asdravet
@alliancedravet
Alliance syndrome de Dravet est une association francophone de familles liées au syndrome de Dravet.
ID: 307946342
http://www.dravet.fr 30-05-2011 15:28:51
518 Tweet
130 Followers
84 Following
iriareyes
@iriareyes
BSc, Master in Cell Biology, PhD in Neuroscience. Neuroscientist, IWorking in adult neurogenesis, inflammation and gene therapy at the IGMM
Razak
@razakparis
Passé de l'industrie au cabinet de @najatvb, ministre et aujourd'hui @admedicum. Innovation, santé et #EngagementPatient. Now razakparis.bsky.social
stephen newton
@einsteinman
Dravet Syndrome Foundation Spain
@dsfeu
We fight for a cure for #Dravet Syndrome, through research. @RetoDravet is our charity running team, the largest one in the world.
PETEL Yann
@yannpetel
Maire de Saint Germain lès Corbeil - Pdt Fédération 91 les Republicains - Pdt délégué Dpt Essonne 91 chargé des #Sports VP @grandparissud chargé des #Sports
Sophia Cacciatore
@secacciatore
Advocate for rare disease families, asker of many questions, and just happy to be here.
DRAVET.CH
@dravetsuisse
The Swiss Dravet Syndrome Association funds medical research, raises awareness, counsels and informs people affected by Dravet Syndrome in Switzerland
Dravet Italia Onlus
@dravetitalia
L'associazione italiana che si occupa della Sindrome di Dravet.
YosukeNiibori
@yosukeniibori
Neuroscientist. Senior Research Associate (PostDoc) @ University of Toronto. Develop AAV vectors, Predict and Prevent SUDEP in Dravet Syndrome by AI
Alliance maladies rares
@alliancemr
Collectif de 240 associations de malades portant la voix de 3 millions de personnes concernées par 7 000 #maladiesrares en France. Besoin d'aide ? 0800 40 40 43
Océane
@mrsenaeco
woman ✊🏽 - writer - mother - dreamer - sometimes singer - music lover
Manue Lbr
@aeleib
Fabio Menna
@fabiomenna2
J
@jenhelfer
Tweets/opinions are my own. Retweets/likes are not endorsements.
DS Revolution☆彡
@dsrevolution1
My child suffers from Dravet.I collect information on the research of fundamental therapy for Dravet in various countries around the world and introduce it.
Réseau Loisirs Pluriel
@rpluriel
Compte officiel du 1er Réseau National d’accueils de loisirs pour enfants et adolescents handicapés et valides. #inclusion #citoyenneté #parentalité #handicap
RubinsteinLab
@labrubinstein
We are located in @TelAvivUni. We study the neuronal and molecular basis for severe epilepsy and autism.
Dr. Abdel-Ghaffar Fayed
@ghaffarfayed
Neurology Consultant
The Epilepsy Spectrum
@epilepsypodcast
A podcast centered on community and living well with #epilepsy! Hosted by @tiffanywebb aka Tiffthetitan
Aideor -Équipe d'orthopédagogues
@aideor_orthoped
#orthopédagogie à l'#international | #francophonie | #expatriation | #réussitescolaire des élèves qui ont des #troublesdapprentissage | #dys #tdah #hp | #TIC
Epilepsy & Behavior
@epilepsybehavi1
The fastest-growing international journal uniquely devoted to rapid dissemination of the most current information on behavioral aspects of seizures & epilepsy
Jagla Monika
@jagla_monika
Ion Channel Library
@ionchannellib
Stay up to date with the world of ion channels.
#EPIBretagne
@epibretagne
EPI Bretagne, Association de patients #Epilepsie #Bretagne
EPIPED COURSE - A. Arzimanoglou & J. Campistol
@epipedc
EPIPED is a 3 years cycle of independent annual training courses, developed specifically for child neurologists and physicians treating children with epilepsy
Marie El Mir
@marieelmir3
omega🇲🇬🇵🇹
@omigiriixx
music when you speak, you're so unique ♡❀ I OVERSHARE
mikomiko
@mikomik58610422
Biker
MaríaEugeniaQuiuan
@maraeug56700424
ePAG Epicare
@eepicare
We are the Patient Advocates, the ePAG (European Patient Advocacy Group) for @EpiCARE_ERN! #RareEpilepsies #Epilepsy #Neurology
SCN1B
@b_scn1
Sodium channel 🧬 Epilepsy 🧬 Scn1b news & awareness 🧬 Sharing and re-tweeting SCN1B info 🧬
Ades_Atiny_Bl😍
@martins36518808
SlS
@samanamudsaul
Rachel ALINE
@rachelaline7
Étudiante @supdepub Communication RSE, développement durable Relations publiques @shadow_conseil
DAVID isabelle
@isabel_davidtns
Pharm D-Patient Engagement Lead-#TeamUCB-@UCB_France-Mes tweets n’engagent que moi
Du Vent Dans Mes Cheveux
@vent_mes
Association dont le but est de favoriser le voyage à vélo pour les familles touchées par le handicap
régis pavy
@pavyregis
Référent Régional Île-de-France Alliance Syndrome De Dravet #alliancesyndromedravet . Passionné de musique, d’aéronautique et de cyclotourisme.
Kera Medical
@keramedical
La plateforme qui centralise les contenus et formations en maladies rares.
Fundación Dravet Latam
@dravetlatam
Somos una ONG transnacional que trabaja por hallar una cura y/o tratamiento para el Síndrome de Dravet. Contacto en Perú 🇵🇪 Miguel Sarria (+51) 998 345 871
Dominique Mendelssohn
@dominiquem62534
Bárbara
@brbara123479578
iAds project
@iadsproject
iAds, @EUeic #pathfinder project, aims to maximise the potential of #adenovirus vector for #vaccines and #genetransfer.
Veronica Hood
@science_hood
Scientific Director at the Dravet Syndrome Foundation; PhD from CU-AMC. Views and opinions are my own. Science & advocacy with a splash of puppies and TheOffice
Safia
@safia008
Bordeyne judith
@bordeyne_judith
Galina Rybkine
@galinarybkine
ne baisse jamais jamais jamais les bras #polyhandicap @GPFpolyhandicap
Harshad PA, Ph.D.
@harshad_neuro
Neuro-Biophysicist I Communication & social media coordinator @neuro_mag I An evergreen fascinated student....☺️
Encoded Therapeutics
@encodedtx
Creating disease-modifying gene therapies for CNS disorders with our cell-selective targeting and regulation platform. Guidelines: bit.ly/3FoqTsb
Frenchbrokers
@frenchbrokers
Structure de courtage d’assurances dédiée au risque industriel, aux risques sensibles: biotech, Agro, environnement, TPV, construction, créateurs, repreneurs
Bleugris
@bleugris007
#HandicapComplexe #TSA #TND #SansSolution #ALaMaisonH24 #ToutLeMondeSEnfout #InclusionMonCul #NoFakeScience