Your fundraising meant we could award a grant to Zellweger UK helping four families attend their next family conference where they connect with other families and come face to face with experienced healthcare professionals. Learn more in this video: ow.ly/viPA50JUKIk

We proudly support over 200 charities with FREE will writing. Todays' #charityspotlight is on Zellweger UK who need your donations and legacies to fund research into this life limiting synrdrome. buff.ly/3csblId #zellweger

Save the date! We’ll be live streaming this year’s RARE Champions of Hope Awards on Facebook. Join us for a virtual watch party and let’s celebrate the nominees and winners together. fb.me/e/2Iiqof6Re #2022COH

One week left to provide your feedback through the Diversity Survey, forms.gle/TUJZ2HsD8n1N9M…, on how the GFPD can better serve all of our Warriors and their families #GFPD #PBDZSD #Diversity #DiversityStatement #DiversitySurvey

GFPD Extended Family Members Come join your global "village" for commiseration and real talk with others who “get it” on Saturday, August 27th at 11:00 am EST. Register us06web.zoom.us/meeting/regist… #GFPD #PBDZSD #SaturdaySupport #ExtendedFamilySupport #RareDisease

Do you want to connect with other GFPD families? We are excited to share about a few unique ways to receive web-based, peer-to-peer support! Learn more at bit.ly/3KfKonP #GFPD #PBDZSD #RareDisease #F2FC #CommunityConnections #CommunitySupport #PeerToPeerSupport

A massive thank you to Nathan Hill and Jacob Price who are cycling from Lands End to John O'Grouts to raise money for Zellweger UK starting on 17th Sept. Please show your support. #cycling #cyclinglife #ZellwegerSpectrumDisorders #fundraiser #ZUK justgiving.com/crowdfunding/l…

Hey PayPal Ask PayPal PayPal News it seems your server is down. No one can log in. Has been like this in the UK for a couple of days, what's occurring?

Yesterday Jake set off on his monster of a cycle challenge to cycle the length of the UK, all the way from Lands End to John O Groats! Today he has already passed Tiverton! Keep up the amazing work Jake! facebook.com/10006662999662…

Join us for GFPD Family Friday on Friday, September 23, 2022, at 8:00 PM (ET)! All GFPD families (including extended family!) are invited. This virtual event will not be recorded. bit.ly/3QTXicY #GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FamilyFriday

Jake has made it last night from Lands End to Hereford on his bike. Heading to John o'Groats wild camping on route. #wildcamping #camping #cycling #fundraising #zellwegerspectrumdisorders #Zellweger #ZUK Go Jake, this is awesome 👌 👏

Jake has just reached the border of Scotland! 🏴󠁧󠁢󠁳󠁣󠁴󠁿 The weather has not been kind to Jake and his uncle Pete, pouring rain. He’s cycled England in 6 days. He’s covered 500+ miles on bike. Thanks to all who have donated. England ✅ Scotland - Let’s go! justgiving.com/crowdfunding/l…

The stunning views of Scotland, Jake is still cycling, wild camping, fundraising and raising awareness. Our challenge hero. #cycling #wildcamping #Scotland #challenge #bike #fundraising #ZellwegerSpectrumDisorders

Jake wildcamping travelling from Lands End to John o'Groats by bike, raising money and awareness for Zellweger Uk #wildcamping #camping #Scotland #ZellwegerSpectrumDisorders #ZUK #charity #cycling #pushbike #challenge #hero

Well Jake our champion fundraiser has made it to Fort William, all the way from Lands End, on his push bike, wild camping all the way. For Zellweger Uk. Inspirational young man. #wildcamping #fundraising #cycling #zellwegersyndrome

Some more beautiful scenery in Scotland as Jake cycles from Lands End to John O'Groats to raise awareness and fundraising for Zellweger UK. Mammoth challenge deserves Mammoth support 👏 🙌 please donate if you can. 🙏 #wildcamping #cyclinglife #zellwegersyndrome #zuk

Newborn screening gets families closer to receiving the support they need to give their #GFPDWarrior the best quality of life. Rarescreening.org develop evidence to ensure newborn screening programs keep pace with science. #GFPD #PBDZSD #NewbornScreening #PAUSEfortheGFPD

Jacob made it from Lands End to John o'Groats on his push bike and wildcamping last night. We can't thank him enough for taking on such a mammoth challenge for Zellweger UK and all the PBD warriors. Be more like Jacob is our new moto. #zellwegersyndrome

When we say life was more expensive for disabled people even before the #CostOfLivingCrisis, what do we mean? There are a range of factors that have made the current economic situation more difficult for disabled people and their families. Check out our film to find out more.

#ZellwegerSpectrumDisorders #ZellwegerUK #Zellweger You can help raise money for Zellweger UK by donating online #JustGiving justgiving.com/campaign/2023Z…