The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profileg
The Sumaira Foundation

@TheSumairaFDN

Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.

ID:2871642269

linkhttp://www.sumairafoundation.org calendar_today11-11-2014 02:02:15

2,6K Tweets

1,0K Followers

492 Following

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Rosa Cortese(@RosaCortese5) 's Twitter Profile Photo

Our new collaborative work is finally out in Annals of Neurology! Huge thanks to ECTRIMS MAGNIMS for this incredible opportunity and to all our collaborators for their amazing contributions. 🌟

onlinelibrary.wiley.com/doi/10.1002/an…

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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

Grace, TSF intern, graduated from Harvard University on May 23, 2024 with a B.A in Integrative Biology.

She is excited for her journey ahead... next stop: MassGeneral News!

Congratulations Grace - we wish you all the very best

Grace, TSF intern, graduated from Harvard University on May 23, 2024 with a B.A in Integrative Biology. She is excited for her journey ahead... next stop: @MassGeneralNews! Congratulations Grace - we wish you all the very best
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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

🇫🇷 Démarches administratives quand on est en situation de handicap, quelle galère!

Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne, Patiente Experte et ancienne Inspectrice du Travail.
us02web.zoom.us/webinar/regist…

🇫🇷 Démarches administratives quand on est en situation de handicap, quelle galère! Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne, Patiente Experte #SEP et ancienne Inspectrice du Travail. us02web.zoom.us/webinar/regist…
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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

Welcome to Boston, João! 🇧🇷

As a TSF Fellow, Dr. João Vitor Mahler joins The Neuroimmunology Clinic at MassGeneral News from the USP - Universidade de São Paulo to research seronegative under the mentorship of Dr. Michael Levy, MD, PhD & Dr. Marcelo Matiello.

Let’s illuminate the darkness 🩷🧡💛

Welcome to Boston, João! 🇧🇷 As a TSF Fellow, Dr. @jvmahler1 joins The Neuroimmunology Clinic at @MassGeneralNews from the @usponline to research seronegative #NMOSD under the mentorship of Dr. @mlevy18 & Dr. Marcelo Matiello. Let’s illuminate the darkness 🩷🧡💛
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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

🇹🇷 Sumaira Foundation olarak değerli hekimlerimiz Dr. Rabia Koç ve Dr. Meral Seferoğlu'na ziyarette bulunduk

Siz değerli doktorlarımızı ve konusunda bilgi alışverişinde bulunmaya ve gelecekteki işbirliklerimizi planlamaya davet ediyoruz.

🌺 Fatih Sen, TSF Türkiye

🇹🇷 Sumaira Foundation olarak değerli hekimlerimiz Dr. Rabia Koç ve Dr. Meral Seferoğlu'na ziyarette bulunduk Siz değerli doktorlarımızı #NMOSD ve #MOGAD konusunda bilgi alışverişinde bulunmaya ve gelecekteki işbirliklerimizi planlamaya davet ediyoruz. 🌺 Fatih Sen, TSF Türkiye
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Sydney Health(@syd_health) 's Twitter Profile Photo

A team of over 50 Australian scientists, headed by Prof Fabienne Brilot from University of Sydney & Kids Neuroscience Centre at Sydney Children's Hospitals Network, have discovered a way to predict a relapse course in little-known disease Myelin oligodendrocyte glycoprotein antibody disorders (MOGAD).

A team of over 50 Australian scientists, headed by Prof @FabienneBrilot from @Sydney_Uni & Kids Neuroscience Centre at @SCHNkids, have discovered a way to predict a relapse course in little-known disease Myelin oligodendrocyte glycoprotein antibody disorders (MOGAD).
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Sydney Health(@syd_health) 's Twitter Profile Photo

Associate Professor Sudarshini Ramanathan Sudarshini Ramanathan has been awarded over $2.8 million to identify optimal treatment of Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) at onset and relapse, to reduce disease activity and improve outcomes.

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Sudarshini Ramanathan(@darshi_r) 's Twitter Profile Photo

Delighted to share our recent award of an MRFF clinical trial grant round to run an investigator-led phase III RCT evaluating optimal treatment of MOGAD at onset and relapse. This 12 centre NHMRC funded national trial speaks to our investment in neuroimmunology.

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Sydney Health(@syd_health) 's Twitter Profile Photo

Often referred to as a cousin of MS due to shared symptoms, MOGAD is an autoimmune condition where the body attacks a protein in the brain, resulting in a swollen central nervous system.

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Sumaira Flower 🍉(@SumairaFlower) 's Twitter Profile Photo

Lovely to spend time with Prof. Luca Massacesi & Dr. Valentina Damato (and her little cutie) in beautiful Firenze 😍🇮🇹☀️

Lovely to spend time with Prof. Luca Massacesi & Dr. Valentina Damato (and her little cutie) in beautiful Firenze 😍🇮🇹☀️
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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

🎙️🇰🇪 Roselyne, TSF’s Ambassador of Kenya is a force to be reckoned with!

In a new episode of Demystifying NMO/MOG Podcast, Roselyn shares the harrowing story of her DX
& how those experiences impacted her path to medical school and build empathy.

podcasts.apple.com/us/podcast/epi…

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Neurology Journal(@GreenJournal) 's Twitter Profile Photo

This multicenter study explored the acute dynamics of brain MRI features of within a single attack and demonstrated 3 major findings. Read the article to learn more: bit.ly/3WtFMCN

This multicenter study explored the acute dynamics of brain MRI features of #MOGAD within a single attack and demonstrated 3 major findings. Read the article to learn more: bit.ly/3WtFMCN
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