Scan results: regrowth, some dangerously close to leptomeninges. Surgery not an option. Time to switch horses : Trading clinical trial for Lomustine + Avastin. Feeling pretty fucking shell shocked. #btsm

Brussels Sprouts Were Actually Bad: A Thread When I was a kid, Brussels Sprouts were the go-to joke food when people talked about things they hated to eat. 1/

Full spine scan today because recurrence is close to leptomeninges. Let’s hope we don’t find anything. #btsm

I use Face ID to log into my EHR portal. Soooo, I’m that asshole pulling down his mask in the waiting room every time I get a new test result. #btsm

Spotify Wrapped is saving my ass during this infusion. #btsm

Full spine MRI showed no enhancement. That whooshing sound is my sigh of relief.

#BTSM community: Has your doctor or neuro-oncology team ever talked with you about “Survivorship Care Planning?” #braincancer #braintumor

Followers: expect an increased tweet volume over the next little while as I participate in our monthly #BTSM chat. #btsm

#btsm I’m Aaron in Boston. GBM dx in April 2019. 2 cecurrences and 3 craniotomies so far. I’m here because I don’t even know what “survivorship care planning is."

T1 #btsm It’s hard to consider myself a survivor of a cancer that’s described in the literature as “uniformly fatal"

T2 #btsm I had never heard the term before this chat.

#btsm Alright - That’s it for me tonight, folks. I’ll catch up with all your brilliant insights tomorrow.

Brutal headache from tumor-induced swelling. Scary episode of unsteady gait and mild aphasia this morning. Admitted to the hospital. of course, now I’m back on the DEX.

Hospital has me on fluid restrictions. Thinking excessive hydration may have exascerbated the brutal headache on Monday night. #btsm

sadie Cancer is the loneliest place I’ve ever visited — that’s why I’m grateful for the community I’ve found online.

An update from Aaron’s family: amhoov.org/2021/01/03/rem…

Message to Aaron’s friends in Boston: we are changing the date for Aaron’s go-by memorial to this Sunday, 1/17, because of rain. More details here: amhoov.org/2021/01/13/mem…

An update from Aaron’s family about his memorial service in Kansas City: amhoov.org/2021/06/27/mem…

instagram.com/p/CZmZonHrU4j/…

woodschool.org/his-design-the…