BHD is a rare inhertied genetic condition. People with #BHD may not know they have the condition until a health event such as #pneumothorax happens. Learn more about BHD and pneumothorax here: thebhdfoundation.org/blog/431-world… #WorldPneumothoraxDay #WPD24

Lucas is a pulmonologist from Buenos Aires, Argentina who works in rare disease for a pharmaceutical company. He also lives with BHD syndrome. This #WorldPneumothoraxDay, hear Lucas’s story to learn more about BHD: thebhdfoundation.org/blog/431-world…

Could it be BHD? Share and RT to help us raise awareness on #WorldPneumothoraxDay.

What are the symptoms of a #pneumothorax? Take a look at this symptom checker below 👇 #WorldPneumothoraxDay #WPD24

Join us in recognizing #WorldPneumothoraxDay.

#DYK that pneumothorax can be a sign of BHD? Genetic testing can help save lives. Join us this #WorldPnemothoraxDay to spread awareness.

Our special Meet the Expert event has started! Simon Johnson, Professor of Respiratory Medicine at Uni of Nottingham #WeAreUoN is giving us a short talk on what a pneumothorax is. #WorldPneumothoraxDay

Now we are hearing from Professor Stefan Marciniak (Stefan Marciniak) from Cambridge University. Stefan is giving us a short talk on treatment options and management of pneumothorax in BHD. 💊 #WorldPneumothoraxDay

Thank you to everyone who participated in #WorldPnemothoraxDay. You've played an important role in helping us make a difference in the BHD community! If you missed WPD, you can read all about it in our latest blog on our website: lght.ly/fcokdj4

We're delighted to announce we are funding a new research project involving an international consortium of researchers. Find out more by visiting: lght.ly/ni07l6 #BHDsyndrome Asher Orion Group Stefan Marciniak Rhino Health Brigham and Women's Hospital Mass General Brigham Cambridge University

🎉Proud to be part of this collaborative effort to develop #AI diagnostic tools for #BHDsyndrome & other rare genetic disorders causing pneumothorax👉lght.ly/ni07l6 Myrovlytis Trust Asher Orion Group Stefan Marciniak Brigham and Women's Hospital Mass General Brigham Cambridge University Department of Radiology, University of Cambridge

Good morning from Manchester! We are at the #BAD2024 annual meeting 🩺 come and see us on stand PSG20 The British Association of Dermatologists #Dermatology #RareDisease #PSG

All set up for two days at the British Association of Dermatologists annual conference #BAD2024 The British Association of Dermatologists #PatientAdvocacy #Dermatology #RareDisease

We’ve had a great day meeting other patient support groups and dermatologists here @HealthySkin4All in Manchester! Fab day #BAD2024 LUPUSUK 💙 The Ectodermal Dysplasia Society Behçet's UK #Dermatology Myrovlytis Trust #PatientAdvocacy

Let’s go! This morning we’re at the Skin Genetics Group Clinical Meeting #BAD2024 The British Association of Dermatologists Looking forward to the talks!

Join us at the BHD Foundation Community Symposium on 12 October 2024 to learn about BHD, updates on the latest research and patient panel discussions! Secure your spot 👇 eventbrite.co.uk/e/bhd-communit…

We're pleased to announce the publishing of ERN's first definitive European clinical guidelines for the diagnosis and management of BHD. We are proud to be a part of this milestone project. Read our new article to learn more: thebhdfoundation.org/blog/434-ern-g…

Over 150 people have signed up for our upcoming symposium! This event is focused on the patient community. Patients & family members will be able to learn more about BHD from clinicians and patients who have lived experience. Don't miss out! 👇 eventbrite.co.uk/e/bhd-communit…

Today is #InternationalDayofCharity. 💚 Our mission is to drive research & improve outcomes for people with rare conditions. We need your support to continue making a difference for the rare diseases community. Join our mission and donate today: paypal.com/donate?token=U…

Check out the programme for BHD Foundation's upcoming symposium 👇