Messi, Messi Messi ⚽️⚽️⚽️

#RareDiseaseDay is coming up on February 28th! #ShowYourStripes

With Rare Disease Day right around the corner, we will be posting some #raredisease facts in honor of it. We hope with continued efforts and advocacy, we can take steps towards getting more FDA approved treatments! #GlobalGenes #RareDiseases #CareAboutRare #RareDiseaseDay2023

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February 28th is #rarediseaseday2023 #showyourstripes

Today is Rare Disease Day and it’s a day to raise awareness for the 300 Million people in the world with over 6000 rare diseases. If you or a loved one have a rare disease write it in the comments and make it seen. #RareDisease #RareDiseaseDay #RareDiseaseDay2023

"People with rare diseases often struggle for years to find an accurate diagnosis and when they do, very few find that they have treatments for them." - Dr. Lawrence Tabak #RDDNIH

Today is #RareDiseaseDay, an international movement to raise awareness for the 300 million people in the world living with a rare disease.

Celebrating my daughter Stella today on #RareDeseaseDay Stella has Infantile Onset Ascending Hereditary Spastic Paraplegia (IAHSP). She is one of the many rare disease warriors around the world.

Today is National Doctors' Day! We are thankful for all doctors, but especially those who specialize in treating patients with rare diseases! #nationaldoctorsday

Thank you Trexo Robotics for letting me watch my girl walk today 🥰

Happy #MothersDay to all the #RareDisease moms! Including chosen mothers. Your passion & responsibility as advocates for your children is the model for everything we do 💙 #Moms living with #RareDiseases, know you are a gift for all the ways you show up in your children's lives.

We are so proud of our FPS inventors who participated in the Invention Convention State Finals! Congrats to Jennings Grade 5 Student Noah, who was invited to participate in US Nationals for his invention, The Connect O’ Ramp, a portable wheelchair ramp inspired by his sister

⁦Brenda Kupchick⁩ ⁦Senator Tony Hwang⁩ ⁦C. McCarthy Vahey⁩ ⁦Governor Ned Lamont⁩ ⁦Chris Murphy 🟧⁩ ⁦Richard Blumenthal⁩ ⁦Fairfield Citizen⁩ ⁦Fairfield CT, Superintendent of Schools⁩

Have you or a loved one in the #RareDisease community been affected by the recent fires in #Hawaii? NORD is proud to offer a Hurricane & Natural Disaster Emergency Relief fund that can help pay for repairs, temporary lodging, and more. Apply here: bit.ly/45yyezS

Want to rep some new #RareDiseaseDay gear on February 29, the rarest day of the year? Join the global rare community and #ShowYourStripes with your favorite items from our Rare Disease Day store. Proceeds benefit NORD! bit.ly/3LnJMyN

Today is National Caregiver's Day. As a caregiver, you are one of millions caring for a loved one in the U.S., but being one of millions, means there is a whole community ready to support you! Access caregiver resources:  go.globalgenes.org/Caregiver #Caregiver #CareAboutRare

Jennings students are showing their stripes for Rare Disease Day to support and celebrate friends impacted by a rare disease. Rare Disease Day is a global movement that raises awareness for those living with, supporting, and treating rare diseases. #RareDiseaseDay2024

.Z100 New York Has Your Chance To Win TWO Taylor Swift | The Eras Tour Tickets, free flights and hotel in Toronto! ul.ink/2Q767W-MMEA2X_t

Calling all rare disease community members – patients, caregivers, clinicians, researchers, and advocates to join a petition Congress in honor of Rare Disease Week on Capitol Hill 2025. everylifefoundation.quorum.us/campaign/11175…