Some people think #PANS #PANDAS is rare. I would like you to do something. Please comment ‘I DO’ If you know someone that has PANS PANDAS I DO

Please could someone advice me how we can hold a LA to account when they have failed to address safeguarding concerns resulting in harm? The LG & SC Ombudsman won’t look at it because social care was appealed as part of an EHCP appeal. Steve Broach KC Contact Children's Commissioner for England

Read the FAQs👇🏻#PansPandasHour It's Not rare!🙏🏻RT to show you care💚 panspandasuk.org/faq-s

Wanted: An NHS clinician who is willing to treat PANS & PANDAS more aggressively than first line treatment or who is willing to listen to evidence from other professionals to establish the underlying cause of organic illness. #pans #pandas #unicornvacancy #uk

Pls RT: Last night ITV Wales News highlighted the call for a public inquiry into Robbie's grossly neg death & 32yr NHS/State cover up. Welsh Gov's claims there has already been an independent inquiry in 2012 is a blatant misrepresentation of the truth! youtube.com/watch?v=O6ThiG…

Imagine you were employed as a Local Authority solicitor and your job was to stand in front of a judge and argue that a child doesn’t have a right to feel safe. It’s a sad world we live in.

Thank you @PandasPans for asking me to be a Trustee! I only hope I can contribute to the charity as a Trustee in a meaningful way. Raising awareness of #PANS #PANDAS in the UK is so desperately needed to help all the families trying to manage these conditions. Diane P

Feeling safe is a basic human need, unless you are a vulnerable child it would seem. Then you are deemed to be controlling....... #ehcp #send #sendcrisis #greenpaper #HumanRights

Alternative provision 'may sometimes be used inappropriately to supplement the SEND system', warns Ofsted, launching a consultation on new plans for area SEND inspections tes.com/magazine/news/…

End of term report for the #PANDAS child, EHCP since 2019 when they weren’t below in every subject & were able to access school. Now they can’t access the alt provision on offer or school. They need proper medical treatment #pans BPNA Royal College of Psychiatrists Children's Commissioner for England Will Quince

How did you spend your cost of living grant? Ours went on legal fees to the LA. They refused to listen to us so it needed a stronger hand to ensure the child didn’t loose ALL EHCP provision. #CostOfLivingCrisis Children's Commissioner for England Special Needs Jungle #greenpaper #SEND #sendcrisis

So sad to be watching another summer slip through my kids childhoods. We look forward to the day when the NHS creates a treatment pathway for #PANS & #PANDAS 😩

Please can I if people would kindly share any case law relating to specification of section f & flexibility that isn’t on the noddy guide? Also, any on JR the FTT decision not to allow an appeal on events post hearing #AskTwitter #edutwitter #send #ehcp #caselaw

The school term starts again in 2 days & we still do not know what education provision child 2 will have.

#edutwitter Would it ever be acceptable for a teacher to work on their own degree in a classroom whilst employed to teach children?

Whilst Rishi Sunak makes big statements on education many parents of children with EHCP’s ask where is their child’s provision? There’s no accountability for failing to deliver legally required education.