🙌Siamo a Bruxelles per l'#ECRD2024! Simona Bellagambi - Vice Presidente EURORDIS-Rare Diseases Europe e delegato estero #UNIAMO - nella tavola rotonda sull'equità nella #diagnosi ha presentato l'eccellenza italiana dello #SNE Screening Neonatale Esteso, che ci auguriamo di diffondere in Europa.

The Joint IRDiRC Consortium Assembly and Scientific Committees Meeting was held in China 🇨🇳🌏 where collaborative efforts and groundbreaking discussions occur to advance rare disease research globally.

IRDiRC is co-hosting, together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine Annual Conference from May 23rd to May 25th

Tra i partecipanti al Global Rare Diseases Research Symposium 🌐: Claudio Carta, del NationalCentre forRD e membro dell'Interdisciplinary Scientific Committee ISC IRDiRC intervenuto sulle attività del #ComitatoScientifico, sulla pianificazione futura e in diverse sessioni #rarediseases

Standing together for rare diseases! Maria Cavaller Bellaubi is participating in the joint IRDiRC & Global Rare Diseases Research Symposium in Shanghai to stress the importance of global collaboration in research and translational medicine for rare diseases patients. #IRDiRC

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📣Oggi e domani, a Bari 🇮🇹, la Conferenza finale dello #EuropeanJointProgrammeonRareDiseases Esperti riuniti per parlare dell’impatto💪 dei corsi di formazione, dei programmi, delle azioni congiunte nell’ambito della ricerca delle #malattierare ⤵️ malattierare.gov.it/eventi/dettagl…

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We, the rare disease community, are committed to enhancing health outcomes and quality of life for the 30 million Europeans living with a rare disease. ✊ Will you help us #ActRare2024? The #ECRD2024 Open Letter is now open until Autumn 2024! 👉 go.eurordis.org/sign

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Today, June 20, see you in few hours ❗

📢Appuntamento domani 3 luglio 2024 a Roma: 📑per la presentazione del 10° Rapporto sulla condizione delle #personeconmalattiarara in Italia (MonitoRare) 🎉per festeggiare i 25 anni di uniamomalattierare Leggi qui⤵️ malattierare.gov.it/eventi/dettagl…

See you there ❗ linkedin.com/posts/secretar…

16th #ICORD Annual #meeting #BUENOSAIRES #Argentina Glad to be among the #speakers of session II: Collaboration for expanding #diagnosis and #research for #rarediseases together w/ M.T. Acosta and PJ Brooks ICORD Istituto Superiore di Sanità IRDiRC EURORDIS-Rare Diseases Europe uniamomalattierare Telefono Verde Malattie Rare

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International Summer #School on #FAIRification of #raredisease #registries and #DATA ✍️Registration is still open until Aug. 26 at the following link❗️ shorturl.at/nqQLn 😃

International Summer #School on #FAIRification of #raredisease #registries and #DATA #online 18-20 #September ✍️Registration is still open at the following link❗️ shorturl.at/nqQLn #malattierare #EURORDIS #UNIAMO #ICORD Istituto Superiore di Sanità Telefono Verde Malattie Rare Università Cattolica