1) Just published a new blog post on what severe deconditioning looks like and how it is different from ME/CFS. mecfsskeptic.com/what-does-deco…

1) Boom and bust, another ME/CFS myth? In this new blog post we look at the evidence behind the boom and bust theory and how it originated. mecfsskeptic.com/boom-and-bust-…

“We get a LOT of questions about Long Covid. We should probably come back to it and do it properly.” ALASTAIR CAMPBELL to Rory Stewart on The Rest Is Politics Please do an episode on LC and ME/CFS. Like, RT, comment to let TRiP know how important this is.

The Rest Is Politics ALASTAIR CAMPBELL Rory Stewart Thanks for mentioning Long Covid, which has a significant overlap with ME/CFS. I really hope you will return to this. It is very much a political issue. Excellent summary here: theguardian.com/commentisfree/…

Rory Stewart George Monbiot This suggestion seems to be proving popular. My votes for interviewees on the *politics* of ME/CFS and Long Covid would be davidtuller (senior fellow public health & journalism, Berkeley) Carol Monaghan (former chair APPG on ME) George Monbiot and Prof Brian Hughes.

Editorial in BMJ Evidenced-Based Nursing: “Building an NHS that truly supports people living with long COVID and ME: government action needed now” ebn.bmj.com/content/early/… #ThereForME thereforme.uk Karen Hargrave Emma GL

S4ME’s complaint, including concerns about AfME’s ties to the Bristol clinic and dependence on Peter Gladwell: s4me.info/threads/open-l… Thanks to Sonya Chowdhury for her rapid, decisive and helpful response. And huge thanks to Trish Davis and Science for ME online forum.

EMEA pan-European survey of more than 11,000 ME patients: europeanmealliance.org/emea-pan-europ…

1) New blog post on 'catastrophizing' and why this concept risks blaming patients by mislabeling their symptoms as exaggerated negative thoughts. mecfsskeptic.com/catastrophizin…

A Call for Urgent Action: Better Trials and Inclusion for ME/CFS Patients in the NIH Long Covid initiative. We have sent this letter to the NIH Director, Monica Bertagnolli, urging the inclusion of #MECFS (chronic fatigue syndrome) in the RECOVER Initiative, which currently

On #WorldPatientSafetyDay, supported by 200 healthcare professionals, I have written to Wes Streeting MP in collaboration with #There4ME calling for urgent action to improve care for people with severe #ME and #LongCovid. Our piece in the Times here ⬇️ 🧵 archive.is/XVxOt