Robin EM-powers patients(@Robin_Lexi) 's Twitter Profileg
Robin EM-powers patients

@Robin_Lexi

Amb. for Rare & Chronic Disease Rare in 14225 SUNY Buffalo State BS, Multidis. Grad 2022 District and DC activist author Chronicles of Zazzle & activist.

ID:4460351614

linkhttp://Www.sas.buffalostate.edu calendar_today12-12-2015 14:45:53

2,0K Tweets

582 Followers

1,9K Following

Milis(@miswojo1) 's Twitter Profile Photo

How's it possible there's a shortage of pain meds in the US? The fake war on opioids will cause many to suffer or lead to more suicides. Dr's who made millions touting the 'wrongs' of pain meds knew all along it was the illicit drugs-they need to be accountable.

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Robin EM-powers patients(@Robin_Lexi) 's Twitter Profile Photo

Milis MoogieMonster Wow gentle hugs. I am so sorry, I thought it was Steven Johnson syndrome with how severe the irritation and burns are. I would advise speaking with a lawyer about the doctor who neglected to provide the proper treatment which led to this. DM if needed.

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Raymond James(@RayJames48552) 's Twitter Profile Photo

@oplis090819 Jo A pregnancy with complications can kill a woman or end her fertility. Proper OB care can save her life and fertility.

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Adam Johnson - DadVocate(@RareDiseaseDad) 's Twitter Profile Photo

Robin EM-powers patients Lisa Weinberger, MAT MitoAction Ross Stiff Person Syndrome Research Foundation Simply Kristy My pleasure, Robin! Thank you for taking time to send in some great tips & ideas. Much appreciated from you & the whole crew!

That reminds me…I couldn’t tag David Ross in the photo above for some reason (probably user error on my part) but wanted to thank David as well!

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Robin EM-powers patients(@Robin_Lexi) 's Twitter Profile Photo

That's true indefectible perseverance. I am so glad to see the beautiful smile on your face. You are so brave. I am so happy to read to read remission.

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Robin EM-powers patients(@Robin_Lexi) 's Twitter Profile Photo

Happy PRIDE everyone! I am excited to say that over the last year I have FINALLY found a term which actually explains how I feel about my gender. I am a . I am gender fluid; is the only term that fits. @angelaidcares NORD Upequity

Happy PRIDE everyone! I am excited to say that over the last year I have FINALLY found a term which actually explains how I feel about my gender. I am a #raregiver. I am gender fluid; is the only term that fits. #pride #RareDisease @angelaidcares @RareDiseases @Upequity_Org
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Adam Johnson - DadVocate(@RareDiseaseDad) 's Twitter Profile Photo

Traveling with a or requires many considerations & the stress can add up.

In this episode of , some previous PAR guests provide tips that may help!

Shoutout to Lisa Weinberger, MAT for the idea & for co-hosting! 🔊

rarediseasedad.com/parents-as-rar…

Traveling with a #RareDisease or #ChronicIllness requires many considerations & the stress can add up. In this episode of #ParentsAsRare, some previous PAR guests provide tips that may help! Shoutout to @LisaWeinberger for the idea & for co-hosting! 🔊 rarediseasedad.com/parents-as-rar…
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