Access4Eddie
@access4eddie
We desperately need access to medical cannabis for our son Eddie who suffers from neurologically catastrophic seizures.
ID: 1008762560978571265
18-06-2018 17:25:11
169 Tweet
275 Takipçi
19 Takip Edilen
The draft NICE guidelines have been disappointing for families like Ilmarie's Access4Eddie. If patients are unable to access cannabis-based meds via legal routes it may be time to decriminalise access via currently illegal routes. cdprg.co.uk
Ilmarie's son Access4Eddie thrives on cannabis oil but the draft NICE guidelines entrench the difficulties the family has to get him the prescription he needs. Read Ilmarie's blog on how the draft guidelines have shattered her hope for patient access 👇 cdprg.co.uk/blog/ilmarie-d…
Following the publication of both the interim NICE guidelines and the NHS Review Matt Hancock requested the CDPRGUK released their longer clip & a blog post
"My son thrives on cannabis oil - but the draft NICE guidelines entrench the difficulties of getting Eddie the prescription he needs" Read more on Access4Eddie's story ➡️ cdprg.co.uk/blog/ilmarie-d…
TODAY: 10 of the families denied NHS prescriptions for medical cannabis will gather in Westminster demanding answers from Matt Hancock after he promised to help them when he met them face-to-face 6 months ago #medicalcannabis #endourpain
The bills are unsustainable Matt Hancock. You said you'd help. Please help. Please. Antoinette Sandbach
Nice talk Matt Hancock . Show us the walk.
Well done today everyone. It's unimaginably difficult dealing intractable epilepsy, then dealing with the bills of a genuinely life changing medicine. But to be forced to traipse to Donwing Street to make politicians do their job is frankly just outrageous. Sort it Matt Hancock!