Wendy Adams
@actionpfwendy
Head of Research
@ActionPFcharity
💜UK charity supporting people affected by pulmonary fibrosis
🧬working with people affected by PF & researchers to #curePF
ID: 1336277312908775424
https://www.actionpf.org/ 08-12-2020 11:52:24
202 Tweet
317 Followers
169 Following
LifeArc
@lifearc1
Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Bradley Price
@bradleyjprice
Director of Policy & Public Affairs & Acting Director of Research @ActionPFcharity. Fleeting between obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
Gunnar Gudmundsson
@ggudmund
Full time doctor, part time scientist and mountaineer
Laura Fabbri
@istamina
Respiratory physician, clinical research fellow, ERS early career representative for Assembly 12. human being, Italian heart. she/her. #curePF #ILD #PPIE
Pulmonary Fibrosis Foundation
@pfforg
We imagine a world without pulmonary fibrosis. pulmonaryfibrosis.org
Lung Foundation Australia
@lungfoundation
Improving lung health and reducing the impact of lung disease through: Information & support services- Education & training - Research - Advocacy & awareness
🇪🇺 Ilaria Galetti 🇸🇩
@iaiaraia
SSc patient advocate Vice Chair of FESCA and GILS, ERN ReCONNET ePAG, Equal access to therapies is my obsession
Leticia Kawano-Dourado (I'm on BlueSky/LinkedIn)
@leticiakawano
Physician & Researcher no longer using X-twitter (dormant account). Scientific communication on #MetabolicHealth on Instagram, professional posts on LinkedIn
Phil Molyneaux
@drphilmol
@imperialNHLI Prof of Interstitial lung disease | @asthmalunguk Prof of Respiratory Research | Director NIHR CRF @RBandH and #IPF doctor. Working to #cureIPF
ILFA Ireland
@ilfa_ireland
Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
Breathing Matters
@breathingmatter
Our mission is to raise awareness and inspire fundraising for research into pulmonary fibrosis and lung infection, supporting research at UCL Respiratory
Ian Glaspole
@glaspoletweet
Respiratory Physician - Alfred Hospital, Cabrini Hospital, Lung and Sleep Victoria. Clinical research in ILD, Monash Uni.
Nick Hopkinson
@copddoc
Professor of Respiratory Medicine FRCP #COPD Tobacco control, social justice, lung health 🫁 🚭 #NHS #Blacklivesmatter He/him Born at 323ppm. #RCPtimeforchange
Chad Newton
@cnewto
pulmonologist/researcher @UTSW supporting patients with pulmonary fibrosis.
Prof Chris Scotton
@isteefer
Respiratory Medicine research group leader in Exeter & Director of PGR for Clinical & Biomedical Sciences. Embracing middle-age as a DIY & gardening enthusiast.
Naftali Kaminski
@kaminskimed
First Generation Physician-Scientist, & many other things. This account is Private - opinions and tweets do not represent any of the organizations I work with.
Krisnah Poinasamy
@kr15nah
Head of Research and Innovation Advocacy @asthmalunguk Own views. Also seen on bsky.app/profile/krisna…
Argyris Tzouvelekis
@atzouvelekis
NIH Pragmatic Trials Collaboratory
@collaboratory1
Supported by @NIH, the NIH Pragmatic Trials Collaboratory is advancing the design, conduct, and dissemination of pragmatic clinical trials.
Amanda Tatler
@amandatatler
academic in respiratory medicine no longer posting on X. find me on Bluesky instead @amandatatler.Bsky.social
Alison John
@alisonejohn
Geeky science nerd and lung disease researcher in the Margaret Turner Warwick Centre for Fibrosing Lung Disease at the NHLI by day ....
Berry Consultants
@berryconsultant
Berry Consultants is a scientific consulting company specializing in innovative adaptive clinical trial design, analysis, implementation, and software solutions
THE CPFF
@the_cpff
The Canadian Pulmonary Fibrosis Foundation (CPFF) is a registered foundation established to provide hope and support for people affected by pulmonary fibrosis.
