It's a bit ironic that #LongCovidAwarenessDay falls precisely on the day I felt my first #Covid symptoms back in 2020. As a young & fit PhD student I was convinced this would be over in a heartbeat. 1826 days later, I've lost everything. I never got to experience my prime.

Poland doesn't even recognise ME/CFS, leaving one man living with it with no way out from domestic abuse In Poland a patient can’t get a diagnosis of #MEcfs, despite it rendering him bed-bound for many years #MEAwarenessHour Hannah Sharland speaks with Karol: thecanary.co/global/world-a…

Im going to sound like my grandma, but: Why is an increasing number of people seemingly allergic to headphones? There's an immense variety available to go on/in/around/over someone's ears. Easy peasy. Yet you decide to have whole trains bear witness to your annoying tiktoks?!

Russland hat sich entschieden, am heutigen Karfreitag, ein Bäckerehepaar zu ermorden, welches Osterbrot gebacken hatte und darauf wartete, dass es abgeholt wird. Über 30 weitere Menschen wurden verletzt. Ukrainer freuten sich auf das traditionelle Osterbrot dieser Bäckerei

Das ist die Realität. Warum sieht das keiner. Warum passiert nichts? Warum?

It is correct that masks cannot completely prevent infectious diseases. It is incorrect that masks are completely ineffective in preventing infectious diseases.

This shouldn't be happening 💔

Hey GWR, what is the point of having a seat reservation as a disabled person when you can't even get to your seat? This is my second time travelling with you & the second time things are not working out at all! 😑

The Covid pandemic isn't over. Nor is the minimization of Covid and LongCovid.

1/11 I wish this post wasn’t necessary. I wish I could say things have changed. But here we are another year another May 12th and still so many of us are trapped in dark rooms silenced by a disease that feels like slow dying. #MECFS #MEAwarenessDay #ChronicIllness

Repeat after me for #MEAwarenessDay: The hallmark symptom of #ME / #MECFS is not "feeling tired". It's not "fatigue". It's every cell in your body screaming after the smallest exertion. It's not being able to move if your life depended on it. It's #PEM. It's #HellOnEarth.

someone posted: The term “cost of living” pisses me off so bad. Do we hear ourselves??? Cost. Of. LIVING!? On a floating self-sustaining rock in the vastness of the universe, we made living a commodity, Insanity !

Hey Deutsche Bahn Personenverkehr. Eure Züge fallen mal wieder "spontan" aus & ruinieren meinen Feierabend & Urlaub. Bei eurer Hotline geht niemand ran. Ich komme heute Abend wohl nicht mehr aus Brüssel weg. Außer mit Eurostar. Darf ich den nutzen? Und falls nein, wer kommt für die Kosten auf?

“I support disabled people..” Unless they’re not working, and you don’t think they’re sick enough Unless they’re overweight Unless they aren’t positive Unless they need gov. benefits Unless they actually act sick Unless you can’t use them for inspiration That’s not support

Liebe #LongCovid, #CovidIsNotOver, #MECFS bubble - ich habe zur Infektionsvermeidung gute Erfahrungen mit dem #VirX-Nasenspray gemacht, leider ist das nirgendwo mehr erhältlich. Habt ihr Tipps & Ideen für eine Alternative? Nutze das gerne auf Bahnfahrten & Co 🥺

Reminder that you're never safe with #LongCovid or #MECFS. It's been over a year. I was doing great. Not healed, but living. No PEM. I crashed virtually over night. No idea why, no idea what went wrong. It's confusing & painful & I'm incredibly scared 😩

Trying to work today (from my bed) was a terrible, terrible idea. Feels like my head is falling off & my eyesight is... not great. Not looking forward to tomorrow right now 🤦🏻‍♀️ #MECFS #LongCovid

A few weeks ago, I walked 20.000 steps on my holiday & still had energy left in the evening. Today, I had to lie down for 4 hours after taking a shower. F*ck you, #MECFS. #LongCovid #NotRecovered #Covid

I'm finally back in the office after my #LongCovid crash. And I'm greeted by 5 coughing colleagues who do not see anything wrong with their behaviour... I'm so done.

Kurze Umfrage zu Off-Label Medikation bei Post Covid & ME/CFS Wird voraussichtlich der Expertengruppe des gemeinsamen Bundesausschusses vorgelegt docs.google.com/forms/d/e/1FAI…