At The Sickle Cell Cause Unity and Well Being Open Day with the acclaimed Sickle Cell Guide. A book that's Companion for life. sicklecellchair.com
#SickleCell
#SickleCell Warriors

Today is at 5pm is the close of the NICE Consultation over their rejection of Casgevy; a cureative treatment for Sickle Cell Disorder *submit your comments* to nice.org.uk/guidance/indev… *or* email them to [email protected] *Good luck Warriors* ✊🏿

Today is at 5pm is the close of the NICE Consultation over their rejection of Casgevy; a cureative treatment for Sickle Cell Disorder *submit your comments* to nice.org.uk/guidance/indev… *or* email them to [email protected] *Good luck Warriors* ✊🏿 #SickleCell

NICE Exagamglogene (Casgevy) Sickle Cell Consultation submitted ✊🏿

Today is the final day to comment. The close of the NICE Consultation is 5pm today 11th April 2024.

Good luck all ✊🏿

*Have Your Say* and please *feel free to share* widely ✊🏿 Sickle Cell Society NICE Anthony Nolan
#sicklecellwarrior youtu.be/E20-z3qOeio?si…

Please retweet.

You have until next week to comment.

This week is World Autism Acceptance Week. It's important that autistic people, and their families and carers can access tailored information, guidance and support to overcome those barriers. Find out more. autism.org.uk/get-involved/r…

#AutismAcceptanceWeek #WAAW24

The *gift* that keeps giving. *Enjoy* , and *Share*. The Sickle Cell Guide Available at:
amazon.co.uk/dp/B0BJ84YHGY

THANK YOU. Kye #SickleCell

youtu.be/E20-z3qOeio?si…

*Have Your Say* and please *feel free to share* widely ✊🏿 Sickle Cell Society NICE Anthony Nolan
#sicklecellwarrior

NEW TREATMENT FOR SICKLE CELL REJECTED
On the 14th March NICE published it’s draft decision NOT to recommend #Casgevy for NHS funding. #SickleCell HAVE YOUR SAY ' NICE Consultation on a CURE for Sickle Cell - YouTube youtube.com/watch?v=E20-z3…

NEW TREATMENT FOR SICKLE CELL REJECTED
On the 14th March NICE published it’s draft decision NOT to recommend #Casgevy for NHS funding. #SickleCell HAVE YOUR SAY ' NICE Consultation on a CURE for Sickle Cell - YouTube youtube.com/watch?v=E20-z3…

youtu.be/E20-z3qOeio?si…

*Have Your Say* and please *feel free to share* widely ✊🏿 Sickle Cell Society NICE Anthony Nolan
#sicklecellwarrior

NEW TREATMENT FOR SICKLE CELL REJECTED
On the 14th March NICE published it’s draft decision NOT to recommend #Casgevy for NHS funding. #SickleCell

NEW TREATMENT FOR SICKLE CELL REJECTED
On the 14th March @NICE published it’s draft decision NOT to recommend #Casgevy for NHS funding. #SickleCell

Solidarity to Diane Abbott MP from the Sickle Cell community and all decent people; Sir Keir, Dawn Butler MP✊🏾💙, @sicklecellchair etc that are moral, decent, and stand for fairness, justice, and equality, for all our black sisters ❤

the withdrawal of #Crizanlizumab highlights the systemic disparity; licenced treatments for sickle cell 3, licenced treatments for cystic fibrosis 511 ref *'The Sickle Cell Guide'* amazon.co.uk/dp/B0BJ84YHGY

the withdrawal of #Crizanlizumab highlights the systemic disparity; licenced treatments for sickle cell 3, licenced treatments for cystic fibrosis 511 ref *'The Sickle Cell Guide'* amazon.co.uk/dp/B0BJ84YHGY

The withdrawal of #Crizanlizumab is not on ground of safety. The MHRA simply deemed it was not effective enough! #SickleCell

Breaking News last week for anyone who missed it #Crizanlizumab has been withdrawn by the MHRA as a licenced treatment for people living with sickle cell. #SickleCell #SickleCell Warriors

We now have a vaccine for #Malaria , look out for it next year, it's a game changer.