🎯“Patients need to be involved in trial design to both refine and answer the right questions, to produce good quality results.”
📲Watch the insightful presentation by Prof. Michael, recorded for INCA: incalliance.org/prof-michael-m…
#LetsTalkAboutNETs #clinicaltrials

#Research Clinical Trials and You:
“The researcher does not know what she does not know until she has asked the patient.” Kristina Staley. Quoted in Hørder & Nielsen (2020). Click to read: neuroendocrinecancer.org.uk/blog-ncuk/rese… Science and Innovation at Cancer Research UK

Meet Craig, fundraising co-ordinator extraordinaire! Craig joins our staff team this week, and is also a member of our neuroendocrine cancer patient community, cared for at The Beatson West of Scotland Cancer Centre. Scotland NHS NHS Greater Glasgow and Clyde Glasgow Times Rare Advocacy Movement

Thor Halfdanarson Thanks for posting Thor. Having had 3 of 4 (by choice) cycles of Lu-177 in 2019 with good results, going back to the ‘well’ with updated Alpha offers much hope for this growing pt cohort. But we still need better access - Neuroendocrine Cancer UK #NotJustNECancer Patricia Novelli

Neuroendocrine Cancer UK #NotJustNECancer Dorset Echo Thank you for the tag. We hope Gary continues living as well as possible following his diagnosis and treatment. 💙

👉Julian from Germany spent 2 years with symptoms of weight loss, flushing and diarrhea. The NET diagnosis came after visiting a third doctor. He already had metastasis to the liver.
📲Watch Julian’s story: incalliance.org/stories/julian…
#LetsTalkAboutNETs #GITwitter #OncTwitter

Today is #EuropeanHormoneDay ! We're sharing useful resources highlighting European Society of Endocrinology (ESE)'s 10 recommendations for good hormone health, #BecauseHormonesMatter .

But first, back to basics: what is endocrinology? Watch our fun, animated video to learn more: ow.ly/8V9W50Rm68x

ENETS webinar 
'Management of functioning syndrome in advanced NET: What can we expect?'.
This evening: Wednesday, 24 April 2024, from 18:00–19:10 CEST, this webinar is designed for advanced clinicians or HCPs specialising in NET enets.org/webinars-podca…

Today is #EuropeanHormoneDay aiming to raise awareness of the small steps everyone can take towards good hormone health. Many people know little about their vital role in health and disease, and their impacts on our neuroendocrine system. Learn more here: bit.ly/3WeGzr8

Today is #EuropeanHormoneDay aiming to raise awareness of the small steps everyone can take towards good hormone health. Many people know little about their vital role in health and disease, and their impacts on our neuroendocrine system. Learn more here: bit.ly/3WeGzr8

'I knew I needed support after my neuroendocrine carcinoma (high grade NEC) diagnosis - thank goodness I found this knowledgeable group ...'
If you have NEC patients in UK, click our link: neuroendocrinecancer.org.uk/supporting-you/ University Hospitals Birmingham The Christie NHS Royal Free London Cambridge University Hospitals NHS OUH

Get ahead in your career with a 100% online, part-time PgCert in Medical and Health Education from The University of Manchester.

Find out more: bit.ly/3UQ3IQ0

'I have a cancer many people have never heard of ...' We're delighted that Carolyn has just become one of our patient Ambassadors. You can read her story here: neuroendocrinecancer.org.uk/faces-of-ncuks… Royal Free London

Well, we couldn’t leave it after last time out 👀

So happy to share that Beatables FC are back in action this summer, raising money for two incredible charities.

Learn more about both Neuroendocrine Cancer UK #NotJustNECancer and Ben Saunders Foundation by visiting their profiles.

Let’s get to work! 💙

#FENBFC

🏃‍♀️🏃‍♂️ Today's the day! Let's give a big shoutout to Hannah, Harry, and Trish as they take on the TCS London Marathon 🎉 They've dedicated their public ballot places to raise funds and proudly represent the #NeuroendocrineCancer community. Good Luck!!!

Are you interested in NETs?
You have been doing some 📚, but you would like to know more people in the area?
NETs for Newcomers in here! 🙂
💻 [email protected]

Wondering what to do with your patients with end stage renal disease and in need of PRRT for advanced NET...?

onlinelibrary.wiley.com/doi/10.1111/jn…

#BTOG24 big news. Launch of research group. Let do this

I am pleased to announce that I have taken on the role of Chair for the UK Lead Cancer Nurses group UKONS #UKONSChampion
Surrey and Sussex Cancer Alliance Macmillan Cancer Support