The Sumaira Foundation (@thesumairafdn) 's Twitter Profile
The Sumaira Foundation

@thesumairafdn

Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.

ID: 2871642269

linkhttp://www.sumairafoundation.org calendar_today11-11-2014 02:02:15

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The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Conoce a Ernesto, Embajador de TSF en México 🇲🇽 Ernesto está emocionado de mostrarles a otros pacientes que pueden seguir viviendo y aprovechar al máximo sus vidas a pesar de su diagnóstico. ¡Bienvenido Ernesto!

Conoce a Ernesto, Embajador de TSF en México 🇲🇽

Ernesto está emocionado de mostrarles a otros pacientes que pueden seguir viviendo y aprovechar al máximo sus vidas a pesar de su diagnóstico.

¡Bienvenido Ernesto!
Neuroimmunology Clinic Barcelona (@neuroimmuclinic) 's Twitter Profile Photo

🔍 Elianet Fonseca, our team & the Spanish MOGAD Study Group show the performance of the 2023 2023 MOGAD Criteria in Children and Adults With MOG-Antibody Positivity Within and Outside Attacks. neurology.org/doi/10.1212/WN…

touchNEUROLOGY (@touchneurology) 's Twitter Profile Photo

Revisited... Join Prof. John Chen and Prof. Friedemann Paul as they discuss best practices for early NMOSD diagnosis and treatment. Watch here: touchneurologyime.org/nmosd_diagnosi… John J. Chen, MD, PhD #MedEd #NMOSD #Neuroimmunology #Neurodegenerative #RareDiseases

Revisited...

Join Prof. John Chen and Prof. Friedemann Paul as they discuss best practices for early NMOSD diagnosis and treatment. 

Watch here: touchneurologyime.org/nmosd_diagnosi…

<a href="/chenmayo/">John J. Chen, MD, PhD</a>

#MedEd
#NMOSD
#Neuroimmunology
#Neurodegenerative 
#RareDiseases
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Estuvimos encantados de contar con el Carlos Navas de Colombia y el Edgar Contentti de Argentina, quienes entablaron una conversación profunda e informativa sobre los diversos tratamientos disponibles para tratar el trastorno del espectro de la #NMOSD. youtu.be/ZPca-P1I2e4

Continuum: Lifelong Learning in Neurology (@continuumaan) 's Twitter Profile Photo

In this Continuum Audio BONUS EPISODE, Dr. Michael Grasso narrates the NMOSD and MOGAD article, which is available to everyone at journals.lww.com/continuum/full…. Continuum subscribers can listen and download all Aloud recordings at continpub.com/Aloud. Michael Kentris, DO American Academy of Neurology

In this Continuum Audio BONUS EPISODE, Dr. Michael Grasso narrates the NMOSD and MOGAD article, which is available to everyone at journals.lww.com/continuum/full…. Continuum subscribers can listen and download all Aloud recordings at continpub.com/Aloud.
<a href="/DrKentris/">Michael Kentris, DO</a> <a href="/AANmember/">American Academy of Neurology</a>
Sumaira Flower 🍉 (@sumairaflower) 's Twitter Profile Photo

18 days until ECTRIMS Patient Community Day for those affected by #MS, #NMOSD and #MOGAD! Join us in-person in Copenhagen 🇩🇰 or online from anywhere in the world. To register, visit ectrims.eu/ectrims2024-pa… See you soon 😎

Bo Sun (@neuro_bo) 's Twitter Profile Photo

An interesting study on the potential contribution of CD4+ T cells in NMOSD. Still slowly digesting it.. Curious to see a fair few healthy donors harbour these AQP4 reactive T cells but they appear less capable of supporting B cell differentiation into plasmablasts

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🏆 We'll be announcing the recipient of TSF's 2024 Global Rare Trailblazer Award at the 7th Annual Gala at the National Aquarium of Denmark in Copenhagen 🇩🇰🪼 🎟️ To reserve your ticket, visit eventbrite.com/e/the-sumaira-…

🏆 We'll be announcing the recipient of TSF's 2024 Global Rare Trailblazer Award at the 7th Annual Gala at the National Aquarium of Denmark in Copenhagen 🇩🇰🪼

🎟️ To reserve your ticket, visit eventbrite.com/e/the-sumaira-…
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

