Come on Vertex Pharmaceuticals - this is a chance for you to do something positive in the world. And you can do it, very easily......

6 brave people have stood up 4 #HumanRights & taken their fight to UN Human Rights Special Rapporteur for Health Dr Tlaleng Mofokeng asking 4 investigation & 2 #StandUp4HumanRights of them & all w/ #cysticfibrosis everywhere fighting for access to life-saving drugs from Vertex Pharmaceuticals $vrtx

💪 Today is #HumanRightsDay2020 and we take the occasion to fully support Rositsa Malinova, #vertexsaveus & all the #CysticFibrosis patients 😷 in their fight for #access to #affordablemedicines 💊. This is especially important when medicines can save lifes ❤️. Vertex Pharmaceuticals

on #HumanRightsDay it's more important than ever to break down the barriers of the universal human right to health - whether that be for drugs for #COVID19 or for #cysticfibrosis #InternationalHumanRightsDay #HumanRights

22-годишната Росица е с диагноза муковисцидоза. Освен с болестта тя се бори и със здравната система. Причината е, че се нуждае от генна терапия с надеждата, че състоянието ѝ ще се стабилизира, за да може да дочака трансплантация. Борис Митов разказва. svobodnaevropa.bg/a/31002533.html

The face of pure joy. It's #KaftrioDay for Rositsa Malinova At a cost of EUR 20, 556.80 for just ONE MONTHS supply the box should be gold plated This has the potential to save Rosi's life Donations via Paypal: paypal.me/forRosi @VertexSave Vertex Pharmaceuticals #BigPharma

This Xmas we urge Vertex Pharmaceuticals’s Board of Directors, including: sangeeta bhatia (same on bsky) Alan Garber Tho Yuchun Lee Margie McGlynn Diana McKenzie, Bruce Sachs CRV, Terrence Kearney & LLoyd Carney to save the lives of CF patients around the globe in 2021. #vertexsaveus

This is sad, Vertex we need an intervention, we need Trikafta to turn these lives around! Vertex Pharmaceuticals what can be done? #Trikafta #CureCF

Cystic Fibrosis Patients File Official Complaint that Therapy Cost Violates Their Rights bit.ly/3bfbQCC #cysticfibrosis #CF #treatment #unitednations #complaint Strawfie Challenge

Rositsa Malinova Gosia vs Muko Monika Luty This just brought tears to my eyes! What a beautiful act of solidarity & kindness from Monika Luty & Gosia vs Muko We really are a global #cffamily & so nice to see the love across borders x

A reply to our complaint would be much appreciated at this time Dr Tlaleng Mofokeng, the Covid19 pandemic is worsening around the world & #cysticfibrosis patients are being disadvantaged by not having access to CFTR modulator therapies that can improve their health patientworthy.com/2020/12/09/pre…

Special legislation due to the pandemic has allowed two CF patients in Bulgaria - who are awaiting transplants that can't be given during the pandemic - three months access to life-saving #Kaftrio.... Read more here: facebook.com/strawfiechalle… #vertexsaveus #breathe #cfawareness

UPDATE – generic Triple therapy CFTR modulator manufactured by Gador, Argentina. This week we have had confirmation from Gador, that they expect their generic version of #Trikafta/#Kaftrio to be available from June/July 2021. Read more here👇👇👇 facebook.com/CysticFibrosis…

Imogen is a talented trampolinist. A fighter. She's done everything right to stay healthy with #cysticfibrosis. Her family fought for access to CFTR modulators. But Immy has one F508del mutation/one unknown. In the USA she would have access to #kaftrio but is denied in the UK.

I DESERVE TO LIVE #VertexSaveUs #LivesB4Profit #Poland #Kaftrio #CF #CfPoland