ANC-Narcolepsie_Asso (@ancnarcolepsie) 's Twitter Profile
ANC-Narcolepsie_Asso

@ancnarcolepsie

Compte animé par l’Association française de Narcolepsie Cataplexie et d’hypersomnies rares.

ID: 3084033011

linkhttps://linktr.ee/anc.narcolepsie calendar_today10-03-2015 13:42:35

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The Nature of Invention 🔬 (@tnoidoc) 's Twitter Profile Photo

Jean-Baptiste-Édouard Gélineau (1828-1906) was a French🇫🇷 physician who invented the word🔻 'narcolepsy', the neurological disorder affecting people who cannot regulate sleep-wake cycles. September 22 is #WorldNarcolepsyDay, named to educate the public about the condition.

Jean-Baptiste-Édouard Gélineau (1828-1906) was a French🇫🇷 physician who invented the word🔻 'narcolepsy', the neurological disorder affecting people who cannot regulate sleep-wake cycles.

September 22 is #WorldNarcolepsyDay, named to educate the public about the condition.
Asociación Leonesa de Enfermedades Raras (ALER) (@asociacion_aler) 's Twitter Profile Photo

Hoy se conmemora el Día Mundial de la Narcolepsia, una fecha señalada para varias de nuestras familias ya que conviven con esta patología poco frecuente. Hoy nos sumamos a la visibilización de este día y mandamos todo el apoyo a quienes sufren esta enfermedad #WorldNarcolepsyDay

Hoy se conmemora el Día Mundial de la Narcolepsia, una fecha señalada para varias de nuestras familias ya que conviven con esta patología poco frecuente.

Hoy nos sumamos a la visibilización de este día y mandamos todo el apoyo a quienes sufren esta enfermedad #WorldNarcolepsyDay
Narcolepsy UK (@narcolepsyuk) 's Twitter Profile Photo

It’s World Narcolepsy Day today! Take a look at this summary from the #NarcolepsyUKCharter, #WorldNarcolepsyDay #britishsleepsociety

It’s World Narcolepsy Day today!
Take a look at this summary from the #NarcolepsyUKCharter, #WorldNarcolepsyDay #britishsleepsociety
Project Sleep (@project_sleep) 's Twitter Profile Photo

🇮🇪 On Monday, new #RisingVoices speaker Orla Nolan shared her #narcolepsy journey in a special #WorldNarcolepsyDay broadcast from Ireland. Orla was diagnosed with type 2 #narcolepsy w/o cataplexy at age 36. Thank you for sharing, Orla! Watch Orla's story: project-sleep.com/world-narcolep…

Wake Up Narcolepsy (@wakenarcolepsy) 's Twitter Profile Photo

Celebrate #WorldNarcolepsyDay 2024 with TWO Wake Up Narcolepsy (WUN) resources now available in 10 ADDITIONAL LANGUAGES🥳⁠ ⁠ Learn more: wakeupnarcolepsy.org/news/2024-tran… Thank you to our awareness sponsors: Jazz Pharmaceuticals Avadel Pharmaceuticals Harmony Biosciences Axsome Therapeutics Centessa Pharmaceuticals

Celebrate #WorldNarcolepsyDay 2024 with TWO Wake Up Narcolepsy (WUN) resources now available in 10 ADDITIONAL LANGUAGES🥳⁠
⁠
Learn more: wakeupnarcolepsy.org/news/2024-tran…

Thank you to our awareness sponsors: <a href="/JazzPharma/">Jazz Pharmaceuticals</a> <a href="/AvadelPharma/">Avadel Pharmaceuticals</a> <a href="/HarmonyBio/">Harmony Biosciences</a> <a href="/axsome/">Axsome Therapeutics</a> <a href="/centessa/">Centessa Pharmaceuticals</a>
Julie Flygare (@remrunner) 's Twitter Profile Photo

🎥 Thank you Diane Macedo & ABC News Live for raising national awareness about #narcolepsy w/ Project Sleep for #WorldNarcolepsyDay! Please watch & share: abcnews.go.com/Health/video/a…

🎥 Thank you <a href="/dianermacedo/">Diane Macedo</a> &amp;  <a href="/ABCNewsLive/">ABC News Live</a> for raising national awareness about #narcolepsy w/ <a href="/project_sleep/">Project Sleep</a> for #WorldNarcolepsyDay! Please watch &amp; share:
abcnews.go.com/Health/video/a…
Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

#WorldNarcolepsyDay is nearly here! We’re raising awareness for narcolepsy and idiopathic hypersomnia! Want to join us? Click here: ow.ly/awGG50TrOay to DOWNLOAD and SHARE our UNDERSTANDING IH graphics tomorrow! ⭐ #NarcolepsyNetwork

#WorldNarcolepsyDay is nearly here!

We’re raising awareness for narcolepsy and idiopathic hypersomnia! Want to join us? Click here: ow.ly/awGG50TrOay to DOWNLOAD and SHARE our UNDERSTANDING IH graphics tomorrow! ⭐

#NarcolepsyNetwork
Woolcock Institute of Medical Research (@woolcockmedical) 's Twitter Profile Photo

On today’s World Narcolepsy Day we recognise the 3 million people living with narcolepsy worldwide. Learn more about this chronic sleep disorder and what can be done about it in our free fact sheet: bit.ly/3znT2zH #WorldNarcolepsyDay #narcolepsy

On today’s World Narcolepsy Day we recognise the 3 million people living with narcolepsy worldwide. Learn more about this chronic sleep disorder and what can be done about it in our free fact sheet: bit.ly/3znT2zH

#WorldNarcolepsyDay #narcolepsy
RarasNoInvisibles (@noinvisibles) 's Twitter Profile Photo

Es #DiaMundialNarcolepsia #WorldNarcolepsyDay La #Narcolepsia es una enfermedad rara, a veces pasan 15 a. antes de su correcto diagnóstico, con tremendas consecuencias para quienes la tienen. Visibilizando #lorarodelsueño👇SES NARCOLEPSIA ESPAÑA narcolepsia-lararadelsueno.es

Es #DiaMundialNarcolepsia #WorldNarcolepsyDay
La #Narcolepsia es una enfermedad rara, a veces pasan 15 a. antes de su correcto diagnóstico, con tremendas consecuencias para quienes la tienen.
Visibilizando #lorarodelsueño👇<a href="/Sociedad_SES/">SES</a> <a href="/Narcolepsia_ORG/">NARCOLEPSIA ESPAÑA</a> 
narcolepsia-lararadelsueno.es
Wake Up Narcolepsy (@wakenarcolepsy) 's Twitter Profile Photo

🌟 It's time to celebrate #WorldNarcolepsyDay 2024 with Wake Up Narcolepsy (WUN)! 🌟 We're excited to highlight how your support has helped us donate more than $1.39 million to #Narcolepsy research since 2008. 🌎 Learn more about our impact: wakeupnarcolepsy.org/news/updated-i…

Umbrella LM (@umbrellalm) 's Twitter Profile Photo

Let's shine a light on narcolepsy! 💡 Today is World Narcolepsy Day, and we're raising awareness about this often misunderstood condition. Join us in understanding, supporting, and empowering those living with narcolepsy. #WorldNarcolepsyDay #NarcolepsyAwareness #SleepMatters

Let's shine a light on narcolepsy! 💡 Today is World Narcolepsy Day, and we're raising awareness about this often misunderstood condition. Join us in understanding, supporting, and empowering those living with narcolepsy. 

#WorldNarcolepsyDay #NarcolepsyAwareness #SleepMatters
Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

Do you want others to know what SLEEP PARALYSIS is like? Share our NARCOLEPSY FAST FACTS today for #WorldNarcolepsyDay! Download here: ow.ly/y9yt50TrSlH ⭐ Or do you want to share in the comments what SLEEP PARALYSIS feels like for YOU? Share below! #NarcolepsyNetwork

Do you want others to know what SLEEP PARALYSIS is like? Share our NARCOLEPSY FAST FACTS today for #WorldNarcolepsyDay! Download here: ow.ly/y9yt50TrSlH ⭐

Or do you want to share in the comments what SLEEP PARALYSIS feels like for YOU? Share below!

#NarcolepsyNetwork
Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

LET’S KNIT together our COLLECTIVE VOICE! Launching the #NarcolepsyNetworkVirtualQuilt on #WorldNarcolepsyDay ✨ The Virtual Quilt reflects the TAPESTRY OF OUR EXPERIENCE, PEOPLE LIVING WITH NT1, NT2, & IH. WANT TO CONTRIBUTE? Click here: ow.ly/Ip8W50TrSMn.

LET’S KNIT together our COLLECTIVE VOICE! Launching the #NarcolepsyNetworkVirtualQuilt on #WorldNarcolepsyDay ✨ The Virtual Quilt reflects the TAPESTRY OF OUR EXPERIENCE, PEOPLE LIVING WITH NT1, NT2, &amp; IH.

WANT TO CONTRIBUTE? Click here: ow.ly/Ip8W50TrSMn.
SWHR (@swhr) 's Twitter Profile Photo

The exact cause of narcolepsy is unknown. There is a genetic component to narcolepsy, but most people develop #narcolepsy without any family history. This #WorldNarcolepsyDay, learn more about managing #narcolepsy during #pregnancy: ow.ly/graU50T6QJE #SWHRtalksSleep

The exact cause of narcolepsy is unknown. There is a genetic component to narcolepsy, but most people develop #narcolepsy without any family history. This #WorldNarcolepsyDay, learn more about managing  #narcolepsy during #pregnancy: ow.ly/graU50T6QJE
#SWHRtalksSleep
Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

This week, we asked members of our community to share what they wanted more people to know about narcolepsy to raise awareness for this invisible disorder. Here are some of the responses we received 🙌 #NarcolepsyNetwork #WorldNarcolepsyDay

This week, we asked members of our community to share what they wanted more people to know about narcolepsy to raise awareness for this invisible disorder. Here are some of the responses we received 🙌

#NarcolepsyNetwork #WorldNarcolepsyDay
Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

More research is needed into the cause of NT2. Spread the word about NT2 and let others know what living with NT2 is like 🙌 Download our NARCOLEPSY FAST FACTS by clicking here: ow.ly/LGWC50TrU8o and share them on social media today for #WorldNarcolepsyDay!

More research is needed into the cause of NT2. Spread the word about NT2 and let others know what living with NT2 is like 🙌

Download our NARCOLEPSY FAST FACTS by clicking here: ow.ly/LGWC50TrU8o and share them on social media today for #WorldNarcolepsyDay!
FIMATHO (@filierefimatho) 's Twitter Profile Photo

À noter ✨ Les FSMR, en collaboration avec la Plateforme pour les Affections Rares d’Alsace (PARA) et le CHU de Strasbourg, organisent une journée transition ado-adulte maladies rares le 29 mars 25. Plus d'informations : [email protected] Filières Maladies Rares #FSMR #maladiesrares

À noter ✨
Les FSMR, en collaboration avec la Plateforme pour les Affections Rares d’Alsace (PARA) et le CHU de Strasbourg, organisent une journée transition ado-adulte maladies rares le 29 mars 25.
Plus d'informations : fimatho@chu-lille.fr
<a href="/FilieresMR/">Filières Maladies Rares</a> 
#FSMR #maladiesrares
Sleep Research Society (@researchsleep) 's Twitter Profile Photo

💤 Exercise & Sleep: A single workout can boost sleep but not everyone benefits the same! A study found wide variability in how exercise affects sleep, showing the need for personalized approaches. Sleep science isn’t one-size-fits-all! 🌟 ow.ly/fvn150UCQaZ SLEEP and SLEEP Advances

💤 Exercise &amp; Sleep: A single workout can boost sleep but not everyone benefits the same! A study found wide variability in how exercise affects sleep, showing the need for personalized approaches. Sleep science isn’t one-size-fits-all! 🌟 ow.ly/fvn150UCQaZ <a href="/sleepjournals/">SLEEP and SLEEP Advances</a>
Hypersomnia Fdn (@hypersomnianews) 's Twitter Profile Photo

Who's ready for some connection? 🙋🙋🏽‍♀️🙋🏻‍♂️ We talked with Michelle from Hypersomnolence Australia (@hypersomnolence_australia) about why she chose to travel to #BeyondSleepy Conference. Register - beyondsleepy2025.events.whova.com/registration/

Narcolepsy Network (@narcolepsyntwrk) 's Twitter Profile Photo

Today is #RareDiseaseDay 2025! A day to raise awareness for the 10,000+ rare conditions and approximately 30 million Americans living with a #raredisease. YOU ARE NOT ALONE! 🫶 National Organization for Rare Disorders (NORD) RDLA #narcolepsy #idiopathichypersomnia

Today is #RareDiseaseDay 2025! A day to raise awareness for the 10,000+ rare conditions and approximately 30 million Americans living with a #raredisease. YOU ARE NOT ALONE! 🫶 <a href="/RareDiseases/">National Organization for Rare Disorders (NORD)</a> <a href="/RareAdvocates/">RDLA</a>

#narcolepsy #idiopathichypersomnia