14th #ICORD #Conference: registration open!! A Community Partnership to Expand Access to Gene and Cell Therapies More at icord.es/14th-icord-con…

REGISTRATION IS OPEN #EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at Istituto Superiore di Sanità

#EJPRD "#Training on strategies to foster solutions of #undiagnosed #RareDisease cases" 3-5 April 2023 in person at Istituto Superiore di Sanità

Join @EJPRareDiseases in Rome for a 3-day training to get instruments and knowledge on novel strategies to foster solutions of undiagnosed #RareDiseases cases 🚨Registration deadline: 15 February ℹ️Programme, registration & more information: ejprarediseases.org/event/training…

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As member of UDNI and President of ICORD (icord.es) I am honored to invite you to attend the free Webinar HOW CAN ONE HEALTH APPROACHES HELP RARE DISEASES? Link for registration lnkd.in/dP_zMNpG Program is here lnkd.in/dAEAneHM

RARE DISEASE GRAND ROUNDS "SUPPORTING THE ZEBRAS: AN AUSTRALIAN APPROACH TO PERSONCENTRED RARE DISEASE CARE" (Speaker: Emma Palmer) More information tinyurl.com/bd88fbpw

RARE DISEASE GRAND ROUNDS: "RARE DISEASES: EUROPEAN AND ITALIAN POLICIES AND ACTIONS" (Speaker: Domenica Taruscio) More information tinyurl.com/4cu85zva

The NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) Center of Excellence at Boston Children’s Hospital. (Speaker: Olaf Bodamer) More information: tinyurl.com/2p8t9j4v

29 April 2023 Undiagnosed Day 2023 by #UDNI & #Wilhelm Foundation "All Undiagnosed should have a chance to get a diagnosis". "Leaving no one behind" More info undiagnosed-day.org #UDNI udninternational.org #rarediseases #Undiagnosed

April 29 #undiagnosedDayorganized by UDNI & @WilhelmFoundation We are pleased to invite you to participate to the webinar. More info at undiagnosed-day.org

- 1 April 29 #UndiagnosedDay organized by #UDNI & #WilhelmFoundation We are pleased to invite you to participate to the webinar Leaving no one behind More at undiagnosed-day.org UDNI udninternational.org Wilhelm Foundation wilhelmfoundation.org #rarediseases #Undiagnosed

- 1 April 29 #UndiagnosedDay organized by #UDNI & #WilhelmFoundation We are pleased to invite you to the webinar. Leaving no one behind More undiagnosed-day.org udninternational.org wilhelmfoundation.org #rarediseases #UndiagnosedChildrensDay2023

TODAY April 29 #UndiagnosedDay (at 13.30 CET, Rome time) organized by #UDNI & #WilhelmFoundation We are pleased to invite you to participate to the webinar. "Leaving no one behind" To follow the event: undiagnosed-day.org

Intl Summer School #RareDisease #Registries & #FAIRification of #data #Rome, Sept 25-29 2023 Registration OPEN till May 22👉 bit.ly/3GFmjpS Info & Programme bit.ly/3KXhFGq Istituto Superiore di Sanità @EJPRareDiseases #ePAGs #ePAGItalia #ERNeu #UNIAMO #EURORDIS Claudio Carta

Towards the international interoperability of clinical research networks for rare diseases: recommendations from th… pubmed.ncbi.nlm.nih.gov/37161573/

🎗Oggi è la giornata della #SindromediWilliams, una malattia genetica rara 🎶Chi ne è colpito è caratterizzato da specifiche peculiarità fisiche, ma anche linguistiche e neuropsicologiche, tra cui la predisposizione naturale alla #musica, usata per terapie riabilitative

Great event !! To be continued. See you all in Tiblisi (Georgia) in October 22-23 for the 12th #UDNI Conference. #undiagnosedhackathon #rarediseases Udninternational Wilhelm Foundation

"Alone we are rare, together we are strong. The NORD Rare Disease Center of Excellence Network" The webinar will focus on the NORD Rare Disease Center of Excellence Network. The speaker will be Professor Olaf Bodamer and the moderator, Professor AIME LUMAKA #UDNI Join us !!

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