ABC's of MS ♿️ Jane (@abcsofms) 's Twitter Profile
ABC's of MS ♿️ Jane

@abcsofms

A substack newsletter about a mother's perspective living with multiple sclerosis for 20-years ✎ by Jane Gould

ID: 1493003644878434309

linkhttps://abcms.substack.com calendar_today13-02-2022 23:26:43

690 Tweet

793 Followers

645 Following

Cara (@caramolloy) 's Twitter Profile Photo

I wish there was a void somewhere where I can just scream at the top of my lungs, cry so hard and just let how I feel out. The grief of this disease is by far the hardest. #fuckms

ABC's of MS ♿️ Jane (@abcsofms) 's Twitter Profile Photo

I’m a new f/t #wheelchair user (-1yr). I can’t get shoes on & off by myself & am hm alone by day. Shoes are uncomfortable so I don’t wear inside. Do you think it’s ok for me to go round the block for some fresh air in my socks or is that weird & embarrassing? #MultipleSclerosis

Ru 🌸♿️ (she/they) 🎀 (@rollwithru) 's Twitter Profile Photo

i’m watching how to build a sex room on netflix and now all i want is melanie to come build me a fully accessible, disability friendly sex room pls

MyMSTeam (@mymsteam) 's Twitter Profile Photo

Advance care planning can provide specific instructions as to what you want or need to happen when a worsening condition, health care crisis, or life-threatening event limits your own decision-making capability. Learn more: fal.cn/3qspH

Rayology (@rayyologyy) 's Twitter Profile Photo

Before MultipleSclerosis (MS), I was a musician, DAMN I MISS IT!!! 😔 #Objectivity #OneDayAtATime 😌 #MultipleSclerosis #MSWarrior 🖤🧡

Toula Drimonis (@toulastake) 's Twitter Profile Photo

Oooh, those little faces… where is this lemonade stand? ❤️ West Island brothers raise money for multiple sclerosis with lemonade stand in support of their mother | Montreal Gazette montrealgazette.com/news/local-new…

Barrow Neurological Foundation (@supportbarrow) 's Twitter Profile Photo

This August, Barrow's very own Jeremy M. Shefner, MD, PhD will be biking for multiple sclerosis. The ride will span across 32 days and 2,000 miles. Help raise awareness for MS & donate here ride.biketheusforms.org/index.cfm?fuse…

This August, Barrow's very own Jeremy M. Shefner, MD, PhD will be biking for multiple sclerosis. The ride will span across 32 days and 2,000 miles. Help raise awareness for MS & donate here ride.biketheusforms.org/index.cfm?fuse…
Kristina (@kiki3164) 's Twitter Profile Photo

Most of us grow up with the narrative that if you get sick, you get better or you die. There’s a really uncomfortable (mentally and physically) limbo about living with a chronic, progressive condition. #MS

Tracy Shudo (@tracyshudo) 's Twitter Profile Photo

What is your biggest issue with MS or chronic illness? Mine for years and could not work was fatigue. #msawareness #chronicillness #fatigue

ABC's of MS ♿️ Jane (@abcsofms) 's Twitter Profile Photo

Wheelchair question: What do you suggest someone who uses a wheelchair does to get noticed in a crowd so they can get through? I was at Opening Day of the MN Twins & got scarily stuck as people pushed in front and around me. A horn? Bicycle bell? Or gone extra early?