AllStripes
@_allstripes
Our mission is to unlock new treatments for people affected by rare disease.🚀
ID: 889865010767200257
https://www.allstripes.com 25-07-2017 15:08:46
3,3K Tweet
2,2K Followers
1,1K Following
Michelle Crispin
@mediaho
Music, dogs, beach, books, family, friends, vinyl 💜 not necessarily in that order ☯️ 🤟🏼 🎶 Owner, Mic Drop Media
Lara Pande
@laraannpande
Astellas Pharma US
@astellasus
A pharma company dedicated to changing tomorrow by improving the health of people around the world. Tweets for U.S. audience. Guidelines: bit.ly/3jcHtiE
Arizona Blood Alliance #AzBloodAlliance
@arizonableed
501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
Aishwarya Arjunan, MS, MPH, CGC,CPH (she/her/hers)
@aishuarjun
Genetic Counselor🧬 in CHI via PITT. MSL at GRAIL, Past @GeneticCouns Board Member & past @CWRUalumni Board Prez #H2P Gryffindor⚡ #BurghProud Tweets are my own
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
David Owoeye
@davoshalom
Citizen of the Kingdom of God. Sickle Cell Warrior & Advocate. Infection Prevention & Control Specialist. AMR Advocate Author. amazon.com/dp/B08L81PVG2/…
Ethan Perlstein bio/acc
@eperlste
ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, ceo @endrarediseases, solo vc @AngelList, evo pharmacologist, mTOR worshipper, cofounder of K&L, $CURES
Cayenne Wellness
@cayennewellness
Improving nutritional & mental health through education, research, awareness initiatives & more. For more info., please visit linktr.ee/cwellnessc!
Sarita Edwards
@saritaedwards
Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth
David Fajgenbaum, MD
@davidfajgenbaum
@Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure ChasingMyCure.com
Becky Sansbury
@aftrtheshock
Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Stephanie Fischer
@rarepov
#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Cathy Lessner
@cathylessner
Parvez Akther - ThriveDesk
@parvezvai
Bootstrapping @thrivedesk in public, prev @themexpert | Documenting our journey to $1MM ARR 🚀 Talk about startup, saas, customer experience and marketing.
Alok Tayi
@aloktayi
Building a community to find & fund treatments for rare diseases w/ @VibeBio Also: @biotech2050pod
Tracy Dixon-Salazar
@tracydixonsalaz
Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Jasmin Kaur
@jasminkaur_
~Building. AI-Bio Forum @NTI_WMD I Fellow @britishprogress | Board of Advisors @1DaySooner | Ex-@GSK Biotech and Disruptive Technologes
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Endure_Rare 💙💚💜🧬🏄🏻©️
@endure_rare
SYNGAP Dad, Clinical Lab Professional & Triathlete 140.6 living life with grace and peace knowing "someone's worst day is someone's best" #Syngap1 @cureSynGAP1
Quelani Penland
@quelanip
I'm a Californian! Go Bears, Go Warriors, Go Giants!
Zohra Amarta Shah
@zohraamarta
Visual artist, Painter and Educator. Sunset lover. Caffeine addict.
anal pony boi
@davidca36054142
Brain Ablaze
@brainablaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Adam Johnson - DadVocate
@rarediseasedad
Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
Sarath 🧬 ⚽ 🇮🇳
@tinyphysician
Genetics. Football. Blog ➡️ In That Order. People called me a madman for focussing on Indian football. Teaches pediatrics and genetics. Writer - @athleticindia
n-Lorem Foundation
@n_lorem
Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
Valyria Spicy Chicken
@circuittrippy
John Yang @ ICLR 2025
@johnyang100
Co-founder @ Reticular (YC F24). CS & Math @ MIT ‘24.
Melody_bch
@melodybch
mahmoud salem
@mahmoud57596691
grand father
champs
@kejr35778464
champs ist eine Aktion um Pädiater auf die seltene Erkrankung "Mukopolysaccharidose" (MPS) aufmerksam zu machen.
Stodyo.com
@stodyo_com
We found the metaverse, it’s at stodyo.com | Check out our domain portfolio atom.com/domain-portfol… 🚀
Erkin Özel
@erkinozel_md
Pediatrics and Medical Genetics @EmoryUniversity Medical Doctor @ku_medicine #raredisease #preventivemedicine
Abby Turnwald (she/her)
@pedsgcabby
Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Stephan Proksch
@stproksch
StipetichRoosevelt ❤️ Memecoin
@stipetichroose3
web 😺 reward debate
SchlahtMacie ❤️ Memecoin
@schlahtmacie
usual 🦮
BailleuMora ❤️ Memecoin
@bailleu_mora
Navigating the political landscape like a chessboard, making moves that matter. #PoliticsMastermind #StrategistLife
HaugenKenia ❤️ Memecoin
@haugenkenia1
Altcoin Adventures. 🌍
Esther Shilley ❤️ Memecoin
@esthershilley
Airdrop Aficionado 🎁
Heather Namken ❤️ Memecoin
@heathernamken13
pause fancy 😈
India Reid ❤️ Memecoin
@indiare76072980
unique profit #ripple
Shannon Chaubal ❤️ Memecoin
@chaubalshannon
crisp tube group 💔
Kristie West ❤️ Memecoin
@kristie14398025
choice hospital
Алевтина ❤️ Memecoin
@alevtin25443296
despair notice #binance math
Colors
@colorsfund
🏛️🤓 Building the next Revolution. “the Truman Test”
Opal
@kuroyasume44688
DoraLucius
@uj9492yz23lsjj
The Med13L Foundation
@med13l_fdn
Supporting MED13L families through awareness, research, and community. Connecting hearts and minds to overcome challenges. #NDD #Epilepsy #Autism #ID 🧬💙🧠
Melo Thoughts: Future Tech Explorer
@melothoughtsai
Unraveling the mysteries of tomorrow, today #digitalhealth #AI #undiagnosed #chronicillness #emergingtech #precisionmedicine
Canadian Rare Disease Network (CRDN)
@canadianrdn
Pan-Canadian network uniting clinical, scientific and patient experts to improve the health and well-being of individuals affected by rare diseases.
Helen
@ju6sdgf0cmoxs
blurred
@blurred43669
kayla
@kayla8438996252
Video360
@videoagency360
Video production company that produces video that's creative and agencies worldwide. Ready to start your product video? Get in touch 😉
Rare Disease Research Network (RDRN)
@the_rdrn
A new, inclusive, online hub facilitating patient-initiated #raredisease research. #NIHR funded, co-created by the rare disease community, #CamRARE & #PLRH.
CRPS/RSD Angel of Hope
@unrealphanta5m
Formerly the CRPSwarriorNZ; disabled mum, artist, Twitch streamer and disability advocate. I want to spread hope, awareness and build a supportive community
Rareatives
@rareatives
Share Your Rare | Amplifying Rare Disease Voices 🎙️ 📖 Sharing stories from the 1 in 10 🧬 New patient-led publication #RareDisease #PatientVoicesMatter
Mary
@mary6098753349
Shoasmou
@shoasmouhk1j5_
Rebecca
@phypletzdila6
In fact, there is no one I will never forget, but I am always brooding over my fruitless efforts and wasted love x.com
Say NO Bullying
@saynobullying_1
Our mission is to engage, educate, advocate, and emPOWER individuals. We provide resources, education, and advocacy.
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
KIF1A.ORG
@kif1a
We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast.
Marni Cartelli
@purrfectly_rare
Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer