Absolutely honoured to be a part of the best team in the world, The MOG Project! Thank you to UCB News for interviewing us, our partners, sponsors & doctors to talk all things #MOGAD & our organisation. Indeed a powerful video! ‘The Power of the Flock’ youtu.be/EaxR8K8qzJk?si…

Grab your tissues because you don’t want to miss this powerful video titled ‘The Power of the Flock’ constructed by UCB News about The MOG Project & #MOGAD . Dr John J. Chen, MD, PhD, Dr Jonathan Santoro, MD, Guthy-Jackson Fdn
Jenny Khazen, Becca Salky, SRNA, MGH Neurology, Julia & Andrea

This #MOGnificentMonday , we have another feature story for #MOGADAwarenessMonth : Jim Broutman’s MOGAD Story: Opening the Door to a New Lease on Life!

Our own Chief Media Officer, Jim Broutman tells how his experience with MOGAD led down the road to his advocacy and participation

April is MOGAD Awareness Month! #mogadawarenessmonth #MOGAD   #raredisease
 
MOGAD may be monophasic, where only one attack occurs, or it can be multiphasic, meaning additional attacks (or relapses) occur. It is a life-long disease but can be managed with preventative treatment.

We were very excited to attend the Aston Patient day in England hosted by our Medical advisory board Dr, Prof Jackie Palace! Our director of Blind Resources & Executive Board member, Andrea Mitchell & her husband James, were able to spend some time with #NMOSD & #MOGAD pts. An

Let’s talk about MOG associated optic neuritis ( #MOGON ) relapses in the absence of vision loss and the presence of severe eye pain, head pain lasting >48 hours.

Would you consider this as a relapse and are you pulsing IV Methylprednisolone immediately?

#MOGAD #NeuroTwitter

Let’s talk about MOG associated optic neuritis ( #MOGON ) relapses in the absence of vision loss and the presence of severe eye pain, head pain lasting >48 hours.

Would you consider this as a relapse and are you pulsing IV Methylprednisolone immediately?

#MOGAD #NeuroTwitter

April is MOGAD Awareness Month! #mogadawarenessmonth #MOGAD   #raredisease
 
MOGAD is a rare autoimmune disease with 1.6-4.8 per million adults diagnosed yearly. It is characterized by inflammation of the central nervous system – the optic nerve, brain, and/or spinal cord – with

This case highlights an unusual presentation of severe MOGAD, emphasizes the potential benefit of plasma exchanges in severe MOGAD cases refractory to steroid treatment, and demonstrates how assessment of CSF IL-6 may help guide treatment decisions: bit.ly/3w5SUD5

April is #MOGAD Awareness Month. Julia Lefelar, the exec. director of The MOG Project, shares her story. Read here: globalgenes.org/story/the-maki…
#CareAboutRare

Full dose IVIG as well as other factors have helped me reach almost 1 year remission of #MOGAD in May 2024, after 4 dreadful relapsing years with 10 years since 1st onset of BON. So thankful for this preventative medication!! #Remission

Let’s talk about IVIG & SCIG in #MOGAD with Dr Michael Levy, MD, PhD from MGH Neurology in our latest #MOGMinute as part of #MOGAD AwarenessMonth 2024!

Build better knowledge on MOGAD & one of the BEST treatments currently available for preventing relapses & accumulating disability.

The 🔥 CNS presentation of them all: MOG associated optic neuritis ( #MOGON ). ‘Plasmapheresis Improves Visual Outcomes in Attacks of Optic Neuritis in #MOGAD !’ Read here to find out more 👉🏻 neurology.org/doi/10.1212/WN…

MOGAD NEUROPATHOLOGY🧠🔬
1) Confluent pattern around small veins.
2) Oligodendrocytes are variably lost in all three diseases, while in MOGAD, progenitor cells are preserved.
3) Perivascular complement deposition is much less but stained on myelinated fibers.

Dr. Adrian Budhram works alongside talented medical lab professionals in the neuroimmunology lab to help enhance care delivery to patients with autoimmune neurologic diseases.

PaLM is delivered in partnership by LHSC and St. Joseph's Health Care London.

Learn more: lhsc.on.ca/news/providing…

Our partner & friends at @globalgenes just released an article for MOGAD Awareness Month 2024 that featured The MOG Project! 😍

Read all about the strides that our organisation has made in regards to #MOGAD since its launch!

Link:👇🏻
globalgenes.org/story/the-maki…

#MOGAD 2024 👊🏻

So grateful for multiple clinicians / experts / researchers who have approached us about #MOGAD & how everyone is interested in this rare neurological disorder. We are humbled beyond words to know that multiple research studies are currently taking place & multiple research

#AANAM attendees: How do you manage MOGAD? Share your voice in this Practice Current survey: bit.ly/3U790oi

After completing the survey you'll be redirected to landing page to receive access to a featured collection of Neurology Journals MOGAD articles and content.

Our newest MOGcast ‘Latest in #MOGAD treatment from an adult & paediatric perspective’ with experts Elias Sotirchos & Grace Gombolay, MD with co-hosts Julia & GG from SRNA is now available on YouTube. youtu.be/AKYxgHAMEJg?si…

Both acute & preventative treatments in #MOGAD are up