📢RAIRDA are conducting a survey to help improve care for people with rare autoimmune rheumatic diseases, and ensure they remain a priority.

If you have a RAIRD condition please take part in this vital campaign by completing this survey bit.ly/3UINacg

#RAIRDaware

📣 The lovely people RAIRDA have asked me to share details of their new survey. If you or someone you is living with a rare autoimmune condition, please feed in your views on patient care and where there needs to be improvements. Here’s the survey 👇rairda.org/publication/20…

Share your insights today by following this link: ipsos.uk/RAIRDAsurvey20… #PatientAdvocacy #RAIRDcommunity #RAIRDaware LUPUSUK 💙 SRUK | Scleroderma & Raynaud's UK Vasculitis UK - In memory of John Mills MBE 💙💚 #BSSA

Almost time to say goodbye to #BSR24 . The exhibition has closed.
Thank you all who came to speak with us!
Now, at the last session GCA and PMR SIG!
Vasculitis UK - In memory of John Mills MBE 💙💚 RAIRDA #vasculitis

Help us make a difference in the lives of those living with RAIRD. Share your experiences and insights in our survey today: ipsos.uk/RAIRDAsurvey20… #HealthcareSurvey #PatientFeedback #RAIRDaware LUPUSUK 💙 SRUK | Scleroderma & Raynaud's UK Vasculitis UK - In memory of John Mills MBE 💙💚 #BSSA

ZoiAn Sarah Mackie @[email protected] Vinod Ravindran Dr. Louise Oni This should be a great session- ZoiAn is outlining Vasculitis UK - In memory of John Mills MBE 💙💚 new Research strategy and patient priorities and launching the new RAIRDA patient survey!

Excellent second day at the #BSR24 Annual Conference under the RAIRDA umbrella - #Vasculitis #Sleroderma #Lupus #Raynauds #Sjogrens

RAIRDA are conducting a survey for people with RAIRDs and your views matter.

Click the following link to share your views: ipsos.uk/RAIRDAsurvey20… #RAIRDaware

We are pleased to be at #BSR24 today, where our CEO Caroline gave a talk on “The one thing I would like my rheumatologist to know” 😊

BSR #LUPUSUK #LupusAwareness

Have you taken part in our RAIRD survey yet? ipsos.uk/RAIRDAsurvey20… #RAIRDaware #PatientVoice

We are here at #BSR24 call by and have chat with Zoi Charlotte and Susan. #Vasculitis #Vasculitis UK RAIRDA umbrella stand ☺️

Have you taken part in our RAIRD survey yet? Your feedback is invaluable in shaping the future of care for rare autoimmune rheumatic diseases. Share your insights today: ipsos.uk/RAIRDAsurvey20… #RAIRDaware #PatientVoice

Please fill out a survey which seeks to understand more about the quality of care, guidance, and treatment for individuals with rare autoimmune diseases.

The survey can be accessed by using the camera on your phone to scan the QR Code or this link: bit.ly/3U3jF3a

Calling all UK residents living with Rare #Autoimmune #Rheumatic Diseases (RAIRD) #vasculitis , #lupus , #scleroderma #Sjögren ’s Participate in this survey 👇and share your experiences … #RAIRDaware #PatientExperience #patient voices matter!!

Calling all UK residents living with Rare Autoimmune Rheumatic Diseases (RAIRD) like vasculitis, lupus, scleroderma, and Sjögren’s disease! Your voice matters. Participate in our survey and share your experiences:ipsos.uk/RAIRDAsurvey20… #RAIRDaware #PatientExperience

For those diagnosed with #vasculitis #Lupus #Sjogrens #Scleroderma #Raynauds #rheumatic #autoimmune Diseases

Are you one of the 170,000+ individuals in the UK with a rare autoimmune rheumatic disease? We want to hear from you! Take part in our survey to help us understand your experiences and improve care: ipsos.uk/RAIRDAsurvey20… #RAIRDaware
LUPUSUK 💙 SRUK | Scleroderma & Raynaud's UK Vasculitis UK - In memory of John Mills MBE 💙💚 #Sjögren 'sUK

Get ready! On Monday, we are launching our survey to hear YOUR voice on Rare Autoimmune Rheumatic Diseases (RAIRD) care, support and treatment.
Your input matters! Stay tuned for the link to share your experiences.
#RAIRD #PatientCare #SurveyLaunch

In 2020, Lupus Europe launched a “Living with lupus survey”. Insights from this survey are largely used thanks to the huge participation from patients around Europe.

To gather further insight, a 'Living with lupus in 2024' survey is being conducted here: surveylegend.com/s/5h8u