Alexion
@alexionpharma
Alexion, AstraZeneca Rare Disease was created following the 2021 acquisition of Alexion Pharmaceuticals, Inc.
GL/NP/0116
GL/NP/0095
ID: 246664765
https://alexion.com/Documents/Alexion-Community-Guidelines 03-02-2011 06:37:18
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Delta
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National Health Council
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The National Health Council brings diverse organizations together to forge consensus and drive patient-centered health policy.
Rare Disease Day
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29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Brain & Life
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Tanisha Carino
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Wife, mom, PWD owner, Auburn fan, Bonnaroo goer. On a mission to improve the lives of others. #jvmom Tweets and typos are all mine. Personal account.
NEJM
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EPAM Systems
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Official global Twitter account of EPAM Systems Inc. (EPAM), a leading #DigitalTransformation services and #ProductEngineering company.
EURORDIS-Rare Diseases Europe
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An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Bio-IT World
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A leading source of news on technology and innovation in life sciences IT, informatics, genomics, next-gen, drug discovery, development, and clinical trials.
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Special Olympics CT
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Inspiring inclusion, acceptance and respect for people of all abilities through sports. soct.org
Luke Timmerman
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Muscular Dystrophy Association
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MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
joe ele
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Pfizer Inc.
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We’re celebrating over 175 years of daring scientific innovation and we’re not done yet. Protect your health at PfizerForAll.com on.pfizer.com/CGs
MAGIC Foundation
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MAGIC Foundation is the global leader in endocrine health, advocacy, education, and support for adults and children with growth disorders.
AstraZeneca
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Big Sister Boston
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Igniting girls' passion and power to succeed through positive mentoring relationships with women and enrichment programs focused on girls' healthy development.
ASH
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The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
The Boston Globe
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New England's leading source for breaking news and analysis.
American Heart Association
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Join our movement to change the future of health. Together we can be the progress that ensures longer, healthier lives for all. Follows not endorsements.
City of Boston
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Mike Rea, IDEA Pharma
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CEO IDEA Pharma. Pharmaceutical innovation geek. Author, Pharmaceutical Positioning. Senior Fellow @fastercures. *From R&D to RxD* Tweet about clients sometimes
The Patient-Centered Outcomes Research Institute
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PCORI funds patient-centered comparative clinical effectiveness research (CER). Links, RTs, favorite ≠ endorsements/advice.
U.S. FDA
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Susan Galbraith
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Trained as a Clinical Oncologist and PhD. Now a cancer drug developer. Mum to two budding scientists. Love skiing, dogs and piano!
Myasthenia Gravis Association (MGA)
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The Myasthenia Gravis Association is dedicated to improving the quality of life for those who are affected by this autoimmune, neuromuscular disease.
European Hematology Association
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"Towards a cure for all blood disorders" | We promote excellence in patient care, research and education in hematology. #YoungEHA #HemaSphere #EHA2025
Myasthenia GravisWPA
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The #MyastheniaGravis Association of Western Pennsylvania is a Treatment & Advocacy Center dedicated to it's patient care, education & social/emotional support.
Beacon for Rare Diseases
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Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Lee Beers
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Pediatrician and child health advocate in Washington DC
One Mind
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Our vision is for a world where mental health is a universal priority so that all people can live healthy, purposeful, and joyful lives.
ACTRIMS®
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ACTRIMS, The Americas Committee for Treatment and Research in Multiple Sclerosis ---taking leadership in advancing treatments and research in MS
Moderna
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Our mission is to deliver the greatest possible impact to people through mRNA medicines.
S. Ralle-Zentgraf
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Love comms. Beruflich als Kommunikator bei Alexion, privat mit meiner Familie - sofern sie positiv und relevant ist. These are my views.
Media Affairs
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Twitter oficial de AstraZeneca España. Desafiamos los límites de la Ciencia para cambiar la vida de miles de pacientes. 🔗 contactazmedical.astrazeneca.com
Horizon
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Horizon Therapeutics is now part of Amgen. We encourage you to follow @Amgen. The Horizon X page is no longer active or monitored.
Myasthenia Gravis Foundation of America
@myastheniaorg
#MyastheniaGravis Foundation of America (MGFA) is the largest nonprofit patient advocacy organization dedicated solely to improving the lives of people with MG.
Stephen J. Ubl
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Proud to stand with the millions of Americans working to cure diseases. CEO of @PhRMA. Dad, husband & avid fan of @Twins & @Vikings.
aHUS Awareness Day
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Alex Schuman, MBA (she/her)
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Head of Sustainability & CSR, @Schrodinger • @PlayworksNewEng Board • All opinions are my own • #ESG #CSR
Tomislav Sokol
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Zastupnik u @europarl_HR | Member of the European Parliament @HDZ_HR / @EPP @EPPGroup / @EP_BeatCancer /@EP_SingleMarket / @ESVForum
Dr. Jennifer Chilek
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Rachel King 🧬
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Alexion Pharmaceuticals U.S.
@alexionpharmaus
Alexion, AstraZeneca Rare Disease was created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. U.S. Community guidelines: bit.ly/39x9gqy
aHUS Alliance Action
@ahusallianceact
aHUS Global Action to Connect * Inform * Collaborate
Wendy Erler
@wendy_erler
Passionate about patient advocacy @AlexionPharma and those who are rare. Tweets/RTs are mine only.
Stellar Seal
@stellarseal
Jeweler - Photographer - Biologist - #aHUS = Ultra rare - Lover of Dogs, Bunnies, Art, Music, Mountains, Oceans, Wildlife, Nature and Conservation
Life Science Cares Boston
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Uniting the greater Boston life science community in the fight against poverty. See our affiliates @LS_CaresPhilly @LS_CaresSD @LS_CaresBayArea
RARE Revolution Magazine
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Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Rady Genomics
@radygenomics
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Alessandro Prigione
@aleprigio
Stem Cell Metabolism lab. Using iPSCs to search for cures for rare mitochondrial diseases. Editor-in-Chief of Stem Cell Research. @[email protected]
CASPAR Shelters
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Working every day to alleviate substance use disorders & the homeless crisis. 📍 Cambridge & Somerville MA 💙 Part of Bay Cove Human Services since 2014
WC
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Biotech investor. Tweets reflect my own opinion
Sanctuary Kitchen at CitySeed
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Sanctuary Kitchen partners with immigrant and refugee chefs to provide employment, professional training and community building through food.
Myasthenia gravis
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Helping you better understand, manage and talk about myasthenia gravis (MG). Join us at raremark.com
Eos Foundation
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American Society of Pediatric Hematology/Oncology
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Founded in 1981, ASPHO is the only professional medical society dedicated solely to pediatric hematology/oncology subspecialists, supporting over 2,000 members.
womenspowergap
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The Women’s Power Gap Initiative was created by the @EosFoundation to dramatically increase the number of women from diverse backgrounds among C-suite leaders.