Leicester sickle cell patients : We need your feedback on sickle cell services at Leicester NHS Trust. Online meetings :
30/5/24 4.30pm -5.00 pm - Children, young people and their families buff.ly/4dQF5cQ
30/5/24 5.00pm - 5.30pm - Adults buff.ly/4dIYgFo

Join Our Team as a Link Worker
We're hiring a Link Worker! Provide advocacy for sickle cell patients in underserved areas. Help us ensure equal care for all. Strong communication, networking, and advocacy skills needed. buff.ly/3yC3v9Y

Leicester sickle cell patients : We need your feedback on sickle cell services at Leicester NHS Trust. Online meetings :
30/5/24 4.30pm -5.00 pm - Children, young people and their families buff.ly/4dQF5cQ
30/5/24 5.00pm - 5.30pm - Adults buff.ly/4dIYgFo

Our team and volunteers participated in the London event organized by NIHR to raise awareness about sickle cell disease. It was an informative day where individuals with sickle cell disease and community members learned more about the condition and its impact on daily life.

Sickle cell can add extra challenge to our intimate lives . We are asking the tough questions on your behalf by turning to doctors for their take on how to have a healthy love life, and plan a family, with sickle cell. Ask anonymously buff.ly/4bsk0nE

The Infected Blood Inquiry report has been released today buff.ly/3WUZzuO Find more info about current blood and transfusion safety buff.ly/4arKynu Inquiry Support Line 11am to 3pm & 6pm to 9pm today 0800 458 9473 or 0203 417 0280

Our CEO, John James, attended a Sickle Cell event at Queen Mary Hospital to educate parents and carers about the disease. He praised the event for its engagement and quality questions from parents. Full article : buff.ly/4arsrxV

YOU raised £5000 for Sickle Cell Society!

Thank you to everybody who came to an unforgettable evening with Melissa Thompson and enjoyed her one-night-only kitchen takeover. ☺️

Only 4 weeks to go!! We have a fantastic lineup of speakers. What are you waiting for? Register today! It's easy! Just follow this link #edi #clinical_research #raredisease #advocates #cpd eventbrite.co.uk/e/edira-2024-b…

I am running the Hackney half marathon tomorrow and fundraising for Sickle Cell Society, please donate if you're able to!
justgiving.com/page/tobi-thom…

Solar Radio is marking 40 years with a special event on Saturday, November 9th, 2024. Early Bird tickets are available for £18.00 each, with proceeds supporting the Sickle Cell Society and other charities. For more details, visit: buff.ly/3K6Mbwg.

In the UK, 1 in 17 people are affected by rare diseases. We're proud to join the 'I Am Number 17' Campaign at Parliament. Our team met inspiring advocates like June & Blessing, raising awareness for sickle cell. Thanks for having us! #RareDisease #IAmNumber17 #SickleCell

Our advice line telephone service will be temporarily unavailable this week, and on Wednesday 22nd, Thursday 23rd & Friday 24th May 2024.
However, you can still reach us via email at [email protected]. Apologies for any inconvenience.

Huge congratulations to our Patron, Baroness Floella Benjamin, on her thoroughly deserved BAFTA Fellowship award! 🌟 #BAFTA #Inspiration '

On the 21st of March 2024, our CEO John James spoke at the Black Pharma event about Sickle Cell care advancements, promoting community networking and dialogue on the disease's impact. Rachel, our Communications Officer along with Sarah, the GBSL Programme Manager, also attended.

Do you use Birmingham City Hospital or Birmingham Children's Hospital? We want your views for a patient review of sickle cell services. Join us for a 30-minute online meeting on Tuesday, May 14th to share your thoughts.
Details and booking on Eventbrite buff.ly/3wsJthm

Join our focus group with the London Ambulance Service on May 16, 2024, to improve ambulance services for sickle cell patients in London. RSVP by emailing: [email protected]. Let's collaborate to enhance healthcare for sickle cell patients. #SickleCellAwareness

May is Mental Health Awareness Month! Prioritize mental well-being and seek support, especially for those with sickle cell. Mental health is as crucial as physical health. Neglecting it can harm overall well-being. #MentalHealthAwareness #SickleCellAwareness

Our CEO, John James, is a guest speaker at the Galactic Genomes event in Cambridge on Saturday, 4th May. Delve into the world of rare diseases and gain insights from experts. Tickets available at: buff.ly/4bcUFNU.
#Sicklecell #Sicklecell Awerness

We are profoundly grateful this day has arrived. NICE’s (National Institute for Health and Care Excellence) final draft guidance published today, Friday 3 May 2024, recommends Voxelotor (also called Oxbryta).
buff.ly/4b38xuo