Treatment algorithm for #VEXAS #Rheumatology #EULAR2025 👇

A rarely discussed topic of #rheumatoid vasculitis - a great talk from Dr. Makol from the Mayo Clinic at #EULAR2025 ⭐️still very high mortality! ⭐️suspect in smn with constitutional symptoms, low complement (C3!) and ⬆️APR ⭐️RTX emerging as a treatment option By Maria Sokolova, MD PhD

Patient-centred care requires creating space for patient voices to be heard. Dr Charlotte Sharp On 27 June, explore real life stories and evidenced-based tools to help evolve your clinical practice and improve outcomes in patient care. bit.ly/4gP5kl2

Have you watched our #SayScleroderma film yet? 🎥 Dawn Neill from Magherafelt is one of 7 people featured. She recently spoke to Derry Now about living with systemic sclerosis & why raising awareness matters 💜 Read more 👉 bit.ly/4eeRGHx #SclerodermaAwareness #SRUK

📢Application deadline extended for this year's Chief Nurse Research Fellowships Are you interested in gaining research experience and developing your own ideas? Don't miss out on this funded opportunity, apply now at forms.office.com/e/gnK1ApWja2 More info👇 University Hospitals Plymouth NHS Trust HRP - Hospital Radio Plymouth

New systematic review by Siniša Savić et al. characterises the complete phenotypic spectrum of VEXAS syndrome. ➡️These findings will facilitate earlier diagnosis, inform monitoring strategies, and guide future research priorities. ➡️bit.ly/40gp76A

Don’t forget to register for #VasculitisMelbourne2026 - the first Vasculitis Workshop in the Southern Hemisphere! Visit vasculitis-melbourne2026.com for more information on the program, destination and registration. We look forward to working, learning and collaborating with you!

#Vasculitis UK is at #PatientVoices in #Rheumatology A great opportunity to hear the patient voice and improve the care of patients with rheumatic diseases. RAIRDA @UKIVAS _ERNRITA

Improving health literacy is simple. Give info in chunks, check understandings, avoid abbreviations, and ask people ‘what’ questions they have as opposed to ‘have you got any questions?’ - Zoe Paskins Keele University 🐿️ #patientvoices

Patient journeys, emotions, and the grief cycle after diagnosis—powerfully shared by Clare Clark in her self-advocacy session. NASS #patientvoices

Patient involvement isn’t an add-on, it’s the foundation. Session 4 spotlights partnership. #patientvoices Dr Charlotte Sharp

🌟 When one of the leading #vasculitis specialists fundraises on our behalf, it’s more than just support — it’s a true honour. 🙌 It shows they recognise and respect the work we do as a patient organisation, and that kind of endorsement is absolutely invaluable. 💙 A heartfelt

The 10-Year Health Plan for England includes some welcome steps, but must go further to meet the needs of people with RAIRDs, and deliver the specialist care and support they need. Read our full statement➡️shorturl.at/zo2mK

Do you have a special interest in giant cell arteritis? Share your expertise by developing our clinical guideline update. Apply today and find out more. Email: [email protected] We're also keen to involve professionals in Wales, Scotland and Northern Ireland.

Thank you Silke R Brix for organising the 2nd Patient Awareness Day in Manchester. Well attended, good pace through the day and very patient centered! #vasculitis #patienteducation #raredisease

The 23rd July is World Sjögren's Day and focuses entirely on you! 📢Use #ProudWithSjögrens to join the conversation and learn more about Sjögren's UK and ways you can support on their website ➡️sjogrensuk.org

The 2025 British Society for Rheumatology management recommendations for ANCA-associated vasculitis ⏩GPA and MPA ⏩ subglottic stenosis and ENT ⏩EGPA ⏩Service specifications ⏩Patient education and support. academic.oup.com/rheumatology/a…

REOVAS in print —>important study for INDUCTION in EGPA Benjamin Terrier Rtx 1gx2 vs conventional tx (gc for ffs 0, cyc IV for ffs>0) ❌ RTX in non-severe dzs. ❌superior to cyc for severe dzs BUT patients did well (⬇️bvas and gc) ✅ no dif based on anca, new/relapsing status‼️

Thrilled to share our latest RCT in #EGPA comparing Rituximab Versus Conventional Therapy for Remission Induction, and published in ⁦Annals of Int Med⁩ - Thanks to all the amazing French Vasculitis Study Group 🙏🙏🙏 acpjournals.org/doi/10.7326/AN…

Executive summary: The 2025 British Society for Rheumatology management recommendations for ANCA-associated #Vasculitis #Rheumtology