PCORnetwork
@pcornetwork
PCORnet, the National Patient-Centered Clinical Research Network. Harnessing power of real-world data to find answers. Shares ≠ endorsements~PCORnet or PCORI
Dan Beever
@dan_beever
Research Fellow @MedicineUoN & PhD student @magnifysrc • @sheffielduni🎓 & @ActionPFcharity💜 alumni • Passionate about lived experience • Living with CF🫁
Action for Pulmonary Fibrosis
@actionpfcharity
💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
PCT Grand Rounds
@pctgrandrounds
Pragmatic Clinical Trials Grand Rounds are hosted weekly by the NIH Research Collaboratory and PCORnet.
Ian Jarrold
@ianjarroldaluk
Deputy Head of Research and Innovation . Asthma + Lung UK . All views my own
Melanie Königshoff
@m_konigshoff
Physician-Scientist | #PinkLab | All about the Lung 🫁 | Think Outside, No Box Required | Music Frame of mind: Bruce Springsteen - Tougher Than the Rest
Dr Owen Tomlinson
@tomlinsonowen
Lecturer & Programme Director @ExeterMed. 1/2 of @CF_Exercise. Exercise & activity expert in #respiratory disease. Cardiopulmonary exercise testing enthusiast.
Gisli Jenkins
@ipfdoc
I won’t be posting here anymore. if you are interested in what I have to share catch up with me @ipfdoc.bsky.social #GoodLuck
patientMpower
@patientmpower
Empowering patient-centred specialist respiratory healthcare & research insights through digital innovation. #ILD #CF #lungtransplant #asthma
British Thoracic Society (BTS)
@btsrespiratory
The British Thoracic Society is the largest respiratory membership body in the UK. We work towards better lung health for all. Our tweets are not endorsements.
ILD IPF Doc: Nazia Chaudhuri
@ildipfdoc_ni
Diagnose, manage and treat patients with IPF, Sarcoidosis; CTD-ILD, NSIP and other fibrotic lung diseases in NI UK.
ILD-IN
@ild_inn
A group of ILD health care professionals aiming to provide support, education and influence for the interdisciplinary team & for those in their care with ILD.
Tejaswini Kulkarni
@tkulkarn1
#PulmCC Physician Scientist @uabmedicine| Director @ UAB-ILD program #curePF|@HarvardChanSPH alum|Wife and Triplet Mom #womeninmedicine| Tweets are mine.
Pilar Rivera-Ortega
@pilarriveraort1
Respiratory Consultant, sub-specialty in Interstitial Lung Disease #ILD🫁 Royal Devon and Exeter Hospital. Tweets=my own🇵🇪🇪🇸🇬🇧 #DEI #RWE #RCTs #Genetics🧬
Steve Jones
@actionpfsteve
Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. Board member of @EU_IPFF
Peter George
@drpeter_george
Consultant in Respiratory Medicine at Royal Brompton Hospital @RBandH / Specialist in interstitial lung disease / Senior Medical Director @Brainomix
REMAP-ILD
@remap_ild
A global collaborative project bringing together researchers, clinicians, patients & industry. Finding treatments faster. NIHR funded #REMAPILD #curePF
Marium Naqvi
@resppharmacist
@kingshealth CTM pre-doctoral fellow @kingsmedicine | Emeritus Board Member @ILD_INN | @BTS Lung Disease Registry Steering Group | ILD Pharmacist 💊🫁🖥
James D Chalmers
@profjdchalmers
Asthma and Lung UK Chair of Respiratory Research, University of Dundee. Chief Editor of the European Respiratory Journal. Tweets in a personal capacity
Tameside Pulmonary Fibrosis Support Group
@tamesidegroup
The group aims to provide support and information for patients, their families and friends. Clive & Sue Green email: [email protected]
UP-ILD
@palliativeild
UK Palliative care in ILD - a working group of ILD & palliative care clinicians and AHPs invested in services and research for ILD patients - [email protected]
Jeff Swigris
@swigoutfishing
ILD doctor; Patient-oriented researcher; Fly fisherman. I was born to fish. I was born to fish passionately, and with a fly. - Nick Lyons
ERS Assembly 12 - ILD
@ers_ild
Official ERS Assembly 12 - Interstitial Lung Disease - Twitter account. Managed by the Assembly officers.
