Join a free, anonymous, online community today bensfriends.org/community-list/ #chroniccondition #chronicillness

Your friends & family may not get you. But we do. Check out our free, anonymous, PEER to PEER rare disease support communities. No need to wait for a monthly meeting. bensfriends.org/community-list/ #chronicillness

To everyone living with myositis, to the caregivers who give their all, and to our supporters who stand with us — your love and resilience inspire us every day. Wishing you a Happy Valentine's Day from all of us at TMA!

No one has to struggle alone. Free. Anonymous. International. Peer to peer support. bensfriends.org #raredisease #chronicillness

The ongoing demands of taking care of someone else can cause stress, weight gain, lack of sleep and isolation. That's why it's so important to take care of yourself. Watch these tips! #selfcare #caregiver

Raynaud's diagnosis typically involves a comprehensive physical examination, supplemented with blood tests to exclude associated medical conditions. More on our FAQs page , here: bit.ly/3bL8xkT #RaynaudsAwareness #raynaudsaware #FAQs

Excited to announce we are hiring a Research Project Manager.... An excellent opportunity for a highly motivated & organised individual capable of working under own initiative to drive forward patient focused rare disease research in Ireland. Full details bit.ly/RPM-JobDesc

Salmonella Outbreaks: 109 people are sick in 29 states from contact with backyard poultry, such as ducks, chickens, and turkeys. Always take steps to stay healthy around your birds. Learn more about this outbreak: bit.ly/44RDu2p

SALMONELLA OUTBREAK: 162 people are sick in 25 states and the District of Columbia. Do not eat recalled cucumbers. Investigators are working to collect more data to see if other cucumbers are affected. Learn more about this outbreak: bit.ly/3VvchQa

In a small rural cemetery near Newark lies the inventor of the CT scanner. Yesterday at a dear friend’s funeral there, a wreath was laid on his grave in tribute to the tool that identified her tumours in 2012 and 2019 granting her that last precious 12 years.

This public consultation is open to EVERYONE. Please make your voice heard! Share the link, spread the word, tell your friends, family and colleagues.

LISTERIA OUTBREAK: 28 people are sick, with 2 deaths, in 12 states. Do not eat meats you get sliced at any deli counter, unless it is reheated to an internal temperature of 165°F or until steaming hot. Read more: bit.ly/4cPl2dO

Andrew Ferrier has completed the Edinburgh Marathon raising an amazing £1472 (inc. GA) for ataxia communities. Thank you for your efforts and what a tremendous accomplishment! #AtaxiaUK #ataxia #ThankYou #EdinburghMarathon #ataxiacommunity

The lovely James has chosen to support both NRAS and Andy's Man Club with his challenge of running the width of Wales🏃. If you're local do keep an eye out for him on 14/09 or why not cheer him on his final approach to Aberystwyth South Beach! You can sponsor James here:

"Our organization picks up where doctors leave off"-Ben's Friends, Patient Experience Officer If you would like to engage with like-minded Raynaud's patients, join Ben's Friends free patient support community > livingwithraynaudsdisease.org #raynaudsdisease #chroniccondition

"Our organization picks up where doctors leave off"-Ben's Friends, Patient Experience Officer If you would like to engage with like-minded Raynaud's patients, join Ben's Friends free patient support community here > livingwithraynaudsdisease.org #raynaudsdisease #chroniccondition