
National Down Syndrome Policy Group
@ndspolicygroup
The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS
ID: 1374314297195692040
http://www.ndspg.org 23-03-2021 10:57:34
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Our Advisory Group members ran a ‘Write to your MP’ workshop at our Summit last week. They want their MPs to step up and ask Stephen Kinnock Secretary for Department of Health and Social Care to issue robust Guidance for the #DownSyndromeAct2022. Three years is too long to wait. We deserve better.



Fantastic session at the Cornwall Advisory Group Today with Jayne Kirkham MP for Truro & Falmouth Truro and Falmouth hearing about The Summit in london last week then playing Memory Bingo before finishing off with lashings of pizza GoodTimes.

At the National Down Syndrome Policy Group Advisory Group UK Summit, members wrote to their MPs inviting them to join the All-Party Parliamentary Group on Down Syndrome. We have six new members recruited so far. Welcome to MP Paul Waugh MP who is our newest recruit! Damian Hinds @appgds



When he took over BBC Radio Solent Tommy Jessop’s theme was enjoying life & living happy with Down syndrome. Guest James Carter told Katie Martin “I don’t think we can change the disability side of it. I think we should live life to the full & don’t doubt yourself.”

Delighted to welcome Cat Smith MP to the APPG for Down Syndrome team following an invitation from the North Lancs #DownSyndrome Group at our National Down Syndrome Policy Group UK Summit. Excited to collaborate to improve outcomes for individuals with DS. Damian Hinds Jack Rankin MP 🇬🇧 Graham Stuart MP Sarah Costerton



Great to have a productive catch-up today in Parliament with APPG for Down Syndrome Co-Chairs Damian Hinds MP & #AndrewCooper MP. A busy few months lie ahead as we prepare for the imminent draft #DownSyndromeAct draft guidance public consultation. More information to follow soon.


Proud to see leaders with Down’s syndrome shaping the future at the first NDSPG Summit. This is what empowerment looks like! Read their blog to find out the details. ndspg.org/national-down-… Damian Hinds Andrew Cooper MP

Well hello there! I am really proud to announce that my very first children’s book has been published today by Ladybird Books . It is called TOMMY’S TIME TO SHINE and I really am excited for you all to read it ✨🤩🤓 📖




Today The Times warns UK House of Commons that voting for the Assisted Suicide Bill tomorrow would be“a fatal error” & this is “a bad Bill beyond repair. It needs to be killed off.” UK Parliament has a duty to protect the vulnerable: care not kill Shabana Mahmood MP Frank Cottrell-Boyce


Before the vote today APPG for Down Syndrome co-chair Damian Hinds voices deep concerns over the assisted dying bill, warning of risks around coercion & capacity for people with #DownSyndrome & LD, & urging great caution. #AssistedDyingBill Nikki da Costa Rosa Monckton Jim Shannon MP Lord (David) Alton


🚨 JOURNALIST Seeking case studies on the failings of SEND reform & proposal to scrap EHCPs in mainstream schools 📌 Looking to speak with: Families who struggled moving from mainstream to special school Families who struggled accessing special school 📧 [email protected]


Congratulations 🥳🤩🍾 Fionn and Jonathan each were awarded at the Rémy Martin Irish Men of the Year Awards, Fionn for 'Diversity & Inclusion Advocate' and Jonathan (on behalf of Fionnathan Productions) for 'Male Team of the Year'. fionnathan Tommy Jessop
