Very happy to have contributed to this study demonstrating the promise of selective androgen receptor modulators in the treatment of women with ER-positive, AR-positive, HER2-negative breast cancer.
sciencedirect.com/science/articl…

There is still time to complete our <5 minute survey on which neurodegenerative condition patient groups might benefit from a gastrostomy tube patient decision aid. Click the link if interested forms.office.com/e/Z29u2cME33 Royal College of Occupational Therapists

Who do you think would benefit from a gastrostomy tube patient decision aid? If you work with people who have a neurodegenerative condition, we would love you to let us know in our 5 minute survey forms.office.com/e/Z29u2cME33. This follows on from our MND PDA gastrostomychoice.co.uk

Our service evaluation showed that short-term supplementary jejunal feeding was beneficial for maintaining weight 6 and 12 months after oseophagectomy doi.org/10.1111/jhn.13…

Here's a short film about the DiAMoND study and the resulting 'Gastrostomy Tube - Is it for me?' patient decision aid for people living with MND. The open access paper is available here tandfonline.com/doi/full/10.10…

itv.com/news/meridian/…

Our inaugural paper, our manifesto is now out in The Lancet Oncology . This paper describes our mission, vision, and guiding principles. We also now invite you all to join our movement- our website is now live. thelancet.com/journals/lanon…

The team that built the aid have recently had an article published, which includes details of the stages involved in the creation of the tool, and how people with #MND , carers and health and social care professionals were involved. Download a copy at tandfonline.com/doi/full/10.10…

'Gastrostomy tube - is it for me?' is a useful web-based decision aid for people with #MND considering whether to have a feeding tube fitted. The team has produced this video explaining how it can help people make an informed decision. View the tool at bit.ly/3qRKAUR

You can access the decision aid here: gastrostomychoice.co.uk
Plus there's lots of information on our website to support with MND:
➡️Information & resources about MND for professionals: bit.ly/3qYA8up
➡️Advice on eating & drinking problems: bit.ly/42OXqjW

Those living with motor neurone disease display immense resilience and courage.

The bravery shown by individuals facing this challenge is nothing short of inspiring. We must celebrate their indomitable spirit and support their journey.

On #GlobalMNDAwarenessDay , you can too...

A few places left on this FREE Vygon Gastrostomy Study Day in Stirling on 8 June. I'll be there, talking about gastrostomy decision making in MND. Other topics include blended diet, gastrostomy tract salvage & patient assessment vygon.co.uk/events/scotlan…

Our new scoping review found that identifying domestic abuse, responding to and managing a disclosure is challenging for health and social care professionals. The DALLI project is developing a toolkit to help with this.

I-Prehab will facilitate prehab for people from socially deprived communities, and so contribute to reducing inequity in cancer outcomes. Excited to be collaborating on this important project School of Healthcare Sciences

I will be talking about this tomorrow afternoon at the Palliative Care Congress in Edinburgh. Please join me if you can #PCC2023

Here's the link to the decision aid for professionals mndassociation.org/professionals/…
And this is the one to share with patients mndassociation.org/support-and-in…
Or just google 'gastrostomy tube is it for me'