Day 29 - Fact 29 3 in 4 people diagnosed with pancreatic cancer die within a year how can this be the case in 2023 ? when so much progress has been made with the other cancers #sethslegacy

Only 26% of leaders have the skills to create psychological safety for their teams (research by McKinsey). It's tricky for leaders. Often we want the best of both worlds: all voices heard & failure acknowledged/learned from. But leaders also want harmony, comfort & a sense of

There's an important Scottish Parliament debate today on the sustainability of hospice care in Scotland; thank you Sue Webber MSP 💜💙, for raising this issue. With demand for palliative care rising, the contribution of hospices has never been so vital: parliament.scot/chamber-and-co…

Thank you Amol Rajan for raising the question of funding for the UK’s hospice sector with the Health Secretary today. The data Hospice UK obtained from FOIs established that almost none of the £1.5bn of extra investment into ICBs mentioned by Victoria Atkins has gone to hospices

England's independent hospices faced a cut of £47m in real terms in 2023, as they were offered either no uplift at all in their ICB (local NHS) funding, or at a rate well below the rise in the costs of providing their care. Hospice UK has raised this literally all year 🧵(1/6)

It initially really surprised me in this first year at Hospice UK that hospices do so much beyond their buildings. Less than 5% of deaths occur in hospices, but the number of people who benefit from their services is so much higher: Over 300,000 people in 2022. Not just IPU!

Understanding & influencing courageous behaviour is an important part of leading change. If we don't feel courage, we won't try new things. Bill Treasurer helpfully describes "three buckets of courage": 1) TRY courage is the courage of first attempts, being wiling to experiment &

As Dr Emma Wadey Ph.D FQNI RN (MH) says, you’re never alone. Please don’t suffer in silence. #NoHealthWithoutMentalHeth

Thank you 🙏

Join me and Anitachayes 💜(she/her) at the Dying Matters event on the 7th May with the The RCN rcn.org.uk/news-and-event… hear about the educational resources being launched as part of the #sethslegacy

Thanks Ashgate Hospice for joining us on BBC Breakfast to speak up for the hospice sector as it faces a £77m deficit. We need a new funding model for hospices – the cost of not supporting them would be devastating for patients, families, staff, communities and the NHS itself.

Help please! We have had an amazing response to our Equitable Bereavement Care for All study BUT we have gaps. We are looking for more 1)males 2) those from Polish, Traveller or Roma communities 3) those bereaved by child loss/suicide/murder/manslaughter/RTC. Please retweet 🙏🏽🙏🏽 👇🏽👇🏽

It's Learning Disability Week! "DO YOU SEE ME?" This is what it feels like when we see and listen to each other! On Thursday, this group will host & speak at the final The Victoria & Stuart Project conference. Launching new end of life care planning toolkit. Plus, webinar 27 June. Book👇1/2

Measuring impact. There's an increasing focus on demonstrating impact in our work in improvement, change & knowledge creation. But while we're so busy measuring impact, is anything actually changing? Data & measurement are important but they're not enough to create change,

If we want to create large scale, radical change, we need to shift from a "manager’s mindset" (building consensus & redesigning processes to make them more predictable & efficient) to a "changemaker’s mindset" (building coalitions & creating space for exploration & discovery).

Really interesting paper - should be core reading for all in palliative care or death and dying “dying was experienced as relational rather than a matter of personal choice and autonomy” Challenging policy narratives on choice and a ‘good death’ EDDUK Marie Curie EOLC

How do we enable change? According to Greg Satell Greg Satell, ideas for change spread socially. So it's the structure of networks that determine how fast/far ideas for change travel. It's not about the mode of communication or even the individual influence of early adopters.

End-of-life care planning is more about “How do you want to live?” than “How do you want to die?” I explain in this short video Kathryn Mannix Dying Matters Hospice UK Marie Curie EOLC LDEngland MacIntyre Dimensions Jim Blair ThinkDifferentlyACTcreatively ⚒️🇪🇺🕊 Clare Fuller RGN MSc

"We’ve seen the worst financial results for the sector in 20 years, with hospices facing a collective deficit of £77 million" - Toby Porter, CEO, Hospice UK. Hospiscare are cutting beds and services due to insufficient funding. Urgent action is needed. express.co.uk/news/uk/191996…

This is your chance to influence palliative care research. Please help us make sure we’re looking at the right things 👇🏻