Annabelle Skidmore
@annieskidmore2
PhD student @ BCU š Health Advisor @ BUPA, PKU patient š±
ID: 1537054126990835712
15-06-2022 12:47:31
150 Tweet
96 Followers
254 Following
NIH
@nih
Official account of the National Institutes of Health. NIH...Turning Discovery Into HealthĀ®. Ā Privacy Policy:Ā go.usa.gov/x9svN Engagement ā endorsement
PKU UK & Ireland
@pku_uk_ireland
Connecting the PKU community in the UK & Ireland. Raising money for @NSPKU here: justgiving.com/500Kin2019?utmā¦
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Asker Jeukendrup
@jeukendrup
Professor of exercise metabolism, performance consultant in elite sport, entrepreneur, keen endurance athlete multiple Ironman finisher (incl 6x Kona).
Sharon Buckley
@sharonbuckley
Dr Declan Ryan PhD
@drdecryan
Assoc Prof @UniNorthants. Research Areas: Physical Activity in Greenspaces | HAF Programme | Active Travel | Northamptonās Active Quarter | Seconded to @ipscj
American College of Sports Medicine
@acsmnews
ACSM | #ACSM25 | #ACSMCertified Our Mission: To educate and empower professionals to advance the science and practice of health and human performance.
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
angela thomas
@thomasapb
#obstreperous Drinks tea, reads books and knows (some) things.
Journal of Physiology
@jphysiol
The Journal of Physiology publishes original research in all areas of physiology and pathophysiology that illustrates new physiological principles or mechanisms
Andy Sparks
@sparks_andy
Physiology, nutrition, cycling and endurance research. Maurten AB. @MaurtenOfficial | maurten.com | Honorary Visiting Research Fellow @LJMU.
PKU Mexico
@pkumexico
AsociaciĆ³n Mexicana de Fenilcetonuria, A.C.
Andrea
@genuinepku
Kirsten KiƦr Ahring
@kkahring
Dr Adam L. Kelly
@adamkelly07
Associate Professor of Sport and Exercise | Director of #RAYSDLab | Course Leader for Professional Doctorate in Sport (DSport) | SFHEA BASES CSci PSCC UEFA A
Daniel Bailey
@drdanielbailey
Reader in Sedentary Behaviour and Health @Bruneluni London. Focusing on intervention development, evaluation and implementation
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Genetic Alliance UK
@geneticall_uk
National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
CharoSCancio
@charoscancio
Madre de Candela #PKU Trabajando por mejorar calidad de vida #RareDisease @correperells #sitges Hagamos fƔciles las cosas... Todos viviremos mucho mejor :-)
Rare Diseases Ireland
@rarediseasesie
Equitable access to healthcare and opportunity for all! RDI - advocating for equitable access for the 300,000 people in Ireland living with rare diseases.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Javier Gonzalez
@gonzalez_jt
Physiologist interested in human fuel use #nutrition | #exercise | #carbohydrate | #metabolism | #cycling | #science gonzalezjt1.wordpress.com/2024/03/
Helen Gravestock
@hjgravestock
Sport Biomechanics Lecturer, BASES SE Biomechanics, FHEA registered, Proud Reader, Avid Organiser, and All Round Creative Nerd
Craig Perrin
@craigperrin7
Interested in lumbar extensors and hamstring injuries.
NIRDP
@ni_rdp
Working together for the Rare Disease Community in NI
Mark Jeffreys
@jeffreysmj
Director of Sport and Physical Activity, Birmingham City University. National Coach, English Universities Women's 7s. Love my family!
CORD
@raredisorders
CORD Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.#Canada4Rare
Journal of Applied Physiology
@japplphysiol
Original research in physiology with an emphasis on adaptive and integrative mechanisms | An @APSPhysiology journal jappl.podbean.com
Euro J Sport Science
@eurjsportsci
This account has been archived & is no longer active. Follow us on Bluesky (bsky.app/profile/eurojsā¦) for regular news & updates.
Georgia PKU Connect
@georgiapku_usa
Connecting PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives.
American Physiological Society
@apsphysiology
The American Physiological Society empowers scientists to understand life, improve health and advance discoveries. Follow @SciPolAPS, @APSPublications.
PKU Lyfe
@pkulyfe
James Morton
@jamesymorton
Professor of Exercise Metabolism LJMU. SiS and INEOS Sport. Formerly Team Sky and Liverpool FC. Proud Belfast Boy
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrarā¦
James Moran
@jamesepmoran
Head of Performance / Dietitian / Performance Nutritionist š½ @UnoXTeam Visiting Fellow @Carnegie_Sport I @LJMUNutrition alum
Kate Ann
@pku_palermo15
*Rare Disease Awareness Advocate* Mom of 2, South Florida Girl, We are PKU strong!! #pku
FoodIdeasForPKUs
@foodideasforpku
Hi this is a page for those with PKU where you can get ideas for new meals etc. Link to FB page below. I run 'PKU Friendly' fb group also. (@Hann_E92 is me.)
PKUDrugsNow
@nowpku
#PKUDrugsNow is a campaign modern medical treatments for people living with PKU #lifechangingdrugs
Valentina
@valenti45866924
vali
Global Association for PKU
@gap_pku
The Global Association for PKU has been formed to close gaps in care for people who have PKU across the world.
PKU Plates
@pkuplates
Mum and son with PKU YouTube- PKU Plates recipes, reviews, life with PKU
Solace Nutrition
@solacenutrition
Safe, reliable, and effective nutrition formulas that help individuals with unique metabolic nutritional needs and chronic diseases.
MAPKUF
@mdallianceofpku
OrphanetJournal at BMC
@ojrarediseases
Orphanet Journal of Rare Diseases is fully open access & published by @BioMedCentral (part of @SpringerNature), on behalf of @INSERM.
Philippa Turner
@drpippaturner
Sector Development Manager, London & Business Archives @UKNatArcSector, PhD in HoA, U of York. PKU patient. Lancastrian. Own views; retweet not nec endorsement.
Dr Chris Kirk
@chriskirk_asp
Senior Lecturer @sheffhallamsspa, @SHP_SHU; Applied sport scientist @AltiusPerform; PhD from @LJMUSportSci; CSci MCASES CSCS; MMA, BJJš«; All views are my own.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Savannah Sturridge
@sasturridge
Programme Manager @The_CatalystC | PhD Researcher @UniKentSportSci | Respiratory Physiology| BASES Outreach Team
Wee Lun Foo
@weelunfoo
First Team Nutritionist & PhD Student
Dr Nikita Rowley
@nikitarowley
Psychologist | Lecturer | Researcher: physical activity, exercise & health; exercise referral; behaviour change | Course Director: Sport & Exercise Psychology