Alice Rumble
@alice__rumble
Disabled writer and advocate living with ME/CFS. She/her. E: [email protected]
ID: 2700064566
https://linktr.ee/alicerumble/ 02-08-2014 06:07:14
403 Tweet
528 Followers
895 Following
@richardvallee.bsky.social
@richardvallee
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Ellie Mulholland
@ellie_9
Lawyer helping (and prodding) business to do better on climate and sustainability.
Paul Mc Daid
@paulthedaid
ME/CFS. Determined father. Physics graduate, science nerd, LFC fan. Self-published children's book author. amzn.eu/d/drEoxur
thais
@thc_suz
51Onedaysoon8
@51onedaysoon8
Evie - Spoonie 😷
@miss_evie06
Brisbane via Canberra. Music & Book Addict. Francophile. Cricket Fanatic. Full of Wanderlust. Sunset Lover. Spoonie (ME/CFS & chronic migraine)
Jenacious D (the D stands for Disappointment.)
@jenacious_d
I’ve moved to BlueSky for obvious reasons.
Claire 🧠🔥 #pwME♿
@naylor007
ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Daniel Moore
@talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Eliza Charley | Actress on Pause
@elizacharley
🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Dr Caroline Morgan
@carolinemorga13
Admin Law/Regulation/Procedural Fairness. Interests gender/disability/education. Usual disclaimers
Lillia Marcos 🐀💉💉💉💉💉
@lilliamarcos
🇪🇸🇲🇽 made in 🇦🇺 Ancient Tech Writer /Digital Project Manager/Atheist/Humanist/Hermit/CO2Guerrilla/Gatos Data&Lore/Autism
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
moving to the good place. X won’t let me leave!
@eweandi13
interests deactivating my account…why will X not let me delete my account?!
Phoebe Boag
@phoebsbo
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
Rivka
@rivkatweets
Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Terry Field
@alongsideme
Follow biological evidence-based #MECFS research. Bedbound #pwME, 1 of #MillionsMissing 34 yrs. Love & miss nature, wildlife, photography, living life fully.
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
#MEAction Network
@meactnet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Joe Connolly
@joec_chicago
Karen Radenkova
@laradenkova
artist, partner, keen archaeologist,mother and baker of cakes! Carer of daughter with M.E. for 12years, housebound for 10 of those years.
Nina A Tomei, MD
@doctormom63
Life derailed by debilitating chronic illness. Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
Marky Mark
@mrkstdngr
#ME #CFS #CCI #POTS #MCAS
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Jo
@cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” Mostly on justjo@bskysocial
Tess Falor, Ph.D. | Renegade Research
@tessfalor
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Illustrator Interrupted
@franceyme
amandafrancey.com illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid @franceyme.bsky.social
Bridget O'Shea
@bridget_oshea
Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.
FionaPWME @fioname.bsky.social
@fionapwme
Was a journo/writer/editor. #MECFS has crushed my life for almost 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
Amy
@alexandrite113
Severe ME. ‼️ The link below is a letter you can send to your doctor/psych if you have ME and they want to institutionalize you.
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
Emma
@3ul7vi0jud6s9le
A 32 años 💃 nos encanta el fitness y la profunda comunicación 🎬 no mordo, añádame y sorpréndame en WhatsApp. WS: 【wa.me/85257640619】
Woge
@woge579018
Patricia
@patrici58223115
ふなたひさえ
@funatahisa25196
Tthotat
@tthotatipaq
Frederick Smith
@fredericks73508
💗🎀🌷 Emma Bexley 💗🎀🌷
@emma_graphics
🎨 Turning ideas into visuals | Animation wizard | Cat enthusiast 🐾 | 5-star reviews from happy clients 🙌 | Let's create something amazing— Commissions Open ✨
J Peace 3
@jpeacejpeace
Long Covid is a disease of the function and structure of the microvasculature.
Hannah Sharland
@h_sharland
Journalist for @TheCanaryUK She/her. #ME #pwME
Bernice_
@bernice457528
Luna
@sothot320656
Can we be good friends? I'm looking for a serious relationship
Soy, Thomas
@thomasharr36
3am 🫶🥰🌹
Tadenoth
@tadenoth6894
#20
Stethoo
@stethoo9991
#35
Fran
@farleyfran44
bethereificould
@bethereificould
A mirrorbox and map taking messages from people with M.E. or Long Covid to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Eric Copeland
@ericcop90839972
PollenB
@pollenb120946
Maria
@brooks_maria28
RightsOnFlightsAU
@rightsflightsau
Campaign to improve the freedom to travel for Australia's disabled and senior citizens and the accessibility of traveling.
Lizaveta Myshkin
@kowelz
#MillionsMissing Aus @mmissingaus.bsky.social
@mmissingaus
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting for health equality and to make their voices heard.
T
@nofo__allmo
Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
My True Stripes
@mytruestripes
Mostly horizontal due to #MECFS. Trying to make a life for myself in unlivable conditions. Challenge (reluctantly) accepted. I retweet a lot.
Doggos Rule
@roberta57928435
Editor, writer, PhD nerd.
Kristy Mounsey (she/her)
@kristymounsey29
Peer worker dedicated to Social Justice and focused on Recovery, #actuallyautistic. Co-host of Gone Mental Reboot.
Megan Williams 🐌🎨👩🦼🇵🇸
@sickroll
part time artist, full time sick person. No disability justice without a free Palestine 🇵🇸
Susan Hall
@susanha19408426
Expressing my lived experience of having an Energy Limiting Chronic Illness (ELCI) Sharing info about ME/CFS and Long Covid.
Walter Piatt
@walterpiat62571
Raymondmemic5
@raymondmem20309
Lite is short.💙Bloom where you are planted💜Dream chaser* US 🇺🇸 Army vet. She/her.
Zoe Sleeth
@zoe_sleeth
JOHN WILLIAMS❤️
@johnwil1928802
Music is life ask 😱
Mark Kent
@markkent1043825
LM
@lyn60139787
TBA
Hunger
@arghunger
Obalanserad hunger. Arg hunger. Hunger.
Patients with Power
@ptswithpower
Rogue neuroscientist fighting for medicine based on science; not bias⚡️ Health scams & dodgy science🧐 Patient rights & power dynamics🦾 I like solving puzzles.