Great Exhibition Road Festival
@exrdfestival
Join us each summer to enjoy a weekend of free events for all ages celebrating science and the arts - returning in June 2024! 🎉
Na’ama Avitzur
@naamaavitzur
ILD fellow @UBC @HLIStPauls. Lover of the outdoors and sunny days 🏳️🌈
Scott Turner
@scotttu85994558
Fibrosis researcher, translational scientist, drug developer, dad, teacher, student
#OneVoiceILD
@onevoiceild
A network of clinicians, professionals and people affected by pulmonary fibrosis (PF), to ensure patients and carers have access to the best standard of care.
Ian Forrest 💙
@geordielungdoc
Respiratory / GIM Physician. HOD. Deputy DME. Geordie working in the Toon. ILD (mainly). Too many TLAs.
Anna Podolanczuk
@annapodolanczuk
Physician scientist working on pulmonary fibrosis. Pulmonary and ICU doctor specializing in ILD. Mom of two girls. Immigrant. Tweets are my own.
Lucilla Piccari @LucillaPiccari@med-mastodon
@lucillapiccari
Inactive account, find me on 👆 Pulmonologist, MD PhD #PulmonaryHypertension spec at @hospitaldelmar, environmental activist, she/her. I claim my opinions 😊
LHL Lungefibrose 🫁
@lhl_ipf
LHL Interessegruppe for Progressiv Lungefibrose (PPF). The Norwegian Heart and Lung Association’s patient interest group for Progressive Pulmonary Fibrosis
@CARE-PF
@care_pf
Official account for the Canadian Registry for Pulmonary Fibrosis (CARE-PF) - prospective, multi-centre 🇨🇦 registry for pts w/ interstitial lung disease
HEAL-COVID
@heal_covid
HElping Alleviate the Longer-term consequences of COVID-19 Email: [email protected] Led by @charlot_summers & @mark_toshner
Divya C. Patel
@divyacpateldo
Physician @UFmedicine passionate about taking care of and advocating for patients with #sarcoidosis and #ILD. Opinions presented are my own
Gillian Goobie, MD PhD
@gilliangoobie
Physician scientist researching intersection of #InterstitialLungDisease & #AirPollution | My true loves: 🏔⛷🇨🇦 | She/Her | Opinions my own
Farida Ahangari (she/her)
@farida_ahangari
Scientist interested in lung biology and metabolism. Assistant Professor @ Yale School of Medicine. Diversity & human rights advocate.Views are my own.
Erica Farrand
@ericafarrandmd
Physician @UCSF Interested in #healthservicesdelivery #digitalhealth #clinicalinformatics #ILD. Invest in #implementation research.
Kirstie Atkins
@kirstieatkins26
Research Coordinator @ActionPFcharity 💜
Anna Hoffmann-Vold
@hoffmann_vold
MD PhD @Oslounivsykehus, rheumatologist with special interest in scleroderma, ILD, PAH, biomarkers and microbiome.
Samuel Moss
@smoss_97
PhD Student at Imperial College London Investigating lung disease through genomics and big data 🧬💻 #CureIPF 🫁 Outdoor sport enthusiast 🛶🧗🏼♂️
Amanda Goodwin
@amandatgoodwin
Clinical Lecturer in Respiratory Medicine. Big fan of cake. Opinions are my own.
Komunitas Fibrosis Paru
@fibrosis_paru
Account of pulmonary fibrosis community. We support pulmonary fibrosis patients and their families in Indonesia.
Erika Kennington
@drerikak
Head of Research & Innovation @asthmalunguk All views my own
Hurley Lab RCSI Dublin
@labhurley
Our lab aims to understand lung biology and regeneration and find new treatments for #IPF #CysticFibrosis #Alpha-1
Teresa Barnes
@teresalunglover
L🫁ng L❤️ver, respiratory research advocate, female founder/MedTech president, writer, speaker, communications expert, Carolina alum, singer, twin, girl mom