🔥Telegram İfşa

When it comes to big tech gathering data it takes a lot to shock me these days, but this story (quoted alongside Nicholson Price (@[email protected]) and other experts) truly shocked me. The story details how Meta collects patient data (incl prescriptions) on password protected hospital portals.

At HIEofOne and PatientPrivacyRights, patient-centered #Interoperability means a credentialed practitioner can _write_ to the patient's record AND patients can organize into communities around a shared concern. Communities will then differentiate around data access policy.

There's a school of economics that likens the economy to a computer, one we all power. When we buy something - or walk away - it's data for the computer, which transmits price/demandinformation from consumers to producers to financiers, so that demand can be met with supply. 1/

“Platforms”, like Facebook, are a euphemism for rent-seeking middlemen with a surveillance capitalism business model. Instead, we need standards that reduce “platform” switching costs and promote competition.

In the metaverse, no-one knows you're a bot. Ongoing dispute over the value of Twitter makes this clear. What's less clear is how my attention will be monetized when I get full choice over what AI runs my bot. Also, how will marketers pay for the cost of my bot? HIEofOne

2/ Much of our digital infrastructure today is funded by advertising and surveillance capitalism. We're playing catch-up to make #broadband a Human Right. The #metaverse should be #HumanRights affirming by default. The choice of one's AI-enabled #bot must be Free, as culture.

After self-hosting my email for twenty-three years I have thrown in the towel 😩 Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.

We're launching the Trustee Community Newsletter with a post by our own Edie Pargh to set the stage. Please subscribe and share. trustee.substack.com/p/why-a-patien… PatientPrivacyRights HIEofOne

Excellent update by Casey Ross statnews.com/2022/10/06/hea… It's 18 years since NHIN. Now we have TEFCA to wait for. Our sick care system focuses on business over patients. PatientPrivacyRights HIEofOne

Interesting strategic perspective on #privacy and #blockchain regulations to promote #decentralization. mitre.brandlive.com/grand-challeng… HIEofOne

GNAP session at the IETF in London meets some very hasty photoshop work this morning. #IETF #IETF115

What do healthcare consumers want? on Trustee Community Newsletter trustee.substack.com/p/what-do-heal…

Introducing a new patient community paradigm trustee.substack.com/p/introducing-… HIEofOne PatientPrivacyRights

Trustee Community Newsletter: Medical AI Will Not Be Like ChatGPT trustee.substack.com/p/medical-ai-w…

Do we really want to privatize and make secret medical science in this way? mobihealthnews.com/news/artera-la…

On the same day The New York Times op-ed predicts JetBlue getting worse, my incoming flight sat on the ground, full, for an hour and 20 minutes before getting to the gate at PHX. Delays are one thing but this seems positively #cruel.

trustee.substack.com/p/a-realistic-…

trustee.substack.com/p/the-patient-…

trustee.substack.com/p/the-role-of-…