When I was first diagnosed I looked back at my life and asked myself was that what caused it?

Due to popular demand from our community, we're excited to host a special edition of Community Conversations in December. Join us as we discuss the various ways that the ALS community can actively contribute to advancing research! als.net/als-tdi-commun…

Promising Pathways Act Pick your state in the Map to see your Senators' support for PPA. If they say no, be sure to ask why and ask if they would meet with you and an I AM ALS member. arcg.is/1rm8ii Troy Fields Glen Rouse Deb Paust Clare Durrett Farmstrong

You can help make the FDA therapy review process more transparent. Contact your elected officials about the BENEFIT Act, which will require the FDA to disclose how or if they use patient experience data during the approval process. iamals.org/action/benefit…

An amazing man.

Hey there, I have created a Substack blog to talk about products and technology for people living with ALS! I have been trying to think about a way to talk about products that help me stay sane and produce something useful. I would love it if you would join and offer suggestions!

In December, we presented the insights from the #ALS Clinic Advisor surveys. Only 36% of clinics educate their patients on clinical trials! Do you agree? Please add a comment to let us know. esriurl.com/alshubposter Farmstrong Mandi ALS Advocacy Katrina Byrd

Pat Dolan Kevin Robinson Farmstrong Mandi Katrina Byrd teamthriving In Basel it was interesting that clinic leaders were most interested and enthusiastic about the poster & the info it showed them... yet I don't think they ask patients to complete it. "Not invented here" syndrome again? I'll stop now. Thanks for listening. 7/end

If you read about a failed drug trial please get that this is what that news feels like to families dying from these diseases. We are the faces of grief and suffering behind those headlines.

If you live in #NewJersey please become an #ALS advocate. Learn more about your Legislators here arcg.is/1OX8a82 Farmstrong Glen Rouse Bruce Springsteen

Recognize this guy with hair, one of the top players in history of Colorado high school hoops?

Natural history studies & biomarker research are the most important things to advance #ALS research & expedite getting ALS drugs on the market using Accelerated Approval. youtu.be/vjeR6JnL-dw?si… ⬆️Strongly encourage everyone to support & enroll in the "AMP ALS" study, which was

Support the military by asking your senators to sign the Promising Pathways Act. vimeo.com/950916505/e36a… arcg.is/10KTrW congress.gov/bill/118th-con… Rep. Jay Obernolte Pat Dolan #ALSAwarenessMonth #ALS #Alzheimer's #Parkinson's

On the way to the I AM ALS Flag Event and Summit in DC. Look forward to remembering & honoring those we’ve lost to #ALS including Lisa Stockman Mauriello, Becky Mourey & Sandy Morris. Thrilled to share the work of Pat Dolan & The Mappers - the ALS Clinic Advisor.

Lisa's Legacy for ALS I AM ALS Becky Mourey Sandy Morris Pat Dolan Morris R1 Crew Kylan Morris Jim Mourey Ali Mourey Coppolino Morris ALS Principles Farmstrong Mandi Katrina Byrd The loss is relentless. Thanks to you and all who keep pounding away at boulders in ALS Land in their memory.

As #ALSawarenessMonth draws to a close, we're reminded that ALS doesn't pause for anything, leaving those affected and their loved ones without the luxury of time ⏰. This is why we, at BrainStorm Cell Therapeutics, continue to work tirelessly. @BrainStormCell honors all #ALS

I’m very pleased with the maturation and utility of the #ALS clinic assessment project from Pat Dolan and The Mappers. And delighted to see this collab with Your ALS Guide. Make this tool even better by adding feedback on your ALS clinic today.

GIS is transforming ALS/MND care! Learn how location intelligence improves clinic quality and patient outcomes in this inspiring blog I co-wrote with Pat Dolan esri.com/en-us/industri… #HealthGIS #Healthcare #ALS #MND #QI

I would be so ridiculously proud to make this pledge if I was a billionaire.