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#AtaxiaIndia #RareDiseaseDay #28February

This is great! We hope this medicine may help many children, young and older persons with #FA #FrederickAtaxia Will all the success and applaud in the days ahead. #RareDisease #AtaxiaIndia Regards Srivastwa, Manoj Srivastwa, Manoj

Congratulation to Reata Pharmaceuticals and all patients and their families on these exciting news! With SKYCLARYS™ (Omavaloxolone), FA is the first of all ataxia types to receive a possible treatment. National Ataxia Foundation Ataxia UK AtaxiasARG A-T Society A-T Foundation (India) National Organization for Rare Disorders (NORD)

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We are happy to introduce you our latest publication: Scale for the Assessment and Rating of Ataxia (SARA): Development of a Training Tool and Certification Program pubmed.ncbi.nlm.nih.gov/36922437/ National Ataxia Foundation Ataxia UK FA Research Alliance Euro-ataxia A-T Foundation (India) EURORDIS-Rare Diseases Europe Critical Path Institute (C-Path)

Still recruiting! For all DRPLA patients, patient representatives and clinicians - contact study contact persons below! National Ataxia Foundation FA Research Alliance Euro-ataxia Ataxia Centre - UCL Institute of Neurology Ataxia and Me CIO 1184030 Ataxie Ataxia Canada A-T Foundation (India) AtaxiasARG

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SARAspeech—Feasibility of automated assessment of ataxic speech disturbance. @Redenlab National Ataxia Foundation Ataxia UK FA Research Alliance Euro-ataxia Critical Path Institute (C-Path) FightingAtaxia Ionis IXICO AtaxiasARG Biogen Ataxie Ataxia Canada A-T Foundation (India) SCAsource rdcu.be/dhLQL

For ataxia patients: What are natural history studies and how can you participate? Ataxia UK FA Research Alliance Euro-ataxia Ataxia and Me CIO 1184030 FightingAtaxia MJD Foundation AtaxiasARG Biogen Ataxie Ataxia Canada A-T Foundation (India) CACNA1A Foundation Hellenic Friedreich´s Ataxia Association MDS youtube.com/watch?v=ojK8JO…

The registration for Ataxia Global Conference will soon end! National Ataxia Foundation Ataxia UK FA Research Alliance Euro-ataxia Ataxia Centre - UCL Institute of Neurology Ataxia and Me CIO 1184030 Critical Path Institute (C-Path) EURORDIS-Rare Diseases Europe FightingAtaxia Ionis IXICO MJD Foundation AtaxiasARG Biogen Ataxie Ataxia Canada A-T Foundation (India) SCAsource

🍁H A P P Y N EW Y E A R ~ 2024🍁 May it be a year of inspiration, compassion, achievement & personal growth for all men & women with kind golden hearts 💛 bearing any little kindness for the persons suffering from the symptom of any kind of Genetic Disorder.

“A-T Foundation” wishes to rename its name with a novel & spearhead name to expand AT Awareness in India at larger level in India and Asian Countries. Please DM us your suggestions or write to [email protected] Sincerely Srivastwa, Manoj

Do you remember when you joined X? I do! #MyXAnniversary