Three parallel workshops on different topics – on #Oxygen access in Europe, on the role of patients in the design of #clinicaltrials trials, and on fundamental aspects of the organ of the lungs. Which workshop did you choose? #PFSUMMIT24 #PulmonaryFibrosis

Our information hub is available in nine languages! When visiting the ELF website, you can select you language using the globe at the top of the page (pictured here.) All patients should have access to evidence-based information. Learn more europeanlung.org/en/information… #LungHealth

'Collaboration is the greatest asset we have in stopping #PF. Together, we're forging a path towards a future where people are diagnosed quicker, have fast access to effective treatments, and can get all the support services they need, no matter where you live.' - Bradley Price

The 3rd European Pulmonary Fibrosis Patient Summit is over! Great event bringing together patients, carers, clinicians, researchers and pharma companies. Watch recordings of the main sessions on-line soon. Watch this space. #PFSUMMIT24 #StopPF

📢 The 6th session webinar on "Pulmonary Fibrosis and Cough – Causes, Treatments, and Quality of Life" is now available as a recording. You can find the full-length webinar along with all previous sessions here ⏯️ eu-pff.org/eu-pff-summit-…

Discuss organ donation with your family NOW. In UK it’s their decision if you die - not yours

British media reports veteran BBC DJ Johnnie Walker Johnnie Walker has advanced idiopathic pulmonary fibrosis. Our thoughts are with you Johnnie and your family at this difficult time & with the thousands of other people living with this devastating disease. Action for Pulmonary Fibrosis #curePF

Excellent meeting of the Leicester Centre for Fibrosis Research today.

Geat news! Kudos.

My 4-year term as President of EU-PFF ‘the Voice of Pulmonary Fibrosis Patients in Europe’ finished today. It’s been great working with amazing colleagues and partners and I am pleased to warmly welcome John Solheim (Norway) as the new President of EU-PFF. Over to you, John!

C’mon BA. First you delay our flight yesterday from Corfu from 1440 to 1900. Then the captain says he has run out of hours and we have to find hotels for the night with a new dep at 0930 today. Now you have delayed further to 12.45. What a joke! British Airways Simon Calder

Organ donors save lives

Same here - sorry not to be there - have a great meeting !

So proud of Prof Lindell, who's giving the first Dan Rose Memorial Lecture at #ICLAF2024 - Dan was an amazing patient advocate who created the Pulmonary Fibrosis Foundation and single-handedly transformed Pulmonary Fibrosis patient support & advocacy. Well deserved, Kathy!!!

So heartwarming to see the Great Prof Lindell give the inaugural Honorary Dan Rose Lecture at #ICLAF2024 - keeping the patients at the center! #GreatICLAFTalks

Excellent lecture by Sara Tomassetti paving the way for better understanding ILAs #ICLAF2024

Exciting to show for the first time our work investigating phenotype and function of IPF peripheral neutrophils at #ICLAF2024 .Thank you to Action for Pulmonary Fibrosis for awarding me the conference award and to all the participants of the HYBRID study. Team Respiratory UoB Team Neutrophil

Our Phase 2a RIVER trial in patients with refractory chronic cough has completed enrollment. We look forward to releasing topline results in the first quarter of 2025. Read the full press release here: ow.ly/qEgi50TPF0z #Cough #ClinicalTrials #Biotech #Research

Quietly remembering over 8,000 people who died of pulmonary fibrosis in 2024, including DJ Johnnie Walker, Indian musician Zakir Hussain and patient advocate Maggie Bartlett. As the year comes to an end, our thoughts are with them and their families. Action for Pulmonary Fibrosis #StopPF