Throughout her short life, Holly's family were well supported by local services. But not all families caring for a seriously ill child are, because of where they live. Help end this postcode lottery of care, sign our open letter. #ShortLivesCantWait. togetherforshortlives.org.uk/family_story/h…

Great to meet Wes Streeting, Ralph Coulbeck and the team at Haven House to discuss the challenges facing children's hospices and Together for Short Lives new #ShortLivesCantWait report. Please sign parent Jim's open letter to Rishi Sunak now bit.ly/496utmG

Short Lives Can't Wait. That's the message we're sending to Government's across the UK so that parents like Jim and children like Jaxson can get the care that they need. If you want to lend us your voice please sign Jim's letter to Rishi Sunak today. togetherforshortlives.org.uk/campaign/short…

How is World Health Day Linked to Children’s Palliative Care? Children’s palliative care is a critical aspect of healthcare that addresses the unique needs of children with life-limiting or life-threatening conditions. ow.ly/TKoh50Racun

Last week we brought you the news that our Helena Dunbar had been awarded a prestigious palliative care The Churchill Fellowship. In her second blog instalment, she begins her travels and takes in some sights, before the real work begins: togetherforshortlives.org.uk/time-for-some-…

#Measles is highly infectious and the only way to prevent outbreaks is through vaccination. It is never too late to catch up on missed doses. Contact your GP to arrange your MMR vaccination, or if you are not sure if you or your your child or you have had two doses of MMR.

media.service.gov.wales/news/vital-fun… As a PEoLC Programme we are really pleased to see this announcement, lots of hard work here, the funding is part of phase 3 of the Welsh Government’s end-of-life care review; £4m is provided to support hospices in 2023-24. Lots more to do😀

Today, Welsh Government have announced that additional funding worth £770,000 is set to be received by the two children's hospices, Tŷ Hafan Children's Hospice and Hope House & Tŷ Gobaith Children's Hospices.

Amazing day of collaboration and networking at the All Wales Managed Clinical Network Paediatric Palliative Care Perinatal Palliative Conference 2024, held at the National Botanic Garden of Wales. Many thanks to all our guest speakers.

More of the speakers from todays All Wales Managed Clinical Network PPC Perinatal Palliative Care Conference 2024 at the National Botanic Gardens of Wales. Really informative day so good to network and have the opportunity to meet face to face.

The National perspective on Perinatal Palliative Care, Role of the Hospice, Paediatric and Perinatal Organ Donation and role of our wonderful chaplaincy team across Wales in supporting the spiritual, cultural and religious needs of our babies, their families and our staff. Thanku

PLEASE share - Thank you Rebecca Mcdonald Marie Curie Marie Curie EOLC @kerryhood @FionaRawlinson1 Sam H Ahmedzai @SilviaGoss1 Emily Harrop Stephanie Sivell Prof. Mark Taubert @Daniella_M_H Simon Noble UCL Marie Curie Marie Curie Cymru @NJosephWilliams Mala Mann MCLIP Ishrat Islam St Christopher's CARE Hospice UK

On this International Nurses Day we celebrate all the nurses working in children’s palliative care around the world – without them many children and their families would be suffering needlessly – we commit to enhance and empower nurses globally - Prof. Julia Downing

Fantastic presentations in COVID bereavement and the Grief Support Guide by Emily Harrop at the #EAPC2024 . To see more call in to the Poster room P01! Marie Curie Research Centre, Cardiff @SilviaGoss1 DPM Cardiff University School of Medicine Cardiff University Marie Curie EOLC EAPC VZW

Congratulations to Sammie! Our first open University ‘grow your own’ paediatric nurse! 👏🏻👏🏻✨🌈 Hywel Dda UHB Bethan Osmundsen💙🌈 Gemma Owen

New guidance from BAPM which we have been pleased to contribute to. This integrated framework emphasises that palliative care is not synonymous with end-of-life care but rather represents an active and total approach to care. Download: bapm.org/resources/pall…

Your donations have enabled us to arrange special trips for the families supported by the Paediatric Palliative Care Service 😊   Thank you to everyone who has supported the #WishFund⭐️   For more information, please visit: hywelddahealthcharities.nhs.wales/campaigns/the-…

Published today! Our final Marie Curie Better End of Life report. This is the largest nationally representative (England and Wales) post-bereavement survey since the 2015 VOICES survey. mariecurie.org.uk/globalassets/m…

Today we celebrated our play team! 👏🏻We shared new ideas, explored distraction techniques and planned future play events. Improving our service experience for patients and their families! 🌈✨🧸#NPPDN

Amazing achievement Debra well done! 🩷 I am super proud of all the Hywel Dda UHB children and young people's physio team for their daily compassion and patient focused care. Really lovely for staff to get the recognition they deserve 💙💙.