Never be afraid or embarrassed to be the only short humorless b*tch in a giant mask bc later on when I checked it, holy hell I didn't know the Aranet4 doesn't even go that far up. I guess everyone who didn't is getting the same 'cold' or whatever

Clean Air Carrboro Chapel Hill I don't think a mask shuts you out of participating in public life, you just have to be in a position where looking a little funny to people is okay for you. (it is not always safe to stand out, but where you know you can and it doesn't matter, I think it's good to just do it)

Celine I wish we had a kinder society.

Coconut butter tastes great, but does it offer any benefits nutritionally? nutritionadvance.com/what-is-coconu…

Harriet Carroll: Long Covid Scientific Consultancy Quercetin is also supposed to be more effective than cromolyn. I tried Neuroprotek but reacted to it, so I use quercetin alone.

Quercetin is more effective than cromolyn in blocking human mast cell cytokine release …

pubmed.ncbi.nlm.nih.gov/22470478/

'Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane'
Martin Luther King Jnr
🫂90% of our members have had to pay for private care, many have spent their life savings.
The VDPS could have helped with these costs..if it was fit for purpose

The Vaccine Damage Payment Scheme was created as an emergency payment to 'ease the burden' for families affected.
With nearly 400 claimants waiting over a year for a decision and 225 of those waiting more than 18 months, the VDPS is failing in it's intended purpose
(FOI-01745)

Fun fact: mapping the 100,000 neurons & 1 billion connections of a bit of mouse brain the size of a grain of sand requires 2 petabytes of data. for comparison > 30 years of satellite images of Earth from Landsat missions requires 'just' 1.3 petabytes
nature.com/articles/d4158…

Fun fact: ever wondered how to artificially inseminate falcons?

one answer is using a sex hat (to get the semen from the male)
youtube.com/watch?v=M_l3Ey…

Fun fact: a gelastic seizure is a type of epileptic seizure characterised by (what looks like, at least) bouts of laughter and facial contractions that look like smiles
ncbi.nlm.nih.gov/pmc/articles/P…

Idea 💡
APPG for ME members are:

Carol Monaghan
Baroness Scott
Baroness Finlay
Steven Metcalfe
Sharon Hodgson
Jason McCartney
James Davies
Debbie Abrahams
Ben Lake
Hywel Williams
Fleur Anderson

#pwME UK are you a constituent of any of these? If so -

Reminder to all NHS England staff:

🧵Remember those headlines? Turns out the authors of that study 'did not exclude individuals who had a neurologic diagnosis before the index point' (pubmed.ncbi.nlm.nih.gov/38507675/). I.e. people diagnosed with dementia, migraines, etc. long before they got infection were included...(2)

Schnitzler syndrome
ncbi.nlm.nih.gov/pmc/articles/P…
'Schnitzler syndrome is a rare disease of adult-onset with main features incl chronic urticarial rash, recurrent fever, arthralgia or arthritis, monoclonal gammopathy of undetermined significance (MGUS), & marked systemic inflammation'

Patients and carers can request papers from Elsevier:
elsevier.com/about/open-sci…

#academictwitter #medtwitter #chronicillness

Luteolin Is More Potent than Cromolyn in Their Ability to Inhibit Mediator Release from Cultured Human Mast Cells
karger.com/iaa/article-ab…

#MCAS

Exploring the association between weight loss-inducing medications and multiple sclerosis: insights from the FDA adverse event reporting system database
journals.sagepub.com/doi/10.1177/17…
Effects found for:
semaglutide
dulaglutide
liraglutide
empagliflozin
metformin
naltrexone

Unintended Benefit of GLP-1 Treatment for Obesity: Resolution of Chronic Systemic Mastocytosis Symptoms
bariatrictimes.com/glp1-resolutio…

I’m so sick of playing nice with physicians/providers and acting like they understand science when they don’t. Dancing around their egos is so draining. If they had adequate scientific training (or any decent scientific training) maybe they’d understand the limitations of their…