BDFA
@battendiseaseuk
Our mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure.
ID: 3414754917
http://www.bdfa-uk.org.uk 11-08-2015 09:41:54
1,1K Tweet
605 Followers
865 Following
Backstreet Boys
@backstreetboys
Backstreet Into The Millennium: @SphereVegas July 2025. 🌐💫🩵 Millennium 2.0 out July 11! Pre-Order/Pre-Save now.
Official Charts
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The UK's ONLY ✨ Official ✨ Charts as heard on @BBCR1 every Friday at 4pm | Newsletter 👉 bit.ly/2xJ3cIQ 📧
Sam Carlisle
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CEO @CauseCommsUK, comms expert, journo. 20 yrs as national newspaper exec. Daughter with learning disabilities teaches me everything. @iHV trustee @WiJ mentor
Michael Robson🇺🇦
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SportsCenter
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Download the ESPN App today ⬇️
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Sid Yadav MD, FACP
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Jonathan Cooper
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Mel Hall 💙
@melhall10
Mum of 2 amazing boys. Proud Area fundraiser for Acorns Children’s Hospice. Hoping for a cure of Batten Disease one day very soon ❤️ (views all my own)
NPUK
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Prof Sara Mole
@saraemole
UCL Professor & Envoy for Gender Equality. Equity brings excellence. Understanding & treating the neuronal ceroid lipofuscinoses/Batten disease.
Nerine Skinner
@nerineskinner
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@rarediseaseuk
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Specialist Nurse ❤️🧠
Isaac’s Journey Fighting Batten Disease
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My 5yr old son Isaac has CLN2 Batten Disease, currently terminal. I need help to spread awareness & raise money for not only him but for a cure! 🙏🏻🧡
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@beefybotham
Official twitter account of Lord Ian Botham.
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@rarebeacon
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PC Reed
@pc_reed
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Jenny
@jennyflower83
Rachel Thompson
@rachel3thomp
NHS professional. Amateur Cyclist. Grieving mum (13 yr old Frank, Batten disease Oct 2021). Proud Mum to 2 other wonderful humans
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Biotech Entrepreneur
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Jen VanHoutan
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Richard Kramer 🇺🇦
@richardkramer_
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Friendili
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@setpeg
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Evie Bird
@bernardmay15
Acknowledgements Hamish, Eliza, Alistair,Lottie, Sophy, Daniel ,James, Josh, Adam, Charlie, Reuben, Fran, Robbie, W, E, H,A , W,A,Y, S K, T, M, C, D and YOU ❤
CRID - Unique Patient ID/clinical research
@_thecrid
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Amy Fenton Parker
@amyfentonparker
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Ryan Gilmore
@rgsciguy
Dad to 4 awesome boys. Husband. Scientist. Gene Therapy Clinical Research. Tennis player.
Shaheen Gabasa
@hopeforshaheen
A special kid with a special illness👊👊👊 Batten diseas warrior 💪💪💪 Help Shaheen in his fight by donating and sharing his story through the link below
Annabelle Hover
@annabelle_hover
I the loveable girl and a huge vamps
Wickersley Northfield Primary School
@wicknorthps
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NCL Database
@ncldatabase
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@bpclubpod
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Gail Rich
@mammyrich19
Co-Founder of ‘The Nicole & Jessica Rich Foundation’. Raising awareness & funds for Batten Disease after our two beautiful girls were diagnosed in late 2016💗
Nicole Rich
@njrchfoundation
Once you choose hope, anything is possible. #letsbeatbattens #richsistersbeatingbattens
Mila's Miracle
@stopbatten
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Cavalry Healthcare
@cavalrycare
Nurse-led, family run care company, on a mission to change care for the better! 💙 apply.cavalrycare.co.uk