Action for M.E.
@actionforme
We take action to end the ignorance, injustice & neglect faced by the 250,000 #pwME in the UK. Online: Mon-Fri 10-4. Helpline: 0117 927 9551 Mon-Fri 10.30-3pm
ID:28577359
https://www.actionforme.org.uk/ 03-04-2009 14:50:15
16,7K Tweets
13,5K Followers
2,3K Following
Janet Dafoe
@JanetDafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...ME Association
@MEAssociation
We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.ME/CFS News
@MECFSNews
News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.socialTom Kindlon
@TomKindlon
With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrsDan Wyke 🦠➡️🧠🔥
@Dan_Wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack Press, Waterloo Press)Anil van der Zee ©
@AnilvanderZee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissingAdam
@ABrokenBattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.Lizzy H
@hopefullizzy
29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨Katy B
@KatyBruce108
Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMEdavidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.Carole Bruce
@CaroleBruce17
Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founderMartin Hippe
@pausedME
East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht ❤️| #MECFS | @Mirame_Arts | No medical advice!#MEAction Network
@MEActNet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJiBilly Hanlon
@bhanlon15
Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyNaomi Harvey PhD #WearAMask
@Naomi_D_Harvey
Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5Jo
@cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. if X goes much further down I’ll be on BlueSky as JustJoDaniel Moore
@Talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/HimOpen Medicine Foundation
@OpenMedF
OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.Dr Keith Geraghty
@keithgeraghty
Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcrJoanne Bailey
@mrsb27
Just a normal mum & wife living with ME/CFS and fibromyalgia, but looking on the bright side 😊 #ME #CFS #fibromyalgia #pwME #chronicillness𝓚𝓔𝓥𝓞𝓛𝓤𝓣𝓘𝓞𝓝
@KevinJohnBrady
💔 CARDIAC SURVIVOR 💓 Free Speech Vital. X Paranormal Researcher Common Sense No Longer Common. Old School Original Gamer. A Sense Of Humor Is Your Savior!Tara Munson
@TaraMunson
Disabled Writer, Medical Researcher (EBV,CSFleak, HT,Spine Disabilities) Feminist,AntiEpidural,Nozempic #OPTOUT of epidural&spinal anesthesia during childbirthClaus Ernst #UniteToFight2024
@ClausErnst
Co-Founder @U2Fight_World, Visual Design, ME from initial 'mild' SARS-CoV-2 infection 2021. 42 months + counting. Mastodon → https://t.co/aA7or0WZ8rElrond Hubbard ME
@HuanaV544113
Murray Huana is back and is now part Elf-Lord as well as creator of a major western religion. This makes me always right and you - wrong. I am the light.Tatiana Prowell, MD
@tmprowell
Oncologist serving people w/ #cancer via #MedEd/#bcsm clinic/#regulatory. #ASCO20 Ed Chair. Co-founder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high.@parli-training
@ParliTraining
🏆Transforming Policy & Public Affairs Prof 🎓since '02, Specialists in Vocational Training for Parliamentary Staff c.2010🌟22 Yrs of Excellence & Counting! 📈deadpan
@deadpan_00
Opinions are my own. Retweets, likes, follows & bookmarks used to shape algorithm and may not necessarily constitute support of the content. 😷 🇵🇸 🇨🇩 🇸🇩Susan greenwood
@Susangreen13366
Jan
@Jan88090069
Rothateau
@RothateautCu9N
Tim 😷 🇵🇸
@itstimredd
SWE. Health radical, aka I think we should try to avoid spreading infectious diseases. Long COVID and ME/CFS ally.Lori McKenzie
@loriinreallife
Married to @GaryDarty, Mom, Therapist, Coach, OD Consultant sidelined due to #Sjogrens #Autoimmune #Dysautonomia #pwME Guardians, Browns, OSU fan.My Year In A Crash
@myyearcrash
6 year sufferer of ME/CFS. Writing a light-hearted weekly blog on how I coped in the midst of a crash. https://t.co/C2VgEDDWz5 #ME #CF #ChronicFatigueJaney Colbourne
