Awareness 4 ALS (@awareness_als) 's Twitter Profile
Awareness 4 ALS

@awareness_als

Avid advocate for #ALS patients. Fighting to make promising treatments available to ALL now. #EndALS

ID: 1101503323260289024

calendar_today01-03-2019 15:23:51

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Steve Haberstroh (@stevehaberstroh) 's Twitter Profile Photo

"We won't stop until every person on the planet knows what ALS is and no person on this planet suffers from the disease." Seems like a reasonable thing to fight for... Am I right? #ALS #iamals #WhyIFight

Les Turner ALS Foundation (@lesturnerals) 's Twitter Profile Photo

The FIRST-EVER drug guidance for #ALS has the potential to speed up the process of drug development, reduce costs and create incentives for the industry to enter the ALS market and develop new treatments. As Brian Wallach & I AM ALS said, it's not a cure, but it's a critical step:

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

If people knew that signing this petition for getting #ALS (Lou Gehrig’s disease) treatments through trials and to patients was easier than downloading an app, would they do it? Please sign and RT if you see this! #SaturdayThoughts iamalsorg.typeform.com/to/EYs4oV

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

With #ALS (Lou Gehrig’s disease) everyday is #NationalIceCreamDay! It’s helpful in keeping weight on, and it’s delicious! My dad’s favorite is rasp choc chip from Graeter's Ice Cream and I always keep it stocked. Please help us #endALS by signing this petition! iamalsorg.typeform.com/to/EYs4oV

Christy A. (@momwithwheels) 's Twitter Profile Photo

I am a wife, mother, teacher, daughter, sister, counselor. I thought I did everything right. Went to college, grad school, got married, worked as a HS teacher, gave birth to a girl & boy. Then got diagnosed with #ALS. My #ALSplea is U.S. FDA to approve BrainStorm #NurOwn

BrainStorm (@brainstormcell) 's Twitter Profile Photo

BrainStorm to Announce 2nd Quarter Financial Results and Provide a Comprehensive Corporate Update. Tuesday, August 13, 2019, at 8:00 AM EST Conference call Call-in numbers: 1-877-423-9813 International: 1-201-689-8573 ID: 13693394. $BCLI

Project ALS (@projectalsorg) 's Twitter Profile Photo

For the first time, there are promising therapies in the pipeline for ALS - and patients should be able to access treatments that have a real chance of improving their lives. Innovative clinical trials, incl. the platform approach that Dr. Cudkowicz describes here, are critical.

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

So I was curious to see what the comments on this were like, and I was not disappointed. All but one of them are about #ALS. I love this community. 💕

CZI Science (@cziscience) 's Twitter Profile Photo

We’re proud to fund I AM ALS to develop tools & build a movement that connects patients, caretakers, doctors, scientists, foundations, corporations + the public in the fight to #EndALS. Read more via People people.com/human-interest…

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

My good friend Tim McDaniel passed away last week. I’m so sad and shocked by how fast his #ALS progressed. In October he wheeled his daughter down the aisle... and now he’s gone.

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

We have clinic tomorrow and I know my dad needs a g-tube, but he’s worried if he gets one he won’t be able to get #NurOwn if/when it’s ready. Does anyone have any insights on that?? C Lebovits Mary Kay Turner @MattBellina3

Awareness 4 ALS (@awareness_als) 's Twitter Profile Photo

Getting the g-tube presentation. Dad seems ok with it! Super relieved that he’s deciding to get one, but worried about the thought of surgery. His breathing isn’t great.