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Hannah has been on compassionate #Orkambi since November 2017. Her lung function went from 20% to 59% in two weeks. She has maintained at around 50%. What have you decided today Vertex Pharmaceuticals & NHS England? We need #OrkambiNow express.co.uk/life-style/hea… cf/Aware Cystic Fibrosis Trust my CF Hero 💙

@GregHuntMP What about #ORKAMBI for Aleta Gibbs REGINA SORENSEN 👩‍🦯 Cystic Fibrosis Aust Taryn Barrett Sonia Marshall & many others ??

.Vertex Pharmaceuticals Today I made my submission to the PBAC trying to justify why my husband's life is worth the price you've put on a drug you're already making profits from. Help a lady out by doing the right thing and reducing the price of #Orkambi to ensure it gets listed this time

“Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.” -Dr. Seuss, The Lorax #MakeAdifference #CureCF

3000 comments were submitted to the PBAC by this morning! But there's still time if you've been meaning to submit - extended until midnight tonight #WeNeedOrkambi #LastChanceToSubmit x.com/OrkambiAus/sta…

Aleta Gibbs @simonjongreen Taryn Barrett @JaneOBrien9 Team Jessie REGINA SORENSEN 👩‍🦯 Sonia Marshall Emmah Money Bec Gullo @MartinAnne139

Sweden to reimburse Orkambi Can UK Canada & Australia please do the right thing & extend & save lives, patients need Orkambi NOW #mymiracle Strawfie Challenge @nhsCFwarriormum Sonia Marshall Aleta Gibbs @chelsdelaney11 NHS England Sir Jeremy Hunt MP @GregHuntMP Adrian Dix investors.vrtx.com/news-releases/…

Today has been one of the biggest honours of my working life. The listing on the PBS of Orkambi for cystic fibrosis patients will change lives and save families up to $250,000. It was a privilege to meet families and make the announcement with Not ScoMo Cystic Fibrosis Aust

16% increase in lung function 6 weeks after starting #Orkambi 😃 AMAZING Vertex Pharmaceuticals @GregHuntMP qUiRkY!!1!!1!!1!1!1!1!!!

Evie is doing so well #Orkambi. Liver function in the normal range! Lung Function high! @GregHuntMP Vertex Pharmaceuticals

Evie - Youth Citizen #AustraliaDay2019 winner for CF advocacy work #Orkambi #MagicPinkPill @GregHuntMP Vertex Pharmaceuticals

Evie Marshall winner Australia Day Youth Citizen for Cystic Fibrosis advocacy work #Orkambi Lisa Wilkinson thank u!

Evie Marshall winner Aust Day Youth Citizen - Cystic Fibrosis advocacy #MagicPinkPill #Orkambi The Project Thank u

Evie - finalist in QLD 7 News Young Achievers Leadership category for advocacy for CF #Orkambi facebook.com/QLDYoungAchiev…

Evie - finalist in QLD 7 News Young Achievers Leadership category for advocacy #Orkambi @GregHuntMP Vertex Pharmaceuticals

Pls vote for Evie - people’s choice award - advocacy for #Orkambi here’s link to vote ❤️ Thx poll.app.do/qldyaa19

G8t to be with Cystic Fibrosis Aust’s Nettie Burke discussing the Morrison Government’s $65 million investment to establish the first dedicated Cystic Fibrosis Specialist Unit in NSW.

It’s been a while. Evie has been on #Orkambi for 2+ years. And the weight of the world has lifted. So grateful ❤️

Fighting for #Orkambi in Australia #WeNeedOrkambi #OrkambiNow #CanadaNeedsOrkambi dailyadvertiser.com.au/story/5398758/…

@GregHuntMP Akarnious @billshortenmp I don’t think you’re in a position to say much. People with CF have died while they’ve waited for Orkambi to be approved on the PBS. Something I wouldn’t be proud of. No more pollie speak #WeNeedOrkambi