We agree #ProfMartinCaplin , GPs need greater education in #neuroendocrinecaners to detect earlier.Our research shows 5% of GPs suspected a #Neuroendocrinetumor in their patients.Despite presenting numerous times with issues like #IBS bit.ly/31rqj7v

Thank you for your tireless commitment Simone Leyden, the NZ NETs community appreciates all of the time and energy you give to help all patients

INCA’s success record in 2019 was showcased at the ENETS Advisory Board in Vienna where the leading international NET experts discussed ways to improve NET care, advance practice-changing research with patient involvement #LetsTalkAboutNETs incalliance.org/inca-success-r…

An all too familiar story about misdiagnosis from actress #oliviawilliams 4 years and 4 countries to discover she has a #pancreaticneuroendocrine cancer vogue.co.uk/arts-and-lifes…

'I’d reached the point where I’d rather be right and have a diagnosis, than be told yet again that there was nothing wrong. It was clear many doctors thought I was delusional. And that is a very lonely place to be.' - Olivia Williams
Sending our support to Olivia.
#MINDtheGap

There’s still tickets available for our annual fundraiser to raise money to help people with #neuroendocrine cancers or #NETcancer - come along and help patients who still have to fly to Australia for their cancer treatment
events.humanitix.co.nz/craft-beer-and…

.@elyseg of ⁦NET Research Foundation⁩ opens remarks at the neuroendocrine tumor patient & caregiver conference in Denver, being live-streamed here today: youtu.be/D31xUh1rfmk

And it was one hell of a night at the Mahatma Gandhi Centre. Lots of laughs. Terribly sad stories. Curries that crept up on you. Good people raising money. Indian dancing. Sitar recitals. All because Jatin Patel decided he needed to help. He’s a star.

What do you suppose would happen if 1 in 2 breast cancer, lung cancer, or colorectal cancer patients was misdiagnosed? Outrage, right? ow.ly/bl8c30nzOrd #LetsTalkAboutNETs #NeuroendocrineCancer #WorldCancerDay

#WorldCancerDay #IAmAndIWill

We completely agree with @Drkiwicj on TVNZ Breakfast, national cancer plan desperately needed and FAST! #cancercrossroads #cancerandme goo.gl/c8unNx

Check out this great news article by @unicornfound ! Nice work Simone! twitter.com/9NewsMelb/stat…

We spoke to the media today following the passing of Aretha Franklin from Pancreatic #NETcancer . Article link below about how our pancreatic NET patients are STILL waiting for PRRT to be funded/ established here in NZ. #PRRTneeded #LivesBeforeDollars goo.gl/VbgzVX

Aretha Franklin died from NEUROENDOCRINE Pancreatic Cancer, #NETcancer We wish news outlets would report this correctly. Why you ask? Because the signs, symptoms and treatment are SO different and we need everyone to know this for any hope of NETs being diagnosed earlier.

And #letstalkaboutNETs promotions in our award-winning cafe run by deaf baristas. Last night they won the Attitude Award for best employer, today supporting battle against one of our most concealed cancers, NETs Unicorn FoundationNZ

If we all add our voices around the world, we can make a difference together in raising awareness about #NETCancer . #LetsTalkAboutNETs twitter.com/CureNETs/statu…

#LetsTalkAboutNETs #NETCancerDay #UnicornFoundationNZ #NETcancer
Unicorn FoundationNZ

Did you know that EVERYDAY another New Zealander is diagnosed with #NETCancer ? It is more common than stomach, brain, thyroid or cervical cancers but it takes on average 5 to 7 years to receive a correct diagnosis.
#unicornfoundationnz #LetsTalkAboutNETs #NETCancer Day

#LetsTalkAboutNETs #NETCancerDay #UnicornFoundationNZ #NETcancer
Unicorn FoundationNZ #woodsidecafe