in healthcare. Very interesting talk at the #healthcarehackathonbayern

😴People with #MS are vulnerable to #sleep disturbances, which can be challenging to assess. "Before recommending polysomnographic studies..., it is essential to screen properly," says Anne-Laure Dubessy of Hôpital Pitié-Salpêtrière AP-HP. Read more about managing sleep👉 bit.ly/48LovJl

🔥 Hot off the press: The #EHFG2024 Conference Outcomes are here! This year’s theme, "Shifting sands of health", explored how democracy, demographics & digitalisation are reshaping health systems across Europe. Check out the key takeaways and insights 👉 bit.ly/3UJjxHm

Why do so many people open their vendors tray when there was ask to give short introduction? Instead of giving facts people start to tell a novel. Shouldn’t we use the time instead for doing a good job in Patient advocacy? #patientinvolvement

#Women with #MS face unique challenges, such as #reproductive issues and #menopause. Read the recap of our recent 3webinar feat. experts from Cleveland Clinic Cemcat & Dalhousie University as they discuss where research should focus its efforts first ➡️ bit.ly/48Sulsk

📺 Rewatch the final #EHFG2024 Plenary "Democracy at work - the European Health Data Space from concept to reality", co organised with EU One Health, here: bit.ly/3YXSB84 #EHFG2024Rewind #EHDS Marco Marsella Birgit Bauer Barbara Prainsack (@[email protected]) @Nickf72

Gepflegt ausmisten hier und über Netzwerke nachdenken. 🤔

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