ALS ACCESS
@brainmatters10
Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
ID: 1012447808635461634
28-06-2018 21:29:02
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This drug is the one that shown to help some greatly. Katie Couric Please help!!
It would only be #BetterTogether if the The ALS Association joined forces with BrainStorm and helped to support and fund the Phase 3b trial. Without that, we are truly NOT #BetterTogether. That is all outlined in the lawsuit brought against them, by the 15 chapters that
Dr. Robert M. Califf U.S. FDA Rep. Brett Guthrie what are waiting for? Why are we not approving these treatments such as Nurown Ppl are dying
The ALS Association chapters that stood up and sued the National ALS Association are heroes. The National was still sitting on about 75 million of ice bucket money. 16 Chapters are now on their own, against the awful actions of National. Meg Tirrell @stat CNBC Investigative Ask
Matt Bellina was able to stand after second dose of Nurown, for ALS. Yet not one charity is publicly supporting, or offering grants to get this drug to New trial. A both sad and tragic loss. I AM ALS axeALSFoundation Hope4Cure Racing for ALS