@JaneyColbourne
peer support facilitator @brainhealthcic | nonfiction writer & editor | spoken word performer & host of Rise! Spoken Word @bureaublackburn she/herSeausoth
@SeausothOgN5
Kat Killey
@KatKilley
Dracles
@DraclesIuKzs
ME/CFS Teacher
@MECfsTeacher
Dealing with a new diagnosis of ME/CFS and trying to live my life as an educator! An interesting combination that I want to record in case it helps anyone else!Julie
@Julie73392719
Louise Fraser
@LouiseFraser78
'Good advice is like fallen snow; the softer it falls, the longer it dwells upon you, and the deeper it sinks into the mind. ✿ܓ 🚫No DMs🚫milo
@milocanttalkrn0
17 ⭐️ aberdeen 🎭Life pre C19
@gottattleva
Katy
@Simple_equation
26, Maths grad from Uni of Sheff, Jaffa Cake addict, #nffc supporter, TV detective drama enthusiast. Diagnosed with ME/CFS so love a napSorshi
@Sorshi1Is
Stu
@Teds_Tours27
Dad, Husband, Cardiff City STH, 74 of the 92 🏟️, shareholder of @clydebankfc, part time Vets player - Talk about mortgages for a living *Views are my own*🦊Lauren🦊
@LollyFox12
Living with Long Covid/Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ~ Twitch streamer ~ My favourite person @vitzpatel ❤️ ~ KFBF ~ McLaren F1 GirlyLost.ME🪼🦕
@lost00__
it's ME Ingrid
@MElotje99
Carpe diem and take no shit 👊 One of the #MillionsMissing due to #MEcfs #PAISMartynas Bendorius
@smtalkk
Co-owner of @olmclinic (https://t.co/IfjCSb84cd) 🧬 and DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient with #POTS 🦠Hollie Christian-Brookes
@HollieCB_actor
Actor | Singer | LAMDA & performing arts tutor Rep'd by RED Talent Management Chronic Fatigue Syndrome girlie doing what I love 🎭Movilización Persistente #pwLC + pwME
@CovidVictimas
Pacientes + familias #EncefalomielitisMiálgica + #CovidPersistente unidos y movilizados para denunciar el abandonoYuling Chow
@yulingchow
Eats shoots and leaves, not necessarily in that order || Filmmaker/DP/Videographer from Hong Kong || Appalled by our response to Covid-19 & climate changeLorella Ventura
@lorella_ventura
Researcher, Philosophy, Hegel, Islam, Orientalism, PhD Islamic Civilization, Arab world, Syria, Lebanon. https://t.co/hQIvrF1iZDN Rog
@Nc_Rog
Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.flylu54905
@flylu54905
#LongCovid #コロナ後遺症 mecfs?2022.12.26発症・長期微熱(10ヶ月)・視覚の揺れ・ふらつき・時間感覚の分断・PEM・運動不耐・座位/起立不耐・POTS・ブレインフォグ・呼吸苦・頭痛・脳の炎症感・睡眠時無呼吸・ミオクローヌス・抑うつ/PS7→6→5→4/いいねは応援/ד֝ժ՝ᤊʓも⃝ん⃝!goldynw
@goldynw1
#storyteller comms | comms | comms #influencingthroughstories #imagesthatwork #goldynw1 #goldyconversations #mecfs Ian Clowes [email protected]Boris Sevo
@81736378zz
Jenny Symmons
@jenny_symmons
Labour staffer 🌹 Chair of @gmb_mps_staff 🍊 CFCW ultra. Views my ownSheeshoas
@Sheeshoasn0x
Sara Smith
@MrsSmith_Hist
Assistant Headteacher | SENDCO | Head of RE | Humanities Teacher Currently navigating Long Covid!Contact
@contactfamilies
We are Contact, the charity for families with disabled children. We support families, bring families together and help families take action for others.Orc1nus
@Orc1nu5
BSc (Hons) Zoology, MSc Biological Diversity If more of us valued food and cheer and song above hoarded gold, it would be a merrier world -ThorinSajid Javid
@sajidjavid
Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the ExchequerJane Ryan
@Jane_Ryan_
Lawyer specialising in civil liberties, public law and human rights. she/her. Feminist. 🏳️🌈. @BhattMurphy Trustee @QueercircleMonty Brush
@montybrush
Helen Avis
@helenavis2
Lawyer, lecturer and shenanigans instigator 💙Cinnamon rolling along
@LongCovidFight
Prev LongCovid Fighter. Not much fight left. Supporting pw chronic illnesses, esp #LC #LongCovidKids #MECFS #PoTS #MCAS. #COVIDisNotOver #COVIDisAirborneEmily Pomroy-Smith ♿️💙🌹
@EmilyP_Smith
Award winning entrepreneur, mother, disabled, fighting for a brighter future for us all🌹 Future Candidate - Jo Cox WIL Cohort 5 - Chair SW Wilts CLP🌹 She/Her