Time to Treat First Acute Attack of Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease #MOGAD jamanetwork.com/journals/jaman…

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

🇩🇪 Zu uns gesellte sich Prof. Friedemann Paul, der die Diagnose und Behandlung von #MOGAD beschrieb und gleichzeitig die Bedeutung der Patientenbeteiligung an klinischen Studien hervorhob. youtube.com/watch?v=p1_BTj…

NeurologyLive® (@neurology_live) 's Twitter Profile Photo

🗣️📹 In this episode, Michael Levy, MD, PhD, of Harvard Medical School, examined how disability accumulation may be influenced by the use of less efficacious treatments, compared the efficacy of novel and traditional #NMOSD agents, and more. 📺 Watch Now: neurologylive.com/view/treatment…

🗣️📹 In this episode, <a href="/mlevy18/">Michael Levy, MD, PhD</a>, of <a href="/harvardmed/">Harvard Medical School</a>, examined how disability accumulation may be influenced by the use of less efficacious treatments, compared the efficacy of novel and traditional #NMOSD agents, and more.

📺 Watch Now: neurologylive.com/view/treatment…
Continuum: Lifelong Learning in Neurology (@continuumaan) 's Twitter Profile Photo

Key Point 2 from the article Therapeutic Approach to Autoimmune Neurologic Disorders by Drs. Stacey Clardy and Tammy Smith from the August Autoimmune Neurology issue, which is available to all at journals.lww.com/continuum/full…. Stacey Clardy MD PhD #Neurology #NeuroTwitter #MedEd

Key Point 2 from the article Therapeutic Approach to Autoimmune Neurologic Disorders by Drs. Stacey Clardy and Tammy Smith from the August Autoimmune Neurology issue, which is available to all at journals.lww.com/continuum/full….
<a href="/StaceyLClardy/">Stacey Clardy MD PhD</a>
#Neurology #NeuroTwitter #MedEd
MSJ (@msj_research) 's Twitter Profile Photo

People with MOG-Ab associated disease #MOGAD exhibit impairments in multiple domains of quality of life, including anxiety, stigma, cognitive function and social interactions. Study from Yana Said Elias Sotirchos Johns Hopkins Medicine Jenny Khazen The MOG Project ▶️ journals.sagepub.com/doi/full/10.11…

People with MOG-Ab associated disease #MOGAD exhibit impairments in multiple domains of quality of life, including anxiety, stigma, cognitive function and social interactions.

Study from <a href="/_YanaSaid/">Yana Said</a> <a href="/ESotirchos/">Elias Sotirchos</a> <a href="/HopkinsMedicine/">Johns Hopkins Medicine</a> <a href="/JustJen_K/">Jenny Khazen</a> <a href="/TheMOGProject/">The MOG Project</a>
▶️ journals.sagepub.com/doi/full/10.11…
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

We were joined by Dr. Patrick Waters Patrick Waters from the University of Oxford who led a detailed presentation and thoughtful discussion about #NMOSD & #MOGAD diagnostic assays. youtu.be/DRbo4DkSjLg

The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

You’re invited to join PREVAIL, a live, virtual event featuring an NMOSD specialist and a patient taking UPLIZNA on September 11. NMOSD specialist Barry Hendin, MD and #NMOSD patient Michelle will lead the conversation. Register today: bit.ly/4dTCJJi

You’re invited to join PREVAIL, a live, virtual event featuring an NMOSD specialist and a patient taking UPLIZNA on September 11. NMOSD specialist Barry Hendin, MD and #NMOSD patient Michelle will lead the conversation. Register today: bit.ly/4dTCJJi
The Sumaira Foundation (@thesumairafdn) 's Twitter Profile Photo

TSF tem a honra de anunciar uma nova parceria com a NMO Brasil Associação Brasileira de Pacientes de NMOSD para levar comunidade, educação e conscientização para pacientes e seus familiares que vivem com #NMOSD no Brasil. Leia o comunicado completo aqui: sumairafoundation.org/a-fundacao-sum…

TSF tem a honra de anunciar uma nova parceria com a NMO Brasil Associação Brasileira de Pacientes de NMOSD para levar comunidade, educação e conscientização para pacientes e seus familiares que vivem com #NMOSD no Brasil. 

Leia o comunicado completo aqui: sumairafoundation.org/a-fundacao-sum…