Please, if you're in the UK, contribute to this cause in whatever way you can—lobbying, donations, whatever. It's a life or death crisis for Savannah now. Her pain is unbearable. x.com/i/status/20232…

🚨⚠️ Heart attacks🫀in people under 40 have risen 66% since the beginning of the COVID pandemic. COVID is a vascular disease COVID can affect the cardiovascular system by increasing blood stickiness, which raises the likelihood of blood clot formation.

Very few people are willing to have a real conversation about why everything feels off.

Urgent ‼️ From one of Savannah’s advocates. She is being moved from QEH to Guys’s #ME aware person needed to sit with her at Guy’s Hospital SE1 this afternoon. 🙏

Our friend, Caffeinated Toddler, who has severe Neuro Long Covid, with early-onset dementia symptoms, urgently needs a CT scan. Her insurance will only cover part of the cost of the scan. Please help if you are able and share. Thanks in advance! gofundme.com/f/help-caffein…

People hear Long COVID and scoff. Let me enlighten you as to what Long COVID actually looks like as your immune system is decimated. Pre-existing conditions you ask? PCOS, hypertension, CPTSD, a congenital heart anomaly no one knew about and that causes no issues to date,

I came to this platform in 2022 for completely different reasons. Then I stumbled into the Long COVID community, and everything changed. The people I met there are some of the most remarkable people I’ve ever known. Patients who’ve lost careers, relationships, and pieces of

If you're pregnant, please worry less about whether you should eat strawberries or have an occasional cup of coffee. Instead, focus on avoiding COVID. #CleantheAir and #MaskUp.

NIH Director Jay Bhattacharya says patients with ME/CFS, long COVID, vaccine injury and chronic Lyme are often gaslit and told their symptoms are psychological, making them feel crazy. He’s told NIH staff he wants to invest in finding real answers for these conditions.

Update from Savannah’s team today Wednesday 25th. #ME 💔 ‘I am gutted to let you know that despite Sonya arguing with them for hours, St Thomas declined to admit Savannah. She is now back in QEH while we desperately look for alternatives.’

If that was true, I'm pretty sure I wouldn't be hearing about it from some random mustachioed man on the internet..

Let’s say it again: COVID causes alcohol intolerance. Red wine has the highest histamine content of alcohol and histamine intolerance is a primary #LongCovid symptom.

Remember: brain fog is brain damage. Ask yourself why so people are making so many mistakes, driving through red lights, getting prescriptions wrong etc. So many people have now been infected multiple times. Imagine what the world will look like in 10, 20 or 30 years time.

In 1998, an accidental command at Pixar began deleting Toy Story 2. Nearly 90% of the film vanished in seconds, and all backups were corrupted. Months of work were gone. Then they remembered Galyn Susman, working from home after having a baby. She had a full copy on her personal

So grateful for all the support but at 4 plus years I really need to clear this goal as soon as possible. xo

I've rescheduled all of the care to try to make this trip happen in April Endocrinology busy until August due to clinician shortages which sucks I'm suffering a lot Please keep sharing so I can meet my GFM neurosurgery goal and survive #SevereME #EDS #Chiari #MESpine #CSFLeaks

Can you help get PACO to 10k followers?

I just found out that Anthem Blue Cross and Blue Shield is denying my little sister's 2nd CAR T-cell therapy for her cancer, saying that they only do one per patient per lifetime. Yet, this is the only treatment option available to her given that she's had a bone marrow transplant and a different

Update from Michiel on Savannah: TW: Medical Abuse "By trying to find somewhere less unsafe, she has now lost her NHS provided carers. She's too unwell to do without, so needs to self fund them. Thank you 🙏🏻 " #SaveSavannah #SevereMErgency #MECFS gofundme.com/f/severemergen…

Update: Feeling unsafe Savannah self-discharged & left QEH in a private ambulance. Even with the CEO of a national charity advocating in person, Guy’s refused to admit her. After waiting over two hours in the ambulance, she was forced to return to QEH. gofundme.com/f/severemergen…