Amyloidosis Awareness: Xavier’s Legacy
@amyloidosisx
Raising awareness for Amyloidosis - a terrible and deadly disease - in memory of Xavier Aguirre who passed away tragically from it at the young age of 30 🎀
ID: 1381371949000110085
http://amyloidosisjfx.wixsite.com/amyloidosisawareness 11-04-2021 22:22:01
107 Tweet
126 Followers
323 Following
Paul Reddington
@paulredington
Wolfie
@wolfie__1
I try to be a critical thinker and tend to question anything I see and hear in the MSM. We don't live in the world we think we live in.
Abdelali (Ali) Majdi, MD
@alitimumab
#MedicalAffairs #Oncology🧬 #RareDiseases #Ophthalmology👁️ #CardioMed🫀#Innovation #Care #Diversity
Bobby B
@bobbybruning
AVPAF
@narude03
Asociación Venezolana de Pacientes con Amiloidosis Familiar
CrinDavey 🥂🚜🏇💎🇮🇱🎗️
@corinnawho
Retired Sales Professional, Agvocate, Animal Practivist, racehorse owner, tweets my own, unless they're yours, love animals, hate animal activists #GoTiges
Eridania santana
@pinkfashion2
i luv to do exercise, i luv watching things that are for your health. i like mi merengue and reggeton. i luv shopping big time ! i love the doctor show
Hasta Pronto
@turner_kevin
Live your best life in the circumstances. No sufro idiotas. #GTTO COYB
Royal Free Charity
@royalfreechty
NHS charity partner of Royal Free London NHS Foundation Trust. Helping our hospitals to go further and faster thanks to the generosity of our supporters
mary polo
@marypolo1
Sacramento area Amyloidosis group, SAAG, (working group), and Sacramento and surrounding counties Amyloidosis support group facilitator, Breast cancer survivor.
Michael Cattermole
@mickeycatt
Lo¢alJoke
@faylenfarore
•West coast• Stó:lō •Take only what you need from it•
Mark McConway
@markmcconway1
Surviving Amyloidosis! Used time on chemo to develop uses for NFC (Near Field Communication) in healthcare. Organise community cycling projects and bread making
Laura
@lmv_stokes
Chris O'Hara
@chrischrisohara
Kate Timmins
@kateatimmins
Research Fellow in The Epidemiology Group at the University of Aberdeen. All views are my own.
Rachel Grasmeder Allen
@rachel_ga_
PhD student at Uni of Nottingham in @notts_psych & @nottm_bbsrc_dtp, lover of brains & all things Neuro🧠 Social media & blog team for @WomenInNeuroUK👩🏻🔬
Lisa Horrabin 💜
@lisa_c777
Jimmie
@leftwinglawyer1
'Activist Lawyer'. GAA legend. Calling out Brexit bollocks. Israel is an apartheid State. Chambers celebrate my "collaborative approach"
Francesco Fuggetta
@fuggettaf
Giornalista Professionista e Addetto Stampa. “So di non sapere, ma un vero giornalista spiega benissimo ciò che non sa” (Socrate & Leo Longanesi)
Amyloidosis Research Consortium
@amyloidosis_arc
ARC is accelerating the development of and access to new and innovative treatments for systemic #amyloidosis
Pr Thibaud DAMY MD, PhD
@thibauddamy
Cardiologist, Heart Failure Specialist, Amyloidologist, Telemedecine, Impact of Care on Heathcare givers H-ope-timistic and French
Hilde Vasstrand
@jaegerhilde
Anna
@libbiestra26611
Clotee
@cloteekuf5k
Lane
@laneofholly
Let shares and give love ❤️, GOD will : love your neighbor as you loves yourself. Your Health Is Our Priorities!!!!! Stay Healthy.
Amyloidosis UK
@amyloidosis_uk
UK charity supporting people affected by hereditary and wild-type Amyloidosis.
kj
@kevin89636348
Gabby Melsheimer
@gabbymelsheimer
OneTeamInBristol
@1teaminbristol_
Independent Bristol City App & Website | 🔔 Set notifications | Follow for daily news, updates, opinions & photos | Enquiries 👉[email protected]
GreasyChipButty ⚔
@gcb_app
Independent #SUFC App & Website | 🔔 Set notifications | Follow for daily Sheff United videos, news, opinions & photos | Enquiries 👉 [email protected]
Amyloidosis Speakers Bureau
@amyloidosis_asb
Closing the healthcare educational gap about #amyloidosis through patient educators; focused on future and current medical providers. #MedTwitter #MedEd
Leonard Chiu, MD MS
@leonardchiumd
Cardiology Fellow @UTSWCardFellow | formerly @VUMCMedicineRes @ColumbiaMed @Penn | Learning HF & CV Outcomes | @Raptors fan & 🎾 player
TheToffees_com
@thetoffees_com
Independent Everton App & Website 📲 | 🔔 Set notifications | Follow for daily #EFC news, updates & opinions | Enquiries 👉 [email protected]
Corey Baysden
@coreybaysden
#RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID
Mirela Sterian
@sterian_mirela
Livin la vida loca
Matthew Keane
@matthewkeane5
Dr Jacco Renström
@jaccorenstrom
Postdoctoral researcher @McMasterPNB (Choe Lab)
Ray Pleis
@pleisray
RiseShineHustle
@jurban12345
Md Khairujjaman
@mdkhairujjaman6
#make #money from online i will guide you. how you can #earn money# you can use my affiliate link go.fiverr.com/visit/?bta=645…
AZ Latina ☮️🌊🟦
@avoice4als
Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
We Love 2 Holiday
@welove2holiday
Réseau amylose cardiaque
@reseau_amylose
Centre de référence des #amyloses cardiaques🫀 French group of experts fighting against cardiac amyloidosis.
Fibrinogen AF(ib) Amyloidosis
@fibrinogenaf
My family carries the Glu545Val gene for Fibrinogen Amyloidosis. Follow our story here. #amyloidosis #raredisease
GEA - Grupo de Estudio de Amiloidosis
@amiloidosis
Somos un grupo multidisciplinario nucleados por el interés de optimizar la atención de personas con amiloidosis basados en la mejor evidencia disponible
David Byrne at Binding Site Global Marketing
@oncologydavidb
Interest in all areas of Oncology - Special interest in Multiple Myeloma and Amyloidosis- Views are my own.
Patient Partners Innovation Community
@ppic_online
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Najrul islam
@najruli05173448
Hi