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jamanetwork.com/journals/jamap… Binita Kane Danilo.Buonsenso_Surf4Children Mark Faghy Jane Ryan UK Covid-19 Inquiry Cath OBE, FCCT Sharon White 💙OBE SCPHN SN RCM RN

If you have #LongCOVID and are able to get to the NYC area for clinical trial activities, please help us with this important clinical trial!

Long Covid Kids / [email protected] Long Covid Support 🌍 Long Covid SOS @longcovidsos.bsky.social Long COVID Physio Sammie McFarland - See you over there 🦋 Helen Goss Colin Pidgeon SAME HANDLE ON BLUE SKY Sarah O'Connell SJ Merel Sadly children are paying high price. There was no protection offered and no prevention measures at school till today #LongCovidKids

The results of our study suggest that Small Fiber Neuropathy(SFN) may develop during or shortly after SARS-CoV-2 infection, provoking disabling sensory and dysautonomic symptoms that tend to persist for more than 6 months( small cohort study ). #LC karger.com/ene/article-ab…

CPD opportunity. We know from Long Covid Kids / [email protected] that CYP often fall in the gap between any available services. Time to do better for children & young people & prevent decline in young adults rsm.ac.uk/events/paediat… #Paediatrics Lord Bethell

Our latest ME/CFS paper examines the content of extracellular vesicles in male ME patients vs controls before and after exercise. Among pathways implicated are the TCA cycle, complement system, protein folding, ER stress tinyurl.com/266nsx9a

Out tomorrow!

Webinar: How Air Quality Affects Early Childhood Development and Health - Center on the Developing Child at Harvard University This is great! 👏💚 developingchild.harvard.edu/event/webinar/…

Public health messaging hasn’t improved so the general public won’t change their behaviour. 🔁 🎪 ….. Covid NB.1.8.1 variant symptoms, vaccines and travel advice. manchestereveningnews.co.uk/news/uk-news/c…

#VolunteersWeek Join us in celebrating the incredible people behind the scenes who power Long Covid Kids. THANK YOU to every single volunteer in our community. Your time, energy, and passion help us change lives. #ChronicIllnessSupport #LongCovid #LongCovidKids

🧠 Today at 2–3 PM ET (7–8 PM UK): Join @HarvardCDC's webinar on how air quality impacts early childhood development and health. Learn how the air children breathe shapes their health and development—and what we can do about it. 🔗 developingchild.harvard.edu/event/webinar/… #CleanAirForKids

We are a core participant in Module 8 which investigates ‘Children and Young People’. The final preliminary hearing takes place on the 11th June and the hearings start in September. We will continue to support the inquiry to understand paediatric Long Covid. #LongCovidKids

1 / 3 surgeries for our son-a stent in his iliac vein to improve blood flow. Viral insult to the endothelial lining of his veins may have reduced blood flow out of his legs. We'll see how he does in recovery and then address the jugular veins. All part of the #longcovid journey.

Long Covid Kids / [email protected] Thank you for all you do to support and advocate for the thousands of children and young people whose lives have been ripped apart by the long-term consequences of COVID infections.

Long Covid Kids / [email protected] is fighting for children’s voices to be heard at the UK Covid-19 Inquiry (Mod 8: Children & Young People). 📆 The next hearing is 11 June. After 5+ years of illness and 4+ years of advocacy, will anybody listen? Will anyone help? #LongCovidKids #LongCovid

I’m dancing (if you can call it that) because if anyone said years ago I would not only have the energy to be out of bed due to illness, let alone dancing (I call it dancing) but have a joy and meaning to life out of the darkness, and a book telling the story, i would have hit

Who else has written to their MP? Or plans to? This briefing document is doing the heavy lifting for us 🔽 shh-uk.org/get-in-touch-w… But we need to show that there is public demand for #SafeAir4All in healthcare settings

Met a guy today who said, and I quote directly, "I'm not ill, I just have a really painful sore throat".

This is hopeful 👏 GOV.UK are offering 8 #CleanAir projects between £75K-100K in funding. The deadline for applications is 25th June 2025. Calling all the amazing clean air people in the UK with the innovative ideas! 🙏 Apply here: …for-innovation-funding.service.gov.uk/competition/21…

Almost 18 months since we filed our legal case with NHS Grampian - we're still waiting for them to mark their own homework. Why are health boards investigating themselves? Are they being allowed to cover up harm? Tragic case outlined in The Sunday Post ⤵️ x.com/ladymcbeth